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Is anyone taking Ibrutinib (Imbruvica)?

Blood Cancers & Disorders | Last Active: Sep 28, 2023 | Replies (18)
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@betnlar

Hi Colleen, thank you for responding. I've been on Ibrutinib 560 mgs once a day for about a week now. I was also started on a high dose of steroids to help with the swelling. My thought process and emotions have been on a ride to Hell and back. I deal with intense need of sleep. I feel like I'm in a fog all the time. This I believe is from the steroids. They are now in the process of weaning me off of them. I'm just trying to take each day as it comes.

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Replies to "Hi Colleen, thank you for responding. I've been on Ibrutinib 560 mgs once a day for..."
ejrquast | @ejrquast | Aug 17, 2022

Hi Betty,

I am so sorry that you are experiencing major side effects while taking Ibrutinib and steroids.
I took Ibrutinib/Imbruvica for two years and two months and experienced many side effects, even though I was on a lower dosage. I’ve also had steroids and they effected me greatly. Hoping the gradual steroid decreased dose will bring you some relief.
Please know that we care and support you through this.

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