Is anyone here taking Revlimid? If so please share with me

How much did it raise the hemoglobin level, and how fast did it start working ?

I have started 5 mg Revomid 3 weeks ago.

So far no negative reaction but not yet retested for hemoglobin increase.

I just started this month with 5 mg Revomid with no adverse reaction.

To date not retested for hemoglobin increase.

How much did it raise hemoglobin levels ?

How long before you saw an increase in hemoglobin level?

What is your hemoglobin number ?

My wife was prescribed revlimid after she finished her first line of treatment with Velcade & Dex. On a second line of treatment, she was given revlimid but she had a bad reaction to that, so she was switched to pomalimidomide, but she had the same problem (both drugs are immunomodulators..whatever that means). So she was switched to Darzalex Faspro + Kyprolis + Dex and is doing well. Labs look good. Everybody is different, and with myeloma you have various drug combos available.

I've been on 10 mg of revlimid for quite a while. My hemoglobin remains low from 12 to 10.9. It does not raise my hemoglobin.

I would consider it a victory if I could get to a 10.0 hemoglobin level on Revomid.

I have been taking Revlimid 10 mg. For the last 2 yrs. As a maintenence drug post stem cell transplant. I get labs run every three months. Hemoglobin levels are are consistently in the high tens and 11 levels.. I am in my 4 th year post diagnosis. My levels came up significantly once treatment started up until I reached remission and stem cell transplant.
Side effects included small rash ( 2nd month of initial treatment of 20 mg.), fatigue , constipation and diarrhea. The main side effect I currently manage is the constipation and diarrhea. I have went from 1x per week occurrence , to about 1-2 x per month.
Small price to pay to live a fairly normal quality of life.
Best wishes to all living with this disease!

My husband took it last year with DVRD. He had no side effects (25 mg). We are starting it again this week! Husband had stem cell transplant in April which was successful!! Now we are starting maintenance. It seems to me, Revlimid is going to be taken indefinitely!