Intermittent fecal/sulfur breath odor

Posted by pbleonar @pbleonar, Jun 8, 2017

After scouring the web, I’m certain I’m not the only person with this problem, and not the only person who’s been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I’ve been to the dentist 10+ times– all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it’s practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I’ve had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I’m certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath– and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a “did someone just s*it themselves?” comment.

I guess what I’m getting at is I’m tired of doctors just saying it’s IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can’t take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.

Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.

Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.

*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It’s exactly the reason I felt there was more going on to everything than just SIBO and IBS.

I agree….I’ve told Multiple drs- internists, ENTs, dentists. Each one looks at me like I’m crazy. It’s embarrassing and frustrating!

REPLY
@ginjax28

Please try oil of oregano, grapefruit seed oil, zymex ll & make sure to take probiotic on empty stomach right before bed. I can't stress enough how much these could help you. If you see a functional med dr or natural path dr they probably really can help you.

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Hello. I was wondering if you can explain a little more why these supplements would help? I read about all of them independently but why this specific combo? Also which probiotic do you think is best? I was recently diagnosed with SIBO with halitosis issues for 10+years… currently finishing antibiotic regimen round 2 which does not seem to be helping. In the past, I have tried the products you mentioned but never together and never for more than about two weeks at a time. Thanks for your help.

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@pinkbird

I have this same exact problem. I've been told I smell like rotten eggs, sewage and poop. It is socially crippling. There are certain things that make it worse, for example, if I have an alcoholic drink, eat beans/hummus, bananas, chocolate, fried foods or drink lemon water and certain teas. I would say the alcoholic drinks are the worst for me – after 2 minutes of consuming a drink I emit the odor and it's just continuous from there (with several comments of "who farted").

Another odd thing is when I have a cold or sinus infection, the smell is absolutely horrendous….it fills a room and people can smell me from many feet away.

The crazy thing about all of this is that I can rarely smell it. There was a time when I went back in my car after being out of it for a couple of minutes and I smelled it then.

Some other info – my tongue is always a light white color with white chunks in the back. I've had a two candida tests (a swab from my tongue and one from a stool analysis), but they were negative.

I'm pretty sure this is related also – my thumbs and pointer nails have beaus lines (horizontal grooves). Recently had blood work done and I'm not deficient in anything. My doctors do not know what they are from (asked my regular doctor and dermatologist about them). Also, my hair became very thin and is always shedding.

Digestion related issues: I sometimes have heartburn and am constipated occasionally.

Some other background info – a year ago I was tested positive for SIBO and I was treated with Xifaxin for two weeks. The smell never went away. I believe I do have some sort of dysbiosis (maybe hydrogen sulfide dysbiosis), but I think it's a different bacteria than what was tested when I was tested for SIBO. The test results showed an increase towards the end of the test (which I have read can be a false positive).

My life is a nightmare because of this. It makes me depressed and literally not want to do anything. Going to work everyday or doing anything socially is a struggle. I'm on a mission to solve this. I'm going to order a stool analysis test and will hopefully gain some insight into what's going on. If I come across any answers or anything that helps, I promise I will post it here.

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Same problem here. I fill up an entire room with a rotten smell. It's been a daily nightmare. I always wish that I can just be away from everything and live alone…

I've had this rotten smell for years and have tried many things. I tried a lot of diets, herbs, medicines for digestive issues to no avail. think my sinus is congested so I've been to ENT's, dentists, oral surgeon many times but they say there's nothing wrong.

Anyway, I had a Sinus CT scan a few months ago and impacted teeth were found. The'ye in the front of my mouth so they're not wisdom teeth. The ENT and oral surgeon that saw the CT scan both said they're fine and nothing needs to be done. I'm desperate so I went to another dentist/oral surgeon to ask to have the impacted teeth extracted. This will be in a few weeks. It's been a daily nightmare for years that I'm willing to try anything.

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@dailysufferer

Same problem here. I fill up an entire room with a rotten smell. It's been a daily nightmare. I always wish that I can just be away from everything and live alone…

I've had this rotten smell for years and have tried many things. I tried a lot of diets, herbs, medicines for digestive issues to no avail. think my sinus is congested so I've been to ENT's, dentists, oral surgeon many times but they say there's nothing wrong.

