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pbleonar
@pbleonar

Posts: 5
Joined: Jun 08, 2017

Intermittent fecal/sulfur breath odor

Posted by @pbleonar, Jun 8, 2017

After scouring the web, I’m certain I’m not the only person with this problem, and not the only person who’s been told they were imagining it. Anyway, the issue is I have intermittent odors when I talk (yes, I’ve been to the dentist 10+ times– all say my oral hygiene is on point and xrays and inspections showed nothing). The only time it’s practically non-existent is when I eat an unhealthily low-carb diet. Like others online, I’ve had CT scans, Barium swallows, endosocopy/colonoscopy, screening for parasites (getting one more from an IDS before crossing that off my list). All showed up negative. I tested positive for SIBO, but after researching that for the past 3 years, I’m certain SIBO is more of a symptom than a primary causal problem. Furthermore, even when I treated SIBO with heavy antibiotics, it did absolutely nothing for my breath– and yes I was cleared of SIBO after a couple rounds of work. yet, the moment I eat carbs, I still get a “did someone just s*it themselves?” comment.

I guess what I’m getting at is I’m tired of doctors just saying it’s IBS and SIBO and then proceeding to do zero investigating afterwards. I want to get down to the root cause of this, but most doctors are either too apathetic or too incompetent to do anything. Are there any researchers who specialize in studying and diagnosing hard to find problems in the GI tract? Between the 3 GI docs, 2 ENTs, 2 NDs and 1 IDS, I just can’t take normal doctors anymore. I want my life back and I want a specific root cause so I can work on progressing from there.

Further notes: Diarrhea actually cleared up when I ate junk food and I had zero bloating, albeit the odor remained.

Xifaxan and neomycin did nothing for the odor, nor did the elemental diet. I actually think the elemental diet made the smell as bad or
worse than before.

*******Nitazoxanide********** worked wonders for the month I was on it. Solid stools even with foods that normally cause my ibs to flare up.
It’s exactly the reason I felt there was more going on to everything than just SIBO and IBS.

REPLY

I have been having some good results for IBS-D (to the point of developing a rectal preolapse) from pancreatic digestive enzymes, available over the counter.

I’m sorry I got called away when posting my brief reply to the post about the intermittent fecal-sulfur breath odor. I’m sorry you are having this problem. All I can say is to keep searching for an answer. It’s not easy, I know.

@traveling

I’m sorry I got called away when posting my brief reply to the post about the intermittent fecal-sulfur breath odor. I’m sorry you are having this problem. All I can say is to keep searching for an answer. It’s not easy, I know.

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Another thought: Have you tried probiotics? I’ve had the best results with about one tablespoon of sauerkraut, include the liquid, with my supper (I don’t use it daily). If the Nitazoxanide worked, doesn’t that indicate a parasite? How is that line of investigating going?

Yea, Most everything under the sun has been tried, including probiotics and enzymes (pancreatic too).

And that’s what I thought, regarding the nitazoxanide, but the parasite tests– so far– have come up negative. That and I had to properly motivate the doctor to take that seriously and test for them. This is the same doctor who wouldn’t take the parasite thing seriously after telling her I worked in a sewer as punishment for a couple weeks and that the water supply for the dorms frequently came out different colors at least once a month, and I, like an idiot drank from it on a semi regular basis. With a straight face, she asked me how I knew the water supply at my old base was contaminated if the base never sent us an informative letter. Apparently she has faith in the government being 100% honest with its armed forces and the public in general

Anyway, one more parasite test will be completed, fecal and blood work, some time next week, and then that’ll be crossed off the list. If so, I need one great specialist to take this up and start investigating. There are many others out there having the same problem and if someone could help dx and treat the issue for good, I guarantee they’d have a large group of people travelling from around the country to seek the same help.

@pbleonar

Yea, Most everything under the sun has been tried, including probiotics and enzymes (pancreatic too).

And that’s what I thought, regarding the nitazoxanide, but the parasite tests– so far– have come up negative. That and I had to properly motivate the doctor to take that seriously and test for them. This is the same doctor who wouldn’t take the parasite thing seriously after telling her I worked in a sewer as punishment for a couple weeks and that the water supply for the dorms frequently came out different colors at least once a month, and I, like an idiot drank from it on a semi regular basis. With a straight face, she asked me how I knew the water supply at my old base was contaminated if the base never sent us an informative letter. Apparently she has faith in the government being 100% honest with its armed forces and the public in general

Anyway, one more parasite test will be completed, fecal and blood work, some time next week, and then that’ll be crossed off the list. If so, I need one great specialist to take this up and start investigating. There are many others out there having the same problem and if someone could help dx and treat the issue for good, I guarantee they’d have a large group of people travelling from around the country to seek the same help.

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Thanks for your detailed answer. I agree that we need one great specialist to take up these matters up and investigate. I am 87 and live in British Columbia, Canada, where our health care dollar is being stretched to shreds. Seeing you the very best wishes. Be sure to let us know how you fare.

Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

@kanaazpereira

Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

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I’d very much like a second opinion, but wouldn’t I have to travel  there? I live in Canada and am 87.<br class=""><br class="">

@kanaazpereira

Hello @pbleonar and @traveling,

We’re so glad that you’ve joined Connect; I’m certain that this insightful discussion will prove helpful to other members on Connect who share similar symptoms.

We have a few conversations on breath odor, which might interest you:
Halitosis: http://mayocl.in/2r6gA3B
Unknown Body Odor: http://mayocl.in/2r6tjmV
Halitosis: http://mayocl.in/2spB77e

I hope that @cbs61752 @mouser @bettyann @katzee @kinde @margareto @uggbug24 @deprest @vanz and you are able to connect on your experiences.

As for the Nitazoxanide (Alinia), here is some detailed information from Mayo Clinic: http://mayocl.in/2rY447x

@pbleonar, @traveling, Mayo Clinic in Minnesota has been recognized as the best Gastroenterology & GI Surgery hospital in the nation for 2016-2017 by U.S. News & World Report; have you considered getting an opinion from there?

Jump to this post

Thank you for the Nitazoxanide link. It was helpful. And after perusing through the discussion pages, it’s all the same as the rest of the internet– plebs pooling their ignorance and buying into homeopathic methods that I’ve personally tried, and all amount to snake poison. I’ve already hit the point where hitting up the microbiology department at ASU for more answers has become a new hobby. There is nothing mechanically wrong with my body from the countless blood work and physical tests done, so I’ve narrowed this issue down to being a viral, bacterial, parasitic or fungal in nature.

I can go to the one in AZ if they have great GI physicians– or physicians who can coordinate information with thee Minnesota staff. Is that possible.

Anyway, thanks for your help. As frustrated as I am, I really appreciate it.

Hi @pbleonar and @traveling,

If you would like to seek help from Mayo Clinic, please call one of our appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.
The phone number for Mayo Clinic in Arizona is 800-446-2279 (toll-free).

@traveling, International patients can request an appointment at any Mayo Clinic location with this online form http://mayocl.in/2r8j5Cw.
A representative from one of Mayo’s international appointment offices will respond to your request within three business days.
The Clinic offers additional appointment assistance through an experienced local contact; here are some service numbers for Canada:

Calgary area residents: 403-242-5320
Thunder Bay area residents: 807-346-2218
Winnipeg area residents: 204-942-0659

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