I’m a caregiver who has just been diagnosed with bone marrow cancer

Hello @nrdl2879 My goodness, when it rains it pours. You certainly didn’t need to add more to your stress level. It is encouraging that your husband is doing well on the experimental drug for his lung cancer.
However, now you have been diagnosed with a bone marrow cancer. If it’s any consolation, I had a very aggressive bone marrow cancer 6 years ago and in full remission. There may be different treatment options available depending the type of cancer you have.
It would be helpful if you could tell me a little more about your diagnosis. I had AML, which is a form of leukemia. There are countless members here who have had varying types of blood cancers and conditions and I’d like to connect you with the right group! It can really take the loneliness out of a diagnosis to be able to talk with someone who understands what you’re going through.
Do you have a firm diagnosis? What is the medication you’re taking for treatment?

I have myelodysplastic syndrome ( MDS). I will be starting on Lenalidomide hopefully next week. Caught it early

Good morning, @nrdl2879 I hope you’re having a pleasant day so far. I’m relieved that the oppressive heat seems to have moved on from my neck of the woods. But we are under heavy smoke from wild fires so there won’t be any outside activities today! Yikes.

It’s good to see that your doctor discovered the MDS early so that you can start treatment. Connect has several discussions with members who also have MDS. Just so you are aware, there are different types of MDS, some being a little more troublesome than others. So some of the conversations you read through may not be relevant to your condition. But it can be helpful to be able to talk with others who know what you’re going through.

A good place for you to start might be this discussion: Living with MDS with @momz and others… https://connect.mayoclinic.org/discussion/living-with-mds/

Since Revlimid is the brand name for Lenalidomide, which you’ll be starting soon. You might find this discussion helpful:
Is anyone here taking Revlimid:
https://connect.mayoclinic.org/discussion/is-anyone-here-talking-revlimid-for-chemo-if-so-please-share-with-me/
Feel free to drop into any discussion. We’re all here to support each other as you’ve found out in the Caregiver Group. ☺️
Were you having symptoms that led up to your discovery of MDS?

Thank you for the info. I was blaming my symptom on being tired from taking care of my husband I will check out these websites