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I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.
I have had a chronic cough for going on 5 years now following a bout with mono. It all started with a very bad sore throat which was concentrated on the left side of my throat. Months after my episode and many consults with doctors, I went on line one day and ran across someone suffering from Laryngeal Sensory Neuropathy and am convinced this is what I have. I have done chest X-rays, barium swallow and a scope in my throat – all normal ranges. One health care provider prescribed Gabapentin and it worked for about 3 months but eventually quit working. My cough starts with a tickle when I swallow my first bite of food. The tickle is in the very spot where the sore throat was. Crumby things like cookies and crackers are the worst. Once I have my coughing jag, it is followed by constant throat clearing and phlegmy throat for a half an hour or so. I can never eat without having a glass of ice water on hand which seems to calm it down. Post nasal drip or anything that affects that area such as inhaling smoke, cold air after being in a war room can trigger the tickle. I’ve heard about the Borox I he toons but I’m a little freaked about that. The biggest frustration is not being heard by my doctors.
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Hi, @arlinebringhurst – just a thought, since I've also dealt with chronic cough and went through a lot of testing for reflux, sinus issues, allergy, asthma, etc., plus various medications. What finally seems to have helped me is taking mometasone and formoterol (Dulera). It may have also helped me to move from a 70-year-old home to a 20-year-old one.
Hi @arlinebringhurst, @johnbishop. Regarding the chronic cough, take a look at the current medications being taken. Some medications list cough as a side effect. My mother had a cough for years and would tell me at first it was allergies to pollen, then g-acid-reflux disease. Lastly it was poison ivy. She made no sense so I looked up each and every medication and sure enough several had a cough side effect.
I’ve had a a chronic cough for 3-4 years now and was diagnosed with LSN about 6 months ago. My cough was mostly after eating and when waking up in the mornings. Amitriptyline was working well until I got the flu and now it has come back. I’m just curious if you all are taking other medication with whatever you may taking now to help with what caused the nerve damage originally if it were due asthma or reflux? If the underlying condition is not being treated the nerve medication you are taking may not be strong enough to get rid of the cough alone. I take a pretty strong dose of reflux medication which is believed to be the cause of LSN to begin with or contributed to it being irritated. Just a thought, you may need to be treated for more than one issue here. Whatever it is I hope everyone here gets some relief, this cough is an embarrassing life changing cough that makes it hard to function sometimes.
I am told that because the nerve has become hypersensitive , reflux or allergies that normally wouldn’t affect you causes the irritation that triggers the cough. I did the barium swallow and know that I have a very mild case of reflux as well as allergies. Acid seems to be a trigger as well. When both the reflux and allergies are managed well, it does reduce my cough but not eliminate it. I ALWAYS cough with my first bite of food. It is the exact location of a sore throat I had at the onset of mono. It is on my left side of my throat and the food causes an immediate tickle. It is definitely life altering. I even fear going to the dentist now for fear I have a coughing jag.
Not familiar with either of those meds but I will investigate.
I developed a cough when I was in college – it got worse quickly. I noticed that it was worst when I was studying Algebra – no kidding! In Algebra class, I started coughing convulsively until I got muscle cramps in my abdomen – I had to step out so the other students could hear the professor. My algebra book was brand new … I figured out that micro-particles from the ink were floating into the air as I read, it was printed in soy ink, I'm allergic to soy beans. I started wiping each page with a slightly humid cloth before I read it to keep the particles down. I coughed less, I muddled through that class and escaped with a B. Peggy
Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping
Hi @jaygats, Welcome to Connect. I ran across this blog that seems like it might be helpful.
Laryngeal Sensory Neuropathy How to Diagnose & Treat and its Relation to LPR
Did your doctor diagnose you with Laryngeal Sensory Neuropathy?
I tried putting hot sauce on my first bite of food, and it does coat the area and gives it a numbing effect. I read in another blog about capsaicin spray. Not sure it wouldn’t aggravate reflux symptoms.
I tried the pepper capsule supplements at each meal. Most of the time the “heartburn” sensation got eliminated. I eat spicy foods too which I think help.
I have had a chronic cough for 30 years. I have been told I have LSN. I have tried EVERYTHING including Botox injections, amitriptyline, two complete workups at National Jewish Hospital in Denver, CO. I have allergies that are managed with over the counter antihistamine. I am on a small dose of omeprazole. I have tried speech therapy. Nothing so far has worked. I have read through the post and was curious about the voice therapy using a Kazoo? Any other suggestions would be helpful. Thank you
@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes in my voice and throat that I associate with reflux and many intubations. My throat is sensitive (mildly achy) most of the time and my voice is scratchy. I almost always have a buildup of phlegm in my throat. I do not talk as much as I once did and no longer attempt to sing. I used to talk quite a lot and sang in choirs since my youth. I can no longer do phone work because after 1/2 day I lose my voice. Are these symptoms similar to yours?
Your symptoms exactly mirror mine. Ohio State doctor started me on Tramadol and Lyrica which gave me 80% relief but I still cannot sing without coughing and when become stressed the coughing increases……not fun. I have been diagnosed with Laryngeal Sensory Neuropathy.
Pleased to discover this site and Connect
I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.
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