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Is anyone taking Ibrutinib (Imbruvica)?

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (18)

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@bullwinkle

I have been on Ibrutinib for over 3 years and will answer any questions
Bullwinkle

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Replies to "I have been on Ibrutinib for over 3 years and will answer any questions Bullwinkle"

I started Ibrutinib three weeks ago 560mg daily for Follicular Lymphoma transformed to DLBC with CNS involvement. So far coping well main side effect being itchy red rash all over which managed with antihistamine and now fading. Do the side effects become accumulatively worse as time goes by? I am told I must take Ibrutanib for the rest of my life. I am becoming a bit neurotic about exposure to infection, especially viral infection and COVID as it is my lymphocytes that are very low. How did you manage this fear of infection? I don't want to remove myself from the world. Also the bleeding risk worries me though no sign of bruising etc yet, only the measles
like spotty rash and a couple of 1/4" purple blotches on my arms. Can I expect these things to worsen with time?