Intermittent fecal/sulfur breath odor

Posted by pbleonar @pbleonar, Jun 8, 2017

After scouring the web, I’m certain I’m not the only person with this problem, and not the only person who’s been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I’ve been to the dentist 10+ times– all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it’s practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I’ve had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I’m certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath– and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a “did someone just s*it themselves?” comment.

I guess what I’m getting at is I’m tired of doctors just saying it’s IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can’t take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.

Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.

Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.

*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It’s exactly the reason I felt there was more going on to everything than just SIBO and IBS.

I have been having some good results for IBS-D (to the point of developing a rectal preolapse) from pancreatic digestive enzymes, available over the counter.

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I’m sorry I got called away when posting my brief reply to the post about the intermittent fecal-sulfur breath odor. I’m sorry you are having this problem. All I can say is to keep searching for an answer. It’s not easy, I know.

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@traveling

I’m sorry I got called away when posting my brief reply to the post about the intermittent fecal-sulfur breath odor. I’m sorry you are having this problem. All I can say is to keep searching for an answer. It’s not easy, I know.

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Another thought: Have you tried probiotics? I’ve had the best results with about one tablespoon of sauerkraut, include the liquid, with my supper (I don’t use it daily). If the Nitazoxanide worked, doesn’t that indicate a parasite? How is that line of investigating going?

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Yea, Most everything under the sun has been tried, including probiotics and enzymes (pancreatic too).

And that’s what I thought, regarding the nitazoxanide, but the parasite tests– so far– have come up negative. That and I had to properly motivate the doctor to take that seriously and test for them. This is the same doctor who wouldn’t take the parasite thing seriously after telling her I worked in a sewer as punishment for a couple weeks and that the water supply for the dorms frequently came out different colors at least once a month, and I, like an idiot drank from it on a semi regular basis. With a straight face, she asked me how I knew the water supply at my old base was contaminated if the base never sent us an informative letter. Apparently she has faith in the government being 100% honest with its armed forces and the public in general

Anyway, one more parasite test will be completed, fecal and blood work, some time next week, and then that’ll be crossed off the list. If so, I need one great specialist to take this up and start investigating. There are many others out there having the same problem and if someone could help dx and treat the issue for good, I guarantee they’d have a large group of people travelling from around the country to seek the same help.

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@pbleonar

Yea, Most everything under the sun has been tried, including probiotics and enzymes (pancreatic too).

And that’s what I thought, regarding the nitazoxanide, but the parasite tests– so far– have come up negative. That and I had to properly motivate the doctor to take that seriously and test for them. This is the same doctor who wouldn’t take the parasite thing seriously after telling her I worked in a sewer as punishment for a couple weeks and that the water supply for the dorms frequently came out different colors at least once a month, and I, like an idiot drank from it on a semi regular basis. With a straight face, she asked me how I knew the water supply at my old base was contaminated if the base never sent us an informative letter. Apparently she has faith in the government being 100% honest with its armed forces and the public in general

Anyway, one more parasite test will be completed, fecal and blood work, some time next week, and then that’ll be crossed off the list. If so, I need one great specialist to take this up and start investigating. There are many others out there having the same problem and if someone could help dx and treat the issue for good, I guarantee they’d have a large group of people travelling from around the country to seek the same help.

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Thanks for your detailed answer. I agree that we need one great specialist to take up these matters up and investigate. I am 87 and live in British Columbia, Canada, where our health care dollar is being stretched to shreds. Seeing you the very best wishes. Be sure to let us know how you fare.

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Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

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@kanaazpereira

Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

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I’d very much like a second opinion, but wouldn’t I have to travel  there? I live in Canada and am 87.<br class=""><br class="">

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@kanaazpereira

Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

Jump to this post

Thank you for the Nitazoxanide link. It was helpful. And after perusing through the discussion pages, it’s all the same as the rest of the internet– plebs pooling their ignorance and buying into homeopathic methods that I’ve personally tried, and all amount to snake poison. I’ve already hit the point where hitting up the microbiology department at ASU for more answers has become a new hobby. There is nothing mechanically wrong with my body from the countless blood work and physical tests done, so I’ve narrowed this issue down to being a viral, bacterial, parasitic or fungal in nature.

I can go to the one in AZ if they have great GI physicians– or physicians who can coordinate information with thee Minnesota staff. Is that possible.

Anyway, thanks for your help. As frustrated as I am, I really appreciate it.

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Hi @pbleonar and @traveling,

If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
The phone number for Mayo Clinic in Arizona is 800-446-2279 (toll-free).

@traveling, International patients can request an appointment at any Mayo Clinic location with this online form http://mayocl.in/2r8j5Cw.
A representative from one of Mayo’s international appointment offices will respond to your request within three business days.
The Clinic offers additional appointment assistance through an experienced local contact; here are some service numbers for Canada:

Calgary area residents: 403-242-5320
Thunder Bay area residents: 807-346-2218
Winnipeg area residents: 204-942-0659

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Hi @pbleonar ,

I also suffer with the same symptoms, have done countless test with no outcome to source the root of the issue.

Have you had any progress? If so what?

Your not alone in this and you are strong living with this condition (I have to keep reminding myself this!)

