Intermittent fecal/sulfur breath odor
After scouring the web, I'm certain I'm not the only person with this problem, and not the only person who's been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I've been to the dentist 10+ times-- all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it's practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I've had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I'm certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath-- and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a "did someone just s*it themselves?" comment.
I guess what I'm getting at is I'm tired of doctors just saying it's IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can't take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.
Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.
Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.
*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It's exactly the reason I felt there was more going on to everything than just SIBO and IBS.
Interested in more discussions like this? Go to the Digestive Health Support Group.
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@jlharsh Thank you so much for responding and the information. I will definitely watch the video and let you know what I think. Yes I would like like to find a doctor who’s willing to help me resolve the issue. I honestly think about suicide because of this. I can’t take it anymore.
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4 Reactions@noble77 Thank you for your honesty.
While I haven’t considered suicide, I have most definitely had times that I thought that death would be better than where I was.
Are you able, willing to share with me the biggest thing that is making you emotionally, mentally feeling this way? Do you have someone, maybe family or friend you can talk to?
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3 Reactions@laceys63
@mrshealth1 - I believe the rest of your message to @laceys63 beyond the username did not get posted. Would you kindly try posting it again?
There may be some insight here.
https://en.wikipedia.org/wiki/Bad_breath
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1 Reaction@jojododo hi apologies for the delayed response!
Overall this last year was more positive but not sure if that was due to my life being so busy with work/family, I didn't give myself the chance for it to consume my every second thought...
Like @lowhp I consciously I became stricter with my oral hygiene (it was already good) which my dentist agreed. However, annoyingly I have a wisdom tooth that needs removing which is causing nerve pain and smell due to its position so this doesn't help with my concern of my breath smell. It does keep me extra diligent so it's a double edge sword.
I've kept my diet relatively the same but introduced more gut friendly foods & fibre where possible.
I'd say when I had really bad flare ups it was due to me eating bad or drinking excessive alcohol but I wasn't surprised by the outcome as I knew it would cause some sort of reaction ( I would be on holiday and wanted to enjoy myself).
My advice for you would be
1. Try not to stress, stress makes everything worse! (Easier said than done but once you start being present in the moment everything becomes a bit more enjoyable).
2. Bring a portable toothbrush, toothpaste, floss, mouthwash alcohol free that you can use to freshen up during the work day.
3. Drink plenty of water, with a good PH level.
4. Have a mini spray perfume/aftershave (body spray) and use throughout the day, this will change the narrative & have people compliment you on always smelling like a positive thing rather than focus on the negative.
I hope to have a more settled year where I can investigate this thoroughly with examinations etc, so will keep you posted 🙂