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Mentor

Immunotherapy Scheduling

Posted by Susan, Volunteer Mentor @grammato3, Dec 5, 2024

I am totally new to Keytruda infusions, having only had one a week ago. I was under the impression I'd be routinely scheduled for these infusions every three weeks - on the same day of the week - but to date I've not gotten any information about my next one which ought to be in two weeks on a Wednesday. I've called scheduling twice but have not yet received notification. Is it common to not get notification of the date/time until a few days beforehand?

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jaxthecat | @jaxthecat | 4 days ago
In reply to @grammato3 "@jaxthecat I had also been going every 6 weeks w/o any incident after the inital few..." + (show)
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@jaxthecat I had also been going every 6 weeks w/o any incident after the inital few treatments at 3 weeks. My treatment has been on hold since Sept when I experienced some significant GI issues that may or may not be Keytruda related - I'm having another GI biopsy next week to try to determine if Keytruda played a role - so when I meet with my oncologist on the 22nd I'll see if I can resume immonotherapy and if so, if I go back to every 3 weeks or maintain the 6.

Glad the 3 week schedule is working out for you. Are you anticipating a 2 year treatment plan?

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@grammato3. yes, if the PET scans every 3_4 months say clear, they tell me 1 1/2 to maybe 2 years of Keytruda. This is due to my melonoma being grade 3C.

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jaxthecat | @jaxthecat | 1 day ago
In reply to @grammato3 "@jaxthecat I had also been going every 6 weeks w/o any incident after the inital few..." + (show)
Profile picture for Susan, Volunteer Mentor @grammato3

@jaxthecat I had also been going every 6 weeks w/o any incident after the inital few treatments at 3 weeks. My treatment has been on hold since Sept when I experienced some significant GI issues that may or may not be Keytruda related - I'm having another GI biopsy next week to try to determine if Keytruda played a role - so when I meet with my oncologist on the 22nd I'll see if I can resume immonotherapy and if so, if I go back to every 3 weeks or maintain the 6.

Glad the 3 week schedule is working out for you. Are you anticipating a 2 year treatment plan?

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@grammato3
Yes, they anticipate 1 1/2 to 2 years of immonutherapy as long as the PET scans remain clear.
Keep us posted on your biopsy!

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jaxthecat | @jaxthecat | 1 day ago
In reply to @grammato3 "@jaxthecat How have those five months been, any fatigue or other issues that you've experienced or..." + (show)
Profile picture for Susan, Volunteer Mentor @grammato3

@jaxthecat How have those five months been, any fatigue or other issues that you've experienced or care to share?

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@grammato3
Fatigue was more after the first and second infusions. I feel so fortunate to not have experienced a rash, diarrhea, or not keeping food down.

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