Anyway, I had a Sinus CT scan a few months ago and impacted teeth were found. The'ye in the front of my mouth so they're not wisdom teeth. The ENT and oral surgeon that saw the CT scan both said they're fine and nothing needs to be done. I'm desperate so I went to another dentist/oral surgeon to ask to have the impacted teeth extracted. This will be in a few weeks. It's been a daily nightmare for years that I'm willing to try anything.

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Hi @dailysufferer – interesting that you mentioned your sinuses as a possible source. It reminds me of my husband’s very bad breath years ago. Same thing- it would fill a room, nauseating. He had no idea of this problem. I had to bring it up because I’m sure it was not different at work. He first went to see an ENT and was diagnosed with chronic sinusitis- he did not have many symptoms except for post nasal drip. He was put on antibiotics for 6 weeks and that smell has not returned.

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@astaingegerdm

Hi @dailysufferer – interesting that you mentioned your sinuses as a possible source. It reminds me of my husband’s very bad breath years ago. Same thing- it would fill a room, nauseating. He had no idea of this problem. I had to bring it up because I’m sure it was not different at work. He first went to see an ENT and was diagnosed with chronic sinusitis- he did not have many symptoms except for post nasal drip. He was put on antibiotics for 6 weeks and that smell has not returned.

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Hi @astaingegerdm. I've taken antibiotics too – several of them. For some of the antibiotics, they worked after a few days that I felt relieved but then the smell comes back and I'm back to my daily nightmare. Same with allergy meds.

Thanks for the info – hopefully it will help someone.

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@gethealthy1977

I appreciate all that you shared and have traveled a very similar path. In addition to exhausting all of the medical options presented to me (I will list them here in case any are of interest: multiple endoscopies (including one with a Bravo study to measure ph levels), colonoscopy, gastric emptying study, barium swallow test, multiple stool tests and lab work, and hydrogen/methane breath test), I also explored the holistic path (black walnut parasite cleanse, DGL, HCL, enzymes, ginger tea, grapefruit seed extract, and much more).

It seems we have found ourselves in a very similar place = our breath smells like poop.

Currently, I have become interested in studying SIBO caused from sulfur producing bacteria (the current test only measures hydrogen and methane) as well as focusing much more closely at specific dietary changes.

I know that meat exacerbates my issues (I can measure this by my kids saying things like "your breath smells like a rotten garbage")

To be clear, I have seen the dentist numerous times as well as an ENT, both pointed me back to the gut.

I am also an athlete (yoga 5x per week), lean body with an organic plant based diet with very little meat.

None of this is working and my GI is unsure of what to do next.

I also went to see multiple allergists and all of the results were negative.

What is interesting about these and related posts is that despite incredibly strong foul smelling breath (which is important evidence that something is wrong) no one has an answer.

Like many of you I now brush multiple times a day. So….how is it that 2 minutes after brushing and flossing others are smelling feces from one's mouth???

For me, all of this began in Costa Rica in 2006. After returning my gut was never the same. Bloating. Reflux. And for the last 5 years breath.

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I'm just joining this group and noticed your posts. As many have said, you are not alone. And, while I hate that you have to deal with this, I'm a bit relieved to know someone else is trying to sort out symptoms that seem incredibly similar to mine. To the best of my ability, my GI and funky breath issues began shortly before or after my arrival in Honduras in 2005, while serving in the military. Like you, I have had multiple tests and procedures with similar remarks like it must be your IBS, etc. My dentist couldn't find a reason, although I've had gum recession. This is likely due to over brushing in an attempt to remove the foul taste in my mouth. Within a few minutes of brushing my teeth, my mouth tastes like it never happened, to the point that I have absent-mindedly brushed again, Like you, I have wondered about parasites, especially given the location I was in. My labs come back negative. With the exception of occasional low blood glucose, everything seems "normal", which is exceedingly frustrating. I will update this post if I come across anything that may help. I wish you and others all the best as we try to figure out the reasons for this life-altering condition.

