It's been too long,but surely here and finally on the waiting list

Posted by Angelita Franzen @oohlalalita, Jan 8, 2017

Hello, I'm a patient here with Mayo, awaiting a kidney transplant God willing. I have been diagnosed with SLE/Lupus at the age of 19 which eventually transgressed into CKF chronic kidney failure, and lead me to 3x a week dialysis treatments starting at the age of only 23 w/no family support what so ever accept my loving younger sister"God bless her heart".Don't really know what to say, I've been sick most of my life but hopeful to succeed with a transplant inshallah/God willing:) If it weren't for Mayo at giving me the guidance, and honesty to succeed I would not be here...I'm seeking hopeful stories, honest inquires, and truthful people to connect with...

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@frane1939

I am so sorry to hear this.. I do not have issues with my kidneys so I have nothing to offer except to say that I will be praying for your speedy recovery. Also to tell you I love you and I know a lot of people reading this feels the same way. Please keep this community posted of your progress and I know that you will have a lot of friends on this website pulling for you. Sinncerely, Fran Eaton

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Your response placed a huge smile on my face and in my heart yesterday waiting in line at lowes.... I'm very hopeful and ambitious about the future... Your thoughts and concerns help me so much.... God bless you dear

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@oohlalalita, I want to say, "Hi." I hope that you are doing okay. The waiting is hard, so take it one day at a time. Look for a blessing in each day, that can help time to pass more easily for you.
Sending you a virtual Hug.
Rosemary

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@rosemarya

@oohlalalita, I want to say, "Hi." I hope that you are doing okay. The waiting is hard, so take it one day at a time. Look for a blessing in each day, that can help time to pass more easily for you.
Sending you a virtual Hug.
Rosemary

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Hey rosemary hru?:) I'm actually weaning myself off of dialysis after a complete changed diet to veganism meditation warm compresses and natural pathic/holistic medicine I.e. all natural from our Creator....
I've been on zero blood pressure meds after weaning myself to 1/2 pill a day!! Almost 3 1/2 months of no bp needs .... And just wonderful blood pressures thanks be to God... Kidney failure is reversible .... And I am what many people have gone through.... Knowledge is power....

Take care rosemary

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@rosemarya

@oohlalalita, I want to say, "Hi." I hope that you are doing okay. The waiting is hard, so take it one day at a time. Look for a blessing in each day, that can help time to pass more easily for you.
Sending you a virtual Hug.
Rosemary

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@oohlalalita, Thanks for your reply and wonderful news. You have provided an example of the positive effects of taking a proactive role in adopting a healthy life style. It sounds like your lifelong history of sickness and health issues is responding well.
Can I ask you a couple questions?
What does, " I'm actually weaning myself off of dialysis " mean. I assume your doctors are involved in this.
And
What motivated you to begin this plan?
Rosemary

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Hi everyone I am new to this site. I am 17 mos post kidney transplant. After exhausting all my fiends and family with no match, I joined a matching donor group and within 2 wks found an altruistic donor. She gave me a new life. This whole process has certainly been a learning experience and the learning continues. If anyone is interested in this resource feel free to connect with me.

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Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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I live in the Houston TX area and was in the wait list at 3 facilities; Houston Methodist, Univ of TX Galveston and University Hospital San Antonio. I transplantedcat Froedtert Hospital in Milwaukee as that is where my donor wished to have it done. I am 69 yrs young again.

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@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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@maryraines that was a perfectly time response! I'm right here at my computer, and up pops your message! I am so-o-o happy for you to have received your transplant. I was blessed with a liver and kidney transplanted from a deceased donor. He is forever my hero and I am thankful for his great gift every day.
I understand what you mean by 69 years young again! That does take on a special meaning now, doesn't it?
I, myself, have never heard of a matching donor group. What does that mean? How does it work?
Rosemary

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@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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Matching donor groups are formed when you have a willing donor but they do not match you. If they and you are willing, you will be added to other people who are willing to take a stranger's donation in "exchange" for your volunteer donation. Say A recipient does not match A donor, but matches C donor, who does not match C recipient. A recipient gets C donor's organ. But, A donor does not match C recipient, so B recipient/donor are contacted. C recipient receives B donor's organ, and hopefully B recipient gets A donor's organ. That is the general idea. It doesn't always work out that well, so sometimes more recipient/donor pairs are contacted.

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@rosemarya

Hi @maryraines. Welcome to Connect. I am glad that you have found us. This is a community where we share and encourage each other. We learn from hearing of the experiences that others have experienced.
We would like to know more about you. Would you tell us more about experience? Where did you receive your transplant? And how are you doing?
Rosemary

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That's right when several parties have living donors there can be swaps made. However, the group I joined is an organization that a receipent can join, post a profile and one can match with an altruistic living donor. This is where I found my living donor and thankful everyday.

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