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Hi, I was wondering if anyone can give me more info on what to ask the transplant team when I go for my evaluation. I’m struggling with weather dialysis is better or a transplant. I know any surgey has risks.
@dshaver, I am dropping in to say hi. I hope that you are feeling okay. I know how slow time goes when waiting for a transplant. I did not have the option to get a living donor due to the urgency of my situation. I pray that you will get the transplant when the time is right for your needs. Take care of yourself, and be assured that you are not alone.
We are here anytime if you need us. And we are here if you just want to chat.
I was put on the transplant list about 7 months before I went on dialysis, if I had not gone on dialysis when I did I would not be here. It took another 5 years before I had my transplant. Doctors, today, will not give anyone a kidney that will hurt them. While I was in the hospital I gave enough blood to fill 10 vials for the lab to make sure I was a good match for the kidney waiting for me. We have been good friends for the last 10 years. Anytime I see a new doctor, I let that doctor know my kidney comes first. If you are fearful of surgery and you have never had surgery before, yes, it can be scary. I stopped counting the number of times I have been cut on before I reached 20. Each time it gets easier. Good luck. mlmcg
@lcamino, and kidney patients,
Recently a member made a comment in a different transplant thread that I feel might be informative in this thread about kidney transplant. I think that whether someone has PKD; is waiting for a transplant; has received a kidney transplant; and family and loved ones might benefit with a place to ask questions and share their experiences with polycystic kidney disease (PKD).
I invite members to join in with any questions or experiences.
Jump to this post
I was on a post that talked about life after kidney transplant. Not medical, foods eating out etc. I lost it. How to find it again
Are any of these the discussion you are looking for?
– Top Transplant Hacks: Patients Share Their Best Tips and Tricks https://connect.mayoclinic.org/newsfeed-post/top-transplant-hacks-patients-share-their-best-tips-and-tricks/
– Transplant https://connect.mayoclinic.org/page/transplant/tab/newsfeed/
– What to Expect: Post Transplant Care https://connect.mayoclinic.org/newsfeed-post/what-to-expect-annual-post-transplant-follow-up/
It has been a ruff month. My Kidney percent is down to 8. I have nephew who is being assessed for Paired Donation the week after Easter. Two people who have applied to be my donor have been told that there is a donor in evaluation and they are on hold. However no one can tell me if the person being tested is for Paired Donation or Direct Donation.
@dshaver, Oh my goodness. You are having a ruff month for sure.
I am not real knowledgeable on living donation, but I am pretty sure that any information about who/what/why of evaluations is strictly confidential. I do understand you wanting to know, though. You will most likely not know anything until everything is 100% certain
Thank you for the update. I will be praying that all will progress in a sequence that will best for you in the long term.
Are you on dialysis? I know that you must be worried beyond words.
Overall, how are you feeling?
@dshaver In 2012, my husband had a living donation from our brother-in-law (unrelated). We imagined that there would be a big operating room with brother-in-law on one table and my husband on the other. This could not have been farther from the truth. The two departments are not allowed to communicate donors to recipients, or vice-versa. In other words, the donor department is never going to talk to you. Any questions about hepatitis should be addressed by YOUR transplant doctor.
We, of course, were told by our brother-in-law that he was a perfect match!
Thanks for your support and prayers. I’m not on dialysis. Some days I’m my normal self with a lot of energy. Some days all I do is sleep. Recently I’ve been having insomnia. Sometimes I don’t sleep for days.
@chill28, I read in a recent post that you are waiting for a kidney transplant, I would like to extend a sincere welcome to Mayo Clinic Connect. I would also like to invite you to join this discussion where you can read about and meet other patients who are sharing about their experiences related to waiting for their transplant. We welcome your questions, and we look forward to sharing and supporting you on your journey.
I want to introduce you to @dshaver , @gaybinator , @mlmcg . These members each have shared kidney information from a variety of experiences.
@chill28, Are you currently on the waiting list? Are you undergoing dialysis? What are some ways that we can offer to support you.
@dshaver, Denise, I'm just dropping in to say "Hi". I'n thinking about you.
Husband needs a kidney transplant. He is 63. Our search for donors has hit a brick wall. He is 0 negative blood type. His siblings are “ too old” and are on medications that eliminate them for donors. Please please help us find a donor
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