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my particular similar problem is greatly increased when consuming food and drinks containing sulfites (in their many forms) — wine, spirits, beer, proceszsed foods etc. At times even sulfur ladened foods cause the same issue. Try searching on CBS SOUX. Black tea which i believe is dried with sulfur? is a problem but green tea is fine (with me anyway). I need to verify the catalyst with a medical expert but it coud be a gene mutation matter go do with procesing sulfur. Possible gene mutation matter…

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@pbleonar2

I'm desperate because this is all tertiary care has given me so far. I understand them when they say dysbiosis is difficult. What they seem to dismiss is the idea that there is some 'thing' that's causing the dysbiosis. While I'm sure the guy I saw is content on insisting dysbiosis just magically appears sometimes, I am not. There's a reason for the problem. Your body's microbiome doesn't just go off kilter from isolated stressful incidents. Whether it's tropical sprue or some furtive parasitic organism, something is causing all of this.

Personally, I think it's just apathy among doctors. They face large volumes of patients and they don't have time to devote investigative work for diagnostic testing to arrive at a lucid conclusion. And I understand it. I get it. I work in a bureaucratic system myself. BUt I'm willing to pay funnel extra money into this for more serious inquiries from doctors and they're staunchly set on sticking with whatever idea they've inculcated in their head.

I'm tired of this and I'm tired of being told to live with it. I guarantee if they had the same problem and had to stick with the same strict diet day in and day out, they certainly wouldn't be so damned smug with their closed-minded conclusion. I get the microbiome is a complex system, but it DOESN'T just go off and do it's own thing permanently without something else affecting it. Parasitic infection, hypochlorohydria, tropical sprue, and many other things can impact the microbiome– and if they're not addressed the problem never goes away.

So again, I'm begging this organization to address the topic, and if they can't come up with something cogent and collected to answer it with, send us someone outside the clinic that can address it and start recommending more detailed testing. This has been a 7 year nightmare, and it's absolutely ridiculous how many doctors are quick to dismiss this. And if I raise my voice during the interview when they start being dismissive, then I"M the problem.

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I suffer the same issues and its awful!.. i dont know how i do it but its very embarrassing and as i read these comments couldnt help to laugh because it really fing sucks… i experience it every day after eating meats, dairy, certain veggies i havent had the discipline to figure out. I drink alot of water and trying to reduce sugar intake, now trying to avoid anything with corn. I read somewhere to avoid anything that can ferment. Also bacteria from the lower intestine has migrated to the stomach and esophagus causing early breakdown and sulfur breath or poop breath. Please let me know if you have looked into this and how your current treatments are going..

REPLY
@gethealthy1977

I appreciate all that you shared and have traveled a very similar path. In addition to exhausting all of the medical options presented to me (I will list them here in case any are of interest: multiple endoscopies (including one with a Bravo study to measure ph levels), colonoscopy, gastric emptying study, barium swallow test, multiple stool tests and lab work, and hydrogen/methane breath test), I also explored the holistic path (black walnut parasite cleanse, DGL, HCL, enzymes, ginger tea, grapefruit seed extract, and much more).

It seems we have found ourselves in a very similar place = our breath smells like poop.

Currently, I have become interested in studying SIBO caused from sulfur producing bacteria (the current test only measures hydrogen and methane) as well as focusing much more closely at specific dietary changes.

I know that meat exacerbates my issues (I can measure this by my kids saying things like "your breath smells like a rotten garbage")

To be clear, I have seen the dentist numerous times as well as an ENT, both pointed me back to the gut.

I am also an athlete (yoga 5x per week), lean body with an organic plant based diet with very little meat.

None of this is working and my GI is unsure of what to do next.

I also went to see multiple allergists and all of the results were negative.

What is interesting about these and related posts is that despite incredibly strong foul smelling breath (which is important evidence that something is wrong) no one has an answer.

Like many of you I now brush multiple times a day. So….how is it that 2 minutes after brushing and flossing others are smelling feces from one's mouth???

For me, all of this began in Costa Rica in 2006. After returning my gut was never the same. Bloating. Reflux. And for the last 5 years breath.

Jump to this post

I am experiencing the exact same problems. For about 8 years now. I just went to the dentist a month ago. Nothing there is causing it. My dentist said there are three things that causes bad breath. Gums, nasal or stomach. The ent found nothing. Actually I have been to several ent doctors. Also several dentist. I’ve had several CT scans with contrast. They found nothing. I recently visits doctor who ordered blood test for amalayse. (I hope I spelled it correctly) It’s an enzyme that is made by both the pancreas and salivary glands. There is something about my saliva that I just can’t seem to figure out. It seems this is where the problem is. After finding out about the elevated enzyme she ordered an ultrasound of my abdomen. The results showed a dialated pancreatic duct in the distal portion. And a fatty liver. The doctor said it comes from eating too many carbs. My body does not seem to digest carbs and sugar. I am waiting on a CT scan . My insurance company denied it. So my PCP is sending me to a Gastroenterologist. Hopefully they will approve it. From what I have read on google. A dilated duct could be a tumor. Also high risk for cancer. When the duct is blocked the digestive enzymes are not released. I have always said my food is not digesting properly because can smell everything eat. My poop smells very bad. The smell is also coming through my nose. I know for sure it is in my nose and throat. My breath can fill up a room. It has a fecal/sour smell. I’m not sure if it is coming from my body. I have heard vitamin b2 may help. It is Riboflavin. I will keep everyone posted. I will have a phone conference on April 23 due to coronavirus. I hope to have the scan as soon as all this is over. My doctor just got my results from the sibo test. I hope to get those this week. Good luck.

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Welcome new members, @basienka88 @dailysufferer @marci1117 @johnboade and @newports10. Such a frustrating unsolved issue. I'm sure most of you have googled the issue and the articles like this one provide nothing you haven't investigated. But just in case, allow me to post it here:
– Feces Odor on Breath: What It Means and What You Can Do https://www.healthline.com/health/breath-smells-like-poop

@catt8722 the article seems to verify what your doctor told you that bad breath comes from either gums, sinus/nasal passages or the GI tract/stomach. Here is additional information about amylase testing https://labtestsonline.org/tests/amylase

Thank you for keeping the group posted about your upcoming teleconsult appointment with the gastroenterologist. It sounds like the bad breath and your persistence in finding answers may help to solve a hidden issue with the pancreas. Telemedicine is becoming the norm these days. You may appreciate these tips from fellow members on how to make the most of your phone consult.

– Telemedicine: How to make the most of a virtual doctor visit https://connect.mayoclinic.org/discussion/covid-19-telemedicine-its-a-brave-new-world/

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@newports10

I suffer the same issues and its awful!.. i dont know how i do it but its very embarrassing and as i read these comments couldnt help to laugh because it really fing sucks… i experience it every day after eating meats, dairy, certain veggies i havent had the discipline to figure out. I drink alot of water and trying to reduce sugar intake, now trying to avoid anything with corn. I read somewhere to avoid anything that can ferment. Also bacteria from the lower intestine has migrated to the stomach and esophagus causing early breakdown and sulfur breath or poop breath. Please let me know if you have looked into this and how your current treatments are going..

Jump to this post

Please keep us informed. Just in case you still have your tonsils, bacteria, food etc. may accumulate in tonsil crypts creating “tonsil stones” that have a foul smell. Dr. Harold Katz (Los Angeles, CA) has a website and a line of products (There Breadth). I use a dropper to extract them, use water pick to rinse the tonsils or gargle with diluted mouth wash (Listerine).

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My similar issue is brought on by consuming the range of sulfite preservatives in processed foods, wine, prosessed meats beer, etc — they are everywhere. Sulfur ladened foods at times can initiate the problem like eggs and spinach cabbage etc but these foods are essential like sulfur intake so you would need expert medical advice there. B12 and B6 I take and molibedenum (spelling?) are handy — try searching on CBS and Suox to do with sulfur pathways and genetic issues that may cause sufur processing problems. Even spirits like gin, whiskey etc can be problematic like casks are sterilized with sulfur before storage — aged spirits are not so bad? as the sulfur content might reduce over time. Another example is black tea brings on the problem (i believe is dried with sulfur?) where green tea is fine. Maybe the incorrectly processed sulfur in my bloodstream is expelled in my breath. I find Kambocha helps so could be related to bad gut bacteria matters… I am certainly no medical expert but have found reducing sulfite intake greatly helps in my particlar case. Best to everyone, JB

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@catt8722

I am experiencing the exact same problems. For about 8 years now. I just went to the dentist a month ago. Nothing there is causing it. My dentist said there are three things that causes bad breath. Gums, nasal or stomach. The ent found nothing. Actually I have been to several ent doctors. Also several dentist. I’ve had several CT scans with contrast. They found nothing. I recently visits doctor who ordered blood test for amalayse. (I hope I spelled it correctly) It’s an enzyme that is made by both the pancreas and salivary glands. There is something about my saliva that I just can’t seem to figure out. It seems this is where the problem is. After finding out about the elevated enzyme she ordered an ultrasound of my abdomen. The results showed a dialated pancreatic duct in the distal portion. And a fatty liver. The doctor said it comes from eating too many carbs. My body does not seem to digest carbs and sugar. I am waiting on a CT scan . My insurance company denied it. So my PCP is sending me to a Gastroenterologist. Hopefully they will approve it. From what I have read on google. A dilated duct could be a tumor. Also high risk for cancer. When the duct is blocked the digestive enzymes are not released. I have always said my food is not digesting properly because can smell everything eat. My poop smells very bad. The smell is also coming through my nose. I know for sure it is in my nose and throat. My breath can fill up a room. It has a fecal/sour smell. I’m not sure if it is coming from my body. I have heard vitamin b2 may help. It is Riboflavin. I will keep everyone posted. I will have a phone conference on April 23 due to coronavirus. I hope to have the scan as soon as all this is over. My doctor just got my results from the sibo test. I hope to get those this week. Good luck.

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it seems we all have been diagnosed with SIBO. We are all experiencing the same symptoms. Sulfur smell, bad breath (some fecal). Odor coming out of lungs and nose. Odor can fill a whole room.We all have similar trigger foods like sugar, grains, carbs, eggs, cabbage, fruit like bananas. COVID-19 has been a blessing in disguise. Being quarantined I don't have to worry about people saying what's that smell. I can eat what I want and not worry about it. Fortunately, I have the ability to work from home. I'm still searching for a cure. I will have to return to the real world eventually, then what? Starve myself all day and not eat, because food triggers a smell. I just wish the medical community would listen and understand it's not in our heads, too many of us have the same symptoms.

Liked by cj123

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@smelly1

it seems we all have been diagnosed with SIBO. We are all experiencing the same symptoms. Sulfur smell, bad breath (some fecal). Odor coming out of lungs and nose. Odor can fill a whole room.We all have similar trigger foods like sugar, grains, carbs, eggs, cabbage, fruit like bananas. COVID-19 has been a blessing in disguise. Being quarantined I don't have to worry about people saying what's that smell. I can eat what I want and not worry about it. Fortunately, I have the ability to work from home. I'm still searching for a cure. I will have to return to the real world eventually, then what? Starve myself all day and not eat, because food triggers a smell. I just wish the medical community would listen and understand it's not in our heads, too many of us have the same symptoms.

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Hi, as above, my triggers are sulfite preservatives in lots of foods and drink — wine beer dried fruit bottled lemon juice apple cider …etc, etc at times sulfur ladened foods can cause the issue — in my particular case. Definately had SIBO in the past.

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Still around, still have sulfur bomb breaths. With social distancing, I haven't experienced the usual reactions from people. It was a good 3 months in that sense. But I was in a shop yesterday and a sulfur burning odor filled my mask. So a stark reminder that this problem is still around. A part of me wants social distancing and mask-wearing to go on indefinitely.

I have low level acid reflux and sinusitis. Nothing I have done or medication I have taken for these two conditions has ever had any affect on the sulfur bomb breaths.

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