Is Fibromyalgia a progressive disease ?

Posted by haarvee @haarvee, Dec 13, 2025

I can't say whether everyone with Fibromyalgia, Chronic Fatigue, Long Covid, ME CFS has the same disease or are in the same family of disease. The terms are used interchangably alot. "Fibrositis" originally for me (dating myself a bit). Some people get better. I cannot relate in any way. I have all the symptoms of ME and CFS or whatever you want to call it. My version of the illness has progressively gotten worse - much worse for over 30 years. I couldn't work FT ever again after just 6 years. After 15 years, and despite herculean efforts, I could no longer work at all. It was then that I started to transition from a focus on longevity of life to improving quality of life. After 30 years, I no longer have the health to leave the house even to go to a doctor. My version was progressive and increasingingly more debilitating from the beginning.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

I got Covid, 2021, very mild, and 2 weeks later, I woke up with pain and stiffness, which was diagnosed with fibromyalgia 9 months later.
My fibromyalgia has worsen in the last year and I’m starting PT at the first of the year again.

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Profile picture for judcar @judcar

I got Covid, 2021, very mild, and 2 weeks later, I woke up with pain and stiffness, which was diagnosed with fibromyalgia 9 months later.
My fibromyalgia has worsen in the last year and I’m starting PT at the first of the year again.

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@judcar As soon as I started reading about those with "Long Covid" and their symptoms, I said to myself, sounds just like Fibro.

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