1. < Cancer

Immunotherapy Scheduling

Posted by grammato3 @grammato3, 6 days ago

I am totally new to Keytruda infusions, having only had one a week ago. I was under the impression I'd be routinely scheduled for these infusions every three weeks - on the same day of the week - but to date I've not gotten any information about my next one which ought to be in two weeks on a Wednesday. I've called scheduling twice but have not yet received notification. Is it common to not get notification of the date/time until a few days beforehand?

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isadora2021 | @isadora2021 | 5 days ago
In reply to @dbamos1945 "@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why..." + (show)
@dbamos1945

@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why me” & as time goes by I feel the situations that occur and how I react to them is what really matters. Acting with gratitude, new insight and approach each challenge with courage and persistence; I believe this is our gift as cancer patients. Not one of us makes it out of here alive, but while we are here we can learn to be the best advocate and better human.
I want to be stronger than ever.
Best every day to you! Bette

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@dbamos1945 Appendix cancer is very rare. Maybe that’s why I’ve never asked, why me. Why not me. I’ve never been angry either. It is what it is. So very grateful to be here still, for as long as I can be. My stage 4 isn’t curable. It sure gives a different perspective on so many things. Indeed. We all walk our paths. All the best to you too.

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grammato3 | @grammato3 | 5 days ago
In reply to @isadora2021 "@dbamos1945 So very true. My oncology team set up my infusion programme with the infusion centre,..." + (show)
@isadora2021

@dbamos1945 So very true. My oncology team set up my infusion programme with the infusion centre, and I always had an advance programme. Now that I’ve finished treatment I’m doing quarterly surveillance scanning. I often have to chase up my oncologist’s admin team to sort out the scans with the provider. The provider can’t book me in until they get the paperwork from my oncologist’s office. It’s very annoying how often the admin team drop the ball. I’ve learnt not to think they’ve got it in hand, and now assume they don’t!! I chase. It’s my life at risk.

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I've learned that now, too! And great for you for completing treatment!!
BTW, I replied to a former post of yours about puppies -- I'm a momma to two labradoodles.

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gordy6898p | @gordy6898p | 4 days ago
In reply to @dbamos1945 "@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why..." + (show)
@dbamos1945

@isadora2021: I’ve been on this cancer road for 3yrs too! Perhaps we all have wondered “why me” & as time goes by I feel the situations that occur and how I react to them is what really matters. Acting with gratitude, new insight and approach each challenge with courage and persistence; I believe this is our gift as cancer patients. Not one of us makes it out of here alive, but while we are here we can learn to be the best advocate and better human.
I want to be stronger than ever.
Best every day to you! Bette

Jump to this post

Great attitude! Several months ago I started chemotherapy for small-cell bladder cancer (Stage 3), after which I had surgery to remove my bladder, prostate, and adjacent lymph nodes, and a urinary stoma created. I'm now on my 5th session for infusion of immunotherapy. I find it helps to keep up to date on information related to all aspects of this disease by referring to websites sponsored by clinics such Mayo, Cleveland, etc.

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