KERENDIA instead of Spironolactone for HfPEF?

@mikeydc2008
I switch from Spironolactone to Epioronolactone (spell) because was allergic to Spironolactone. Had every side affect mentioned.

So my prescription changed but did not get Kerendia.

Your HFPEF. That is issues with heart pumping while tests show normal ejection fraction. Is that correct?

@jc76
Yes, that is correct! I have heart failure with preserved ejection fraction (HfPEF). My heart still pumps a normal amount of blood and oxygen. However, it gets backed up and congested. I still do not know why! Sorry to hear you had all the bad reactions from taking Spironolactone. Are things any better for you since switching from Spironolactone? I hope you feel better!

@mikeydc2008
Oh by far not even close. My HF doctor at Mayo Jacksonville originally prescribed the Spironolactone with expectations may help remodeling my heart. As I mentioned I had very single side affect listed for the medications with major ones of severe nipple pain, and back pain.

The new medication I got no side affects from. My HF also added Jardiance to my medications with same hope that would help improve modeling of heart. I have had the same ejection fraction (EF) for over 10 years. Very low at 22% but does not prevent me from doing anything physically other than jogging for a long distance.

I was told since I have ben avid exerciser all my life my body was able to adapt to the lower EF.

I think I have the same side effects from Spironolactone. Only some days though. Good you got away from Spironolactone! That’s great you are still able to exercise. You sound like a real athlete! I do hill walks and hikes now. I want to go on more challenging walks and hikes in the US or UK soon. I will let you know how Kerendia works for me! How do you like Mayo Jacksonville?

My cardiologist switched me from Spironolactone to Kerendia and Farxiga about a year ago. It has really helped me. I went from level 2 heart failure to level 1.
My cardiologist was a part of the clinical trial for Kerendia. He is the world renowned expert in Diastolic Dysfunction.

That’s great! I am on Jardiance and Spironolactone. I just got approved for Karendia. I hope it helps! Is your doctor at Harvard?

@mikeydc2008
Been going to Mayo Jacksonville since 2006. When I first came they only had one building (Davis), no hospital, no other buildings. Since then hospital was built and over the years expanded up and up. Probably a dozen special treatment buildings built. They added several years ago Community Care, and Primary Care. Several restaurants and/or quick order food bistros along with Starbucks.

When waiting for my next appointment I walk the campus as they have trails around the lakes and campus.

I love going to Mayo Jacksonville. I get excellent treatment. I love their portal where I can send and receive messages. When you have labs done your doctor will have results within a couple of hours and they are sent to you via portal.

If I have any complaints is parking. So many coming now that during prime hours hard to find a parking space. Even the parking garage (which they charge for) is usually pack and you wind up at top of garage.

But I little nuisance to be at such an outstanding medical institutions. If you have never been you will be astonished at the campus. It is huge and just beautiful. Lakes, water fountains, ducks in the lakes, sitting areas, walking areas, all among beautiful landscaping. It's got to be several hundred acres.

Recently was hospitalized for 5 days after multiple ICD shocks and was admitted to the new cardiology rooms. The room was huge. The T.V. was so big it took up one wall. To the right of T.V. was digital screen of who your care givers where and pertinent information for you the patient. I called the nurse one time as I felt a humming and could not find out what it was. She said "oh I forgot that is your massage bed motor, do you want it off or higher."

The view was beautiful. I would roll my lounge chair over to window and look outside for hours. I had a view of the lakes and water fountains. I heard some of the nurses say the new rooms are the best they have ever seen anywhere.

Yes been an exerciser all my life. Was avid scuba diver and tennis player until ICD/Pacemaker. And for many years ran 10k races, and for about 10 years did Sprint Triathlons. I exercise for at least 1 hour each day but I find it enjoyable and something I look forward too and depressed if I don't get water aerobics, bike ride or walk. Was swimming twice a week for a mile but my doctors after the shocks asked me to put that off for awhile.

Sorry so long. I have never been know for brevity MCC posts.

@mikeydc2008
My doctor was at University of Utah hospital

That’s good, too!

@jc76
I hope you are doing well after your wonderful experience at Mayo Jacksonville. That’s quite a recommendation! Thank you! I love Florida! I lived in Tampa and liked it a lot. I just might move back! Mayo Jacksonville is now at the top of my list. I hope you get back to swimming and diving soon!