1. < Heart & Blood Health

Iliofemoral DVT

Posted by penelope321 @penelope321, Nov 19 1:04pm

Has anyone ever experienced an iliofemoral DVT? I've been diagnosed with either a DVT in the left peroneal vein or a superficial thrombosis upper to mid calf in my greater saphenous vein depending on which radiologist I believe is correct. I have been experiencing fairly intense pain in my lower left abdominal/pelvic region and the left side of my vulva is enlarged and purple. The most troubling of all though is the fact that my left leg is a different color than my right. None of the doctor's that I have seen think anything is wrong! Can anyone offer any thoughts or next steps to pursue?

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dp77827 | @dp77827 | Nov 19 2:25pm

Hi Penelope,

While I’ve not had that kind of dvt, I had a dvt in my calf in 2017. My leg had changed colors with red streaks. They put me on bed rest for a week & followed up with appointments. I recommend you get a 2nd opinion, maybe even go to urgent care today. You’re in my prayers & keep us posted.

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bluesdoc | @bluesdoc | Nov 20 9:45am

Could be a May-Thurner (google) variant, which requires aggressive thrombolysis/thrombectomy and stenting. And anticoagulation stat. At the very least, you need a CT w/ contrast of the proximal venous vasculature for definitive diagnosis. And this is generally treated at medical centers with experience in this sort of thing. The docs who are blowing you off are negligent, so far it seems. You're going to have to be a squeaky wheel until you get to the care you need.

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penelope321 | @penelope321 | Nov 20 10:21am
In reply to @bluesdoc "Could be a May-Thurner (google) variant, which requires aggressive thrombolysis/thrombectomy and stenting. And anticoagulation stat. At..." + (show)
@bluesdoc

Could be a May-Thurner (google) variant, which requires aggressive thrombolysis/thrombectomy and stenting. And anticoagulation stat. At the very least, you need a CT w/ contrast of the proximal venous vasculature for definitive diagnosis. And this is generally treated at medical centers with experience in this sort of thing. The docs who are blowing you off are negligent, so far it seems. You're going to have to be a squeaky wheel until you get to the care you need.

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Been pretty squeaky so far but to no avail. Been to 2 different urgent cares, my PCP and my GI doctor-all they do is look for the ordinary and familiar. When I saw my GI he did a physical exam by squeezing my left hip once while I was sitting in a chair and declaring that there was no tenderness. That was it for my exam. My PCP (her PA actually) ordered a CT of abdomen and pelvis but without contrast and not stat. Saw her on Nov. 10th but have yet to get the scan done. Still waiting on my insurance company to call me back with an appointment day and time. The pain is really getting to me since it has been not good since Nov. 1st!

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bluesdoc | @bluesdoc | Nov 20 10:30am

This is NOT medical advice as you're not my patient…. but, I'd consider going to a medical center ER where you might be taken seriously. The delay in care/evaluation/tx you're experiencing is inexcusable.

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penelope321 | @penelope321 | 2 days ago

Finally got my CT scans done on Tuesday, Nov. 21st. Still waiting on results-yes-a week later. Ugh!

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