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Is Fibromyalgia a progressive disease ?
I can't say whether everyone with Fibromyalgia, Chronic Fatigue, Long Covid, ME CFS has the same disease or are in the same family of disease. The terms are used interchangably alot. "Fibrositis" originally for me (dating myself a bit). Some people get better. I cannot relate in any way. I have all the symptoms of ME and CFS or whatever you want to call it. My version of the illness has progressively gotten worse - much worse for over 30 years. I couldn't work FT ever again after just 6 years. After 15 years, and despite herculean efforts, I could no longer work at all. It was then that I started to transition from a focus on longevity of life to improving quality of life. After 30 years, I no longer have the health to leave the house even to go to a doctor. My version was progressive and increasingingly more debilitating from the beginning.
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I got Covid, 2021, very mild, and 2 weeks later, I woke up with pain and stiffness, which was diagnosed with fibromyalgia 9 months later.
My fibromyalgia has worsen in the last year and I’m starting PT at the first of the year again.
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3 Reactions@judcar As soon as I started reading about those with "Long Covid" and their symptoms, I said to myself, sounds just like Fibro.
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2 ReactionsI'm 51 I got diagnosed with longterm covid then fibromyalgia and after that with adipose delarosa all of which cause wide spread pain only have had diagnosis for 2 years but I am sure I've had fibro since my 20s and it just keeps getting worse most days I don't even wanna get out of bed I'm in so much pain
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3 ReactionsFibromyalgia is caused by your brain overreacting to pain.
I’ve had it since I was about 20. (56 years ago).
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4 Reactions@lisamonti1 I agree that Fribromyalsia and long covid are not the same thing. I have both and they do compound each other, but in my case they are two distinct conditions.
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1 Reaction36 years FM dx and multiple other conditions, as many list here on this site. I believe it and other issues make it seem progressive, but may be the combination. I try hard to stay as active as I can. I went out on disability age 52. I have worked in the garden, taken rests, always with legs up. I recently moved in a home without steps and an active community. The key is to rest when needed and keep moving around and stay active as much as possible for you. It is frustrating as the pain sensitivity can get to you and truly not many understand about central pain sensitization. Fortunately I have a good pain Dr. And other great health providers.
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3 Reactions@grandma1958 Check into LDN low-dose naltrexone. There's lots of discussion on it this support group.
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5 ReactionsAfter 44 years with FM I can say without a doubt yes it is progressive. I am now in a care home because of how bad it now is. I also have a torn rotator which makes my right arm useless.
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4 ReactionsI was thinking the same thing. Im so sorry that you are going through this. I truly feel the same way. I was diagnosed with fibromyalgia when I was 32 years old. Now I’m 43 so Ive had fibromyalgia for 11 years. When I first was diagnosed I fought the disease in every way which for me made it worse. I would have a major flair up every three months. Now I’m in constant pain and the fatigue is bad to the point where My legs give out. I know everyone is different but I hopeful.
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5 Reactions@nicolemosley333 On here for a relative with fibromyalgia.
She had a flare at Christmas after getting both Flu and norovirus.
So, viruses can cause a flare plus other situations….