IBS sufferers MRT and LEAP

Posted by Bluegrass Gal @cindychesler, Wed, Jul 3 2:15pm

Hey IBS sufferers, have any of you had the MRT testing? It is testing to determine food sensitivities? The LEAP program is Lifestyle Eating and Performance Therapy. Has anyone done this? What were the results? Were they helpful? Has your IBS subsided? Any and all information is appreciated. Thanks in advance.

I had not heard of MRT or LEAP. Did a Google search and found information and ads for many providers with many promises. The only real evaluation was a reprinted article from the Chicago Tribune. I couldn't figure out how to put the link on this forum. It is an interesting approach but personally I am skeptical, especially with potential costs involved.

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Thank you for your response. I feel desperate.

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Hello @cindychesler,

When dealing with food sensitivities and digestive disorders, "elimination diets" seem to be the gold standard for identifying foods that trigger undesirable symptoms. Low FODMAP, Specific Carbohydrate Diet, Autoimmune Protocol, Gut and Psychology Syndrome (GAPS) Diet, etc. are just a few of such elimination diets.
– The LEAP Protocol is a food sensitivity elimination diet based on an individual’s results from the MRT test (Mediator Release Test) designed to help reduce inflammation in the body.
– The Mediator Release Test (MRT) is a food sensitivity test identifying foods and food chemicals/ additives that are causing food sensitivity reactions by adding more inflammation to the body.

Here are some articles that might interest you; unfortunately, it seems there is no solid evidence that these tests are better for identifying specific trigger foods.
– Food Sensitivity Testing: Evidence-Based Practice or Pricey Placebo? http://bit.ly/2Kc9G8O
– Testing for Food Reactions https://onlinelibrary.wiley.com/doi/full/10.1177/0884533610362696

Food intolerances are sometimes caused by intestinal permeability or leaky gut. If you’d like more information about digestive disorders, I’d encourage you to visit the Gastroenterology & GI Surgery Page on Connect https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/
For instance, here’s a video about leaky gut:
https://connect.mayoclinic.org/page/gastroenterology-and-gi-surgery/newsfeed-post/is-larazotide-acetate-the-answer-to-leaky-gut-1/

I’m also tagging @pjss48 @taya @srobison @sockwelljames @hgarm @ngarriso @trishanna @pearlbaby7 @jessicaferrante @IWantToBelieve; I hope they will join in to share their insights and experiences too.
@cindychesler, what are your thoughts about LEAP and MRT?

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@cindychesler. As a long-time IBS sufferer, I'm not. aware of any for sure way of determining which foods are the culprits. Interestingly enough, I've gotten some relief for the first time in many, many years after going on a low carb, sugar-free diabetes diet. I haven't a clue why, nor do I recommend diabetes as a cure for IBS! Would be interested to know if these new-to-me testing and therapy programs have merit!

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@trishanna

@cindychesler. As a long-time IBS sufferer, I'm not. aware of any for sure way of determining which foods are the culprits. Interestingly enough, I've gotten some relief for the first time in many, many years after going on a low carb, sugar-free diabetes diet. I haven't a clue why, nor do I recommend diabetes as a cure for IBS! Would be interested to know if these new-to-me testing and therapy programs have merit!

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I have a new to me gastro doctor that has come from Boston to work I am in North Dakota. I have lymphocytic colitis that was diagnosed 2 yrs ago in Florida where I was living at the time. This new Dr told me to remove ALL sugars ….no fructose or similar words like that that are imitating sugar. He also said NO dairy…not a speck. I found that to help immensely with calming diarrhea that was a constant with my colitis. He has me on Potatoes & Rice 2x a day each….for my weight loss that comes from colitis….plus my regular diet minus dairy & any possible sugars. He said READ labels before buying any packaged foods. Hidden sugars are throughout so many things.

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@susan30

I have a new to me gastro doctor that has come from Boston to work I am in North Dakota. I have lymphocytic colitis that was diagnosed 2 yrs ago in Florida where I was living at the time. This new Dr told me to remove ALL sugars ….no fructose or similar words like that that are imitating sugar. He also said NO dairy…not a speck. I found that to help immensely with calming diarrhea that was a constant with my colitis. He has me on Potatoes & Rice 2x a day each….for my weight loss that comes from colitis….plus my regular diet minus dairy & any possible sugars. He said READ labels before buying any packaged foods. Hidden sugars are throughout so many things.

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@susan30. Your response reminded me – diabetes diet says no white bread, pasta, rice. Instead, whole grain wheat should be used, which of course, I can't eat. I wonder about the wheat/gluten thing for me – I've given it all up. As you indicated, eliminating sugar in all it's forms is good. How about fruit?

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My gastro dr said Fruit was ok…..I'm just trying to stop the constant diarrhea I've had due to lymphocytic colitis. Another gastro dr has me on steroid meds for a long while…..causing bone loss. Now diagnosed with osteoporosis ! I'm not going back on the steroid rx if I can possibly not do that. In the meantime been doing all I can to rebuild bone & hoping not to lose more.

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@susan30

My gastro dr said Fruit was ok…..I'm just trying to stop the constant diarrhea I've had due to lymphocytic colitis. Another gastro dr has me on steroid meds for a long while…..causing bone loss. Now diagnosed with osteoporosis ! I'm not going back on the steroid rx if I can possibly not do that. In the meantime been doing all I can to rebuild bone & hoping not to lose more.

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There are several of us here who would be interested in any bone -building medication you may take. My doctor wants me on Prolia, but top side effects for all these meds is diarrhea, so since that's the form my IBS takes, I'm more than reluctant to take anything. I hope you're able to avoid steroid meds and that this diet works!

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@susan30

My gastro dr said Fruit was ok…..I'm just trying to stop the constant diarrhea I've had due to lymphocytic colitis. Another gastro dr has me on steroid meds for a long while…..causing bone loss. Now diagnosed with osteoporosis ! I'm not going back on the steroid rx if I can possibly not do that. In the meantime been doing all I can to rebuild bone & hoping not to lose more.

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@susan30 nay I ask what you doing to improve bone density? I am scheduled for a bone density scan and am apprehensive about ny doctor possibly wanting to put me on one of the medications, which I hope to avoid. I do get a lot of exercise which I have heard helps but I am lactose intolerant.
Thanks.
JK

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@trishanna

@susan30. Your response reminded me – diabetes diet says no white bread, pasta, rice. Instead, whole grain wheat should be used, which of course, I can't eat. I wonder about the wheat/gluten thing for me – I've given it all up. As you indicated, eliminating sugar in all it's forms is good. How about fruit?

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@trishanna Just curious, what do you do for bread? I suffer from IBS-C&D (both sides of the coin), and have been on the FODMAP diet for almost a year now, but a lot of gluten free ingredients trigger me. The only bread that does not seem to give me a problem, shockingly, is good ol' fashion no-nutrician white bread, as well as a special sourdough bread. So, I was just curious what you use for bread? What makes it very difficult for me is that I also have Pelvic Floor Dysfunction as well as IC (Interstitial Cystitis), so I'm also on an IC diet (low/no acid). So, if something is allowed for me on the FODMAP diet, it may not be safe for my bladder (IC). In fact, if anyone else suffers with all 3 conditions that I have, I would LOVE some support and ideas!! Sometimes I feel completely alone bc most people I talk to only have one condition or the other, but not both (the IBS and IC). Anyhow, sorry for rambling here . . . thanks for listening!

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@graceandpeace

@trishanna Just curious, what do you do for bread? I suffer from IBS-C&D (both sides of the coin), and have been on the FODMAP diet for almost a year now, but a lot of gluten free ingredients trigger me. The only bread that does not seem to give me a problem, shockingly, is good ol' fashion no-nutrician white bread, as well as a special sourdough bread. So, I was just curious what you use for bread? What makes it very difficult for me is that I also have Pelvic Floor Dysfunction as well as IC (Interstitial Cystitis), so I'm also on an IC diet (low/no acid). So, if something is allowed for me on the FODMAP diet, it may not be safe for my bladder (IC). In fact, if anyone else suffers with all 3 conditions that I have, I would LOVE some support and ideas!! Sometimes I feel completely alone bc most people I talk to only have one condition or the other, but not both (the IBS and IC). Anyhow, sorry for rambling here . . . thanks for listening!

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@graceandpeace Are there recommendations for pelvic floor dysfunction? If so, what are they? I presume when you say pelvic floor dysfunction you mean you don’t have adequate control over urination. I know that I should not have carbonated beverages, citrus, coffee, and chocolate but I have the last two anyway.
JK

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@graceandpeace

@trishanna Just curious, what do you do for bread? I suffer from IBS-C&D (both sides of the coin), and have been on the FODMAP diet for almost a year now, but a lot of gluten free ingredients trigger me. The only bread that does not seem to give me a problem, shockingly, is good ol' fashion no-nutrician white bread, as well as a special sourdough bread. So, I was just curious what you use for bread? What makes it very difficult for me is that I also have Pelvic Floor Dysfunction as well as IC (Interstitial Cystitