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Is anyone taking Ibrutinib (Imbruvica)?

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (18)
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@colleenyoung

Hi Betty, I can imagine that you are confused and scared. It must be disconcerting that the lymphoma has returned and to start a new medication.
I'm tagging fellow members who have experience with ibrutinib, sold under the brand name Imbruvica, like @gg17 @bullwinkle @profrich @ejrquast

Betty, when will you start the new treatment? How are you doing?

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Replies to "Hi Betty, I can imagine that you are confused and scared. It must be disconcerting that..."
bullwinkle | @bullwinkle | Aug 13, 2022

I have been on Ibrutinib for over 3 years and will answer any questions
Bullwinkle

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Betty | @betnlar | Aug 14, 2022

Hi Colleen, thank you for responding. I've been on Ibrutinib 560 mgs once a day for about a week now. I was also started on a high dose of steroids to help with the swelling. My thought process and emotions have been on a ride to Hell and back. I deal with intense need of sleep. I feel like I'm in a fog all the time. This I believe is from the steroids. They are now in the process of weaning me off of them. I'm just trying to take each day as it comes.

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