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I appreciate all that you shared and have traveled a very similar path. In addition to exhausting all of the medical options presented to me (I will list them here in case any are of interest: multiple endoscopies (including one with a Bravo study to measure ph levels), colonoscopy, gastric emptying study, barium swallow test, multiple stool tests and lab work, and hydrogen/methane breath test), I also explored the holistic path (black walnut parasite cleanse, DGL, HCL, enzymes, ginger tea, grapefruit seed extract, and much more).

It seems we have found ourselves in a very similar place = our breath smells like poop.

Currently, I have become interested in studying SIBO caused from sulfur producing bacteria (the current test only measures hydrogen and methane) as well as focusing much more closely at specific dietary changes.

I know that meat exacerbates my issues (I can measure this by my kids saying things like "your breath smells like a rotten garbage")

To be clear, I have seen the dentist numerous times as well as an ENT, both pointed me back to the gut.

I am also an athlete (yoga 5x per week), lean body with an organic plant based diet with very little meat.

None of this is working and my GI is unsure of what to do next.

I also went to see multiple allergists and all of the results were negative.

What is interesting about these and related posts is that despite incredibly strong foul smelling breath (which is important evidence that something is wrong) no one has an answer.

Like many of you I now brush multiple times a day. So….how is it that 2 minutes after brushing and flossing others are smelling feces from one's mouth???

For me, all of this began in Costa Rica in 2006. After returning my gut was never the same. Bloating. Reflux. And for the last 5 years breath.

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Welcome to Connect, @gethealthy1977. I completely understand how frustrating and uncomfortable your symptoms must make you feel. The causes of halitosis (bad or odorous breath) can both be intraoral (from the oral cavity itself), or extra oral (may include various systemic diseases and use of certain medications). https://www.mayoclinic.org/diseases-conditions/bad-breath/symptoms-causes/syc-20350922

Recent evidence from research suggests that a better strategy to overcome bad breath/sulfurous odor may be more about nurturing helpful bacteria in the mouth than about destroying germs and their by-products.

– Knockout mice help find gene for bad breath https://www.sciencedaily.com/releases/2017/12/171219133617.htm
– Halitosis: Current concepts on etiology, diagnosis and management https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4813452/

Are you concerned that you may have eaten something or picked up some bacteria from your trip to Costa Rica?

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Thank you for responding.

I'm in the middle of watching True Detective season three where the main character is investigating the same crime at the time it occurred, a decade later and then years beyond as an elderly man struggling with memory.

I was afflicted with "something" in Costa Rica over a decade ago and have been investigating ever since. It was likely from something I ate, but no test could determine that.

Tonight a friend shared nearly identical symptoms that his sister suffered in 2007 after leaving Costa Rica (we each lost about 40 pounds as we were too bloated to eat, though she lost a considerably higher percentage). His sister now carries a tupperware of food wherever she goes due to great food sensitivity. I also struggle.

While others on this message board may not have been assaulted with such an aggressive bacteria/parasite/??? we may all now be suffering very similar forms of gut dysbiosis.

I take no medication, am in great shape and have been cleared from the dentist and ENT. I am assuming this is dysbiosis and that some foods have either greater amounts of sulfur which release into my breath or there are an abundance of sulfur smelling bacteria in the gut.

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I know this sounds simple but it's worth a try and not expensive or difficult. I had a similar issue and I did a lot of research to solve the problem. One thing I discovered is that volatile sulfur compounds (VSC) that make the breath smell bad can be bound by divalent cations through their interaction with sulfur. When the VSC are bound by divalent cations they precipitate and are removed from the body in the urine. Divalent cations are minerals like calcium, magnesium and zinc. My problem started when I began jogging. It struck me that my bones might have constituted a strong drain on my intake of divalent cations as a result of the bone building that must accompany the impact on the bones from running. Bones have a high concentration of divalent cations. I tried taking a calcium, magnesium, zinc supplement 3x a day with vitamin D to help absorb the minerals and I think this helped a lot. I also cut way down on sugary foods, dairy and meat as these foods seem to exacerbate it. As I said, these minerals are cheap and worth a try. I hope this helps.

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Hi there,
And 1st off I am so sorry that you have been experiencing these horrible symptoms. I to have had really unusual symptoms w/ more that just digestion & bad breath. My face swelled up 3 times the size it was normally, burning tongue & feet, neuro problems & many other strange symptoms that I won't mention as the list goes on & on. I was a mess & all the different doctors I saw thought I was crazy. I was tested for all kinds of bacteria, fungus, parasites, etc. & nothing showed up as a red flag. I thought I was going to die – really, but I was not giving up. My neuro dr. sent me to National Jewish Hospital where my C Reactive protien levels were thru the roof & RA blood work off the charts. I did not get on the meds they wanted me on as I opted to go the natural routeI with a natural path Dr. and was put on Oil of Oregano & Grapefruit Seed Oil, SamE, & Magnesium. Turns out that I am now 80% better & all this may have been caused by candidia overgroth in my intestins & sinuses. My point is you need to fig=ht hard for your health & sometimes you have to try alternative route. Please see a natural pathic dr. Or maybe go to a health store & try the Oil of Oregano & Grapefruit seed Oil. They killed off some nasty stuff in me that NO test showed results for. Good luck to you & God bless you too.

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