Anyone have Laryngeal Sensory Neuropathy?
I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.
Interested in more discussions like this? Go to the Ear, Nose & Throat (ENT) Support Group.
Tramadol also works for me! You're not alone! It's tough to find a doctor who will continuously prescribe it though because of class of drug it is. I have been to Dr. Bastian years ago. I have also been to Mayo Clinic. It has been a few years ago though. I didn't do botox but I did do a nerve block. I haven't heard about cutting the nerve though. I'll have to research this. The Tramadol is becoming less effective. I started with one a day at 50mg. I'm now up to 6x a day at 50mg. Hopefully they will find something soon for those of us that the neuropathy drugs aren't working. Hang in there!
For most of us it's not a lung thing, it's a tickle in the throat that is like an itch you can't resist scratching. It can also be a combination of triggers. Allergies are just the tip of the iceberg.
If you can't do citrus how can you do the Halls Breezers? It's the pectin that's trips my cough sometimes. Maybe it's something else that trips yours though. Everyone is a bit different. I went to Mayo in Rochester and they diagnosed the issue along with Dr. Bastian in Downers Grove, IL after Mayo. I have tried about all the "cures" and nothing has worked well for me except Tramadol, which was prescribed for something else but stopped my cough. Not permanently though. I have had to increase the dosage to get acceptable results but it's getting less effective. I tried the nerve block also without much success but they are now saying 3 shots or more is what is needed on each side. I haven't tried that yet. I didn't try botox because my doctor at Mayo said they were having better results with the block. I have also been reading about certain breathing/throat exercises like you discuss. It might be worth a try. I also just heard about cutting the nerve and will investigate this also, even though the nerve block didn't do much. But, I did only did the block once on each side. I keep looking and searching. Maybe some day....
I have tried pregabalin, which worked really well for 6 weeks but then became less and less effective and gave me bad withdrawal symptoms. At the moment I am just 'managing' things by avoiding my own triggers (smells, cold air, sitting down after eating) and doing my own calming measures (chewing gum, breathing warm moist air, standing rather than sitting) I would love to hear someone say they have found a long term 'cure'.
I'm new to the group and navigating my way around the posts. You mention 'playing the kazoo'. I have reached the point with my cough that I know control and coping is about addressing both physical triggers and effects and psychological calming measures and they can be different for everyone So, I'm intrigued. What is the rationale behind the kazoo and what do you need to do? I'm surprised not to see any mention of chewing gum in the thread. That is one of my best calming measures. I don't think I would be able to drive my car without it.
Hi Joe, I am suffering from this for many years, but no doctor in SA could diagnose me or assist with any solution. I started to do some research myself, and this is how I came across this information. So glad that I now have a name for my problem and also have the opportunity to talk with other people with the same problem and symptoms.
Regards
Ig
I've had this for 50 years. My current Dr prescribed pregabalin 75mg twice a day. It's giving me about 85 percent relief of symptoms. I do have triggers, like tomatoes and tomato sauce, caffeine and breads. I'm also taking prevacid 4 times a day.