How often do you get scans when there are no significant changes?

Your advice is why I am looking into joining a study for the new GORE ASG stent placed endovascularly.

The Aortic Disease Center at Brigham and Women's in Boston placed me with a cardiovascular specialist who isn't a thoracic surgeon, nor is he a member of the ADC team. He doesn't even have aortic aneurysm listed on his clinical interests. I have been with them for over 3 years, and I have never seen a thoracic surgeon for consult.

My aneurysm is at 5 cm currently.

Well, at least, as far as I know. Imaging results thus far:
5/10/21 Echo - 4.7 cm here and on tests with previous providers
10/22/21 MRI - 4.9 cm
12/5/22 MRI Angio - 5.0 cm
1/20/23 MRI Cardiac Non-Stress (not angio) - 5.1 cm with a 3.7 cm dilated pulmonary artery. Should be 2.9-ish. 4 cm would be aneurysm for a woman. No one is concerned. This was done because it looked like I might have left to right shunting. I didn't.
12/11/23 MRI Angio - 5.0 cm

We skipped 2024 entirely. I don't get scanned again until this August. I think my doctor is unconcerned because it's been stable since 10/22/21. I think 5 cm makes it a concern regardless.

I just think my care has been kind of haphazard. No surgical consult. No scan for over a year and a half. I have all kinds of weird labs indicating some sort of autoimmune/autoinflammatory condition, not to mention the symptoms, the dry eye, the glaucoma/visual field defects, the skin condition, the hearing loss, my genetic results... I'm 55!!! And it just really goes on and on. I've started taking more regular pictures to document what is happening. The two top contenders absolutely intersect with vasculitis that might result in an aortic aneurysm. Can't get a BWH rheumatologist to take it seriously.

So I am going to take those two things elsewhere. Well, everything elsewhere, really. It's very frustrating and scary.