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Is anyone here talking Revlimid? If so please share with me

Posted by packgb19 @packgb19, Jan 16, 2020

Today I took my 1st pill 20 Mg., please share your thoughts and how its working for you my friends.
Patrick from IL

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stanmurray | @stanmurray | Sep 6, 2021

I 'had' M M. Diagnosed six years ago. Took Revlamid DAILY until two months ago. Now I have leukemia-ALL. Maybe the Revlamid should have had breaks in the use of it as seems to be common. I had no side effects that I noticed except for the current cancer that may be related.

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Ginger, Volunteer Mentor | @gingerw | Sep 6, 2021
In reply to @stanmurray "I 'had' M M. Diagnosed six years ago. Took Revlamid DAILY until two months ago. Now..." + (show)
@stanmurray

I 'had' M M. Diagnosed six years ago. Took Revlamid DAILY until two months ago. Now I have leukemia-ALL. Maybe the Revlamid should have had breaks in the use of it as seems to be common. I had no side effects that I noticed except for the current cancer that may be related.

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@stanmurray Has your medical team told you the Revlimid is a contributing factor to the ALL leukemia? When a person's immune system is compromised in some way, other disease factors may raise their head.

I was diagnosed with active MM a year ago, and just started taking revlimid, three weeks on, one week off. At this time, no side effects except a mild rash on my lower legs, benefiting from cream and benadryl.
Ginger

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stanmurray | @stanmurray | Sep 6, 2021
In reply to @gingerw "@stanmurray Has your medical team told you the Revlimid is a contributing factor to the ALL..." + (show)
@gingerw

@stanmurray Has your medical team told you the Revlimid is a contributing factor to the ALL leukemia? When a person's immune system is compromised in some way, other disease factors may raise their head.

I was diagnosed with active MM a year ago, and just started taking revlimid, three weeks on, one week off. At this time, no side effects except a mild rash on my lower legs, benefiting from cream and benadryl.
Ginger

Jump to this post

The 'Docs' probably don't want to mention the connection..Revlimid/ALL. I always felt lucky to be healthy for years after the initial MM. No upside to mentioning the possible connection now except that the MM Doc may be 'wised up' regarding never reducing the daily Revlimid dose for the his current and future patients. I just remembered..I have been healthy but did have spinal compression fractures that left me 3 or 4 inches 'less tall' and gave me pain fairly constantly..small doses of morphine helped.

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