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rosannen (@rosannen)

Left Anterior Clinoid Meningioma Surgery

Brain Tumor | Last Active: Mar 15, 2019 | Replies (10)

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@rosannen

Thank you for responding. It’s definitely nice to see that you are doing well. I expected loss of vision at some point although the Dr. at Mayo seems to think I only have a 10% chance of losing vision completely and 50/50 chance that I will stay the same or slightly improve if I have the surgery.

Did you have your surgery at Mayo in Rochester? I’m in Oklahoma and while there are good surgeons here, the hospital is a concern for me so if I do choose to do this I will definitely do it at Mayo in MN.

I have been told that the surgery would probably be 6-8 hours, in hospital 3-5 days as long as there are no complications and recovery would be 3 months. With a follow up at Mayo 3 months after surgery for a MRI and visit with the surgeon. Then watching it after that.

I’m told that this type of tumor will not shorten my life span, however it may, and most likely will make me go blind, if I don’t have the surgery. You sound like you were in a similar position, did you ever think of not getting the surgery? And, at this point, do you have any regrets from having the surgery?

I know I really should do the surgery (and I most likely will) but it’s like the devil I know vs. the devil I don’t know, which is the scary part.

I wish you all the best in your recovery, you sound like you are handling this very well!

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Replies to "Thank you for responding. It’s definitely nice to see that you are doing well. I expected..."

I had my surgery in Columbia, SC at Palmetto Health Richland. I didn't have a choice with surgery. My tumor was bigger and had to be removed, at least as much as could be gotten. I don't regret having the surgery at all. It's been life changing as far as my vision loss but as long as I know what to expect I can deal with it. I go every 6 months for MRI and checkups to make sure it's not growing. I was told I will have Gamma Knife radiation if it grows. I wish you all the best and I'm here if you need to talk.