It's been too long,but surely here and finally on the waiting list

Posted by Angelita Franzen @oohlalalita, Jan 8, 2017

Hello, I’m a patient here with Mayo, awaiting a kidney transplant God willing. I have been diagnosed with SLE/Lupus at the age of 19 which eventually transgressed into CKF chronic kidney failure, and lead me to 3x a week dialysis treatments starting at the age of only 23 w/no family support what so ever accept my loving younger sister”God bless her heart”.Don’t really know what to say, I’ve been sick most of my life but hopeful to succeed with a transplant inshallah/God willing:) If it weren’t for Mayo at giving me the guidance, and honesty to succeed I would not be here…I’m seeking hopeful stories, honest inquires, and truthful people to connect with…

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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I live in the Houston TX area and was in the wait list at 3 facilities; Houston Methodist, Univ of TX Galveston and University Hospital San Antonio. I transplantedcat Froedtert Hospital in Milwaukee as that is where my donor wished to have it done. I am 69 yrs young again.

REPLY
@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

Jump to this post

@maryraines that was a perfectly time response! I’m right here at my computer, and up pops your message! I am so-o-o happy for you to have received your transplant. I was blessed with a liver and kidney transplanted from a deceased donor. He is forever my hero and I am thankful for his great gift every day.
I understand what you mean by 69 years young again! That does take on a special meaning now, doesn’t it?
I, myself, have never heard of a matching donor group. What does that mean? How does it work?
Rosemary

REPLY
@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

Jump to this post

Matching donor groups are formed when you have a willing donor but they do not match you. If they and you are willing, you will be added to other people who are willing to take a stranger’s donation in “exchange” for your volunteer donation. Say A recipient does not match A donor, but matches C donor, who does not match C recipient. A recipient gets C donor’s organ. But, A donor does not match C recipient, so B recipient/donor are contacted. C recipient receives B donor’s organ, and hopefully B recipient gets A donor’s organ. That is the general idea. It doesn’t always work out that well, so sometimes more recipient/donor pairs are contacted.

REPLY
@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

Jump to this post

That’s right when several parties have living donors there can be swaps made. However, the group I joined is an organization that a receipent can join, post a profile and one can match with an altruistic living donor. This is where I found my living donor and thankful everyday.

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