Anyone have Laryngeal Sensory Neuropathy?

Posted by tkubby @tkubby, Jan 23, 2019

I am looking to talk with anyone that has been told they have larynx sensory neuropathy. In other words, over active nerves in the larynx.

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I developed a cough when I was in college – it got worse quickly. I noticed that it was worst when I was studying Algebra – no kidding! In Algebra class, I started coughing convulsively until I got muscle cramps in my abdomen – I had to step out so the other students could hear the professor. My algebra book was brand new … I figured out that micro-particles from the ink were floating into the air as I read, it was printed in soy ink, I'm allergic to soy beans. I started wiping each page with a slightly humid cloth before I read it to keep the particles down. I coughed less, I muddled through that class and escaped with a B. Peggy

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@arlinebringhurst

I am told that because the nerve has become hypersensitive , reflux or allergies that normally wouldn’t affect you causes the irritation that triggers the cough. I did the barium swallow and know that I have a very mild case of reflux as well as allergies. Acid seems to be a trigger as well. When both the reflux and allergies are managed well, it does reduce my cough but not eliminate it. I ALWAYS cough with my first bite of food. It is the exact location of a sore throat I had at the onset of mono. It is on my left side of my throat and the food causes an immediate tickle. It is definitely life altering. I even fear going to the dentist now for fear I have a coughing jag.

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Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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@jaygats

Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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Hi @jaygats, Welcome to Connect. I ran across this blog that seems like it might be helpful.

Laryngeal Sensory Neuropathy How to Diagnose & Treat and its Relation to LPR
https://www.wipeoutreflux.com/laryngeal-sensory-neuropathy/

Did your doctor diagnose you with Laryngeal Sensory Neuropathy?

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@jaygats

Those are my exact conditions, I was on gabapentin for a bit had improvement but had side effects ; so went on Lyrica last 2 months. Its helped make it more manageable but first bit of food triggers it for 1-2 hours. Lyrica causing me to gain +15 pounds in 8 weeks so going to get off and try something else I hope. I have been suffering since I had bronchitis in Feb 2019. Cough was chronic before the drugs but just maintainable now but no cure and side effects from drugs not helping

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I tried putting hot sauce on my first bite of food, and it does coat the area and gives it a numbing effect. I read in another blog about capsaicin spray. Not sure it wouldn’t aggravate reflux symptoms.

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@arlinebringhurst

I tried putting hot sauce on my first bite of food, and it does coat the area and gives it a numbing effect. I read in another blog about capsaicin spray. Not sure it wouldn’t aggravate reflux symptoms.

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I tried the pepper capsule supplements at each meal. Most of the time the “heartburn” sensation got eliminated. I eat spicy foods too which I think help.

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I have had a chronic cough for 30 years. I have been told I have LSN. I have tried EVERYTHING including Botox injections, amitriptyline, two complete workups at National Jewish Hospital in Denver, CO. I have allergies that are managed with over the counter antihistamine. I am on a small dose of omeprazole. I have tried speech therapy. Nothing so far has worked. I have read through the post and was curious about the voice therapy using a Kazoo? Any other suggestions would be helpful. Thank you

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@2011panc

@tkubby I have not been told that I have larynx sensory neuropathy. I have noticed changes in my voice and throat that I associate with reflux and many intubations. My throat is sensitive (mildly achy) most of the time and my voice is scratchy. I almost always have a buildup of phlegm in my throat. I do not talk as much as I once did and no longer attempt to sing. I used to talk quite a lot and sang in choirs since my youth. I can no longer do phone work because after 1/2 day I lose my voice. Are these symptoms similar to yours?

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Your symptoms exactly mirror mine. Ohio State doctor started me on Tramadol and Lyrica which gave me 80% relief but I still cannot sing without coughing and when become stressed the coughing increases……not fun. I have been diagnosed with Laryngeal Sensory Neuropathy.

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Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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@joanna48

Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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@joanna48 Welcome to Mayo Clinic Connect! I found that exactly what you pointed out, is a major reason this site is comfortable. While we each have our own journey with health issues and concerns, others are here to help us along! There is no "one-size-fits-all" and listening to others can give us hope. The website for Mayo Clinic itself offers so much information. https://www.mayoclinic.org

Here is the discussion group for lung health https://connect.mayoclinic.org/group/lung-conditions/
One for neuropathy https://connect.mayoclinic.org/group/neuropathy/
And one for ear/nose/throat https://connect.mayoclinic.org/group/ear-nose-throat-conditions/

Please feel free to wander through the different conversations and join in!
Ginger

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@joanna48

Pleased to discover this site and Connect

I have larynx sensory neuropathy and here I have found others who suffer the same condition. The greatest frustrations I have experienced with the Australian medical system to date are a. that doctors don't listen to me and b. give me so little information. I also have Mac lung disease and the blogs/groups for this have been of enormous benefit to me over the past 4+ years.

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@joanna48 Welcome to Mayo Clinic Connect, a place to give and get support.

We are happy you found Connect too.

You'll notice I moved your question to an existing discussion on larynx sensory neuropathy. I did this so you could connect with members like @avmcbellar @arlinebringhurst @tkubby @kimduncan1211 in a central location.

You may wish to scroll through the previous posts in search of information and connection.

May I ask how you are managing larynx sensory neuropathy and MAC lung disease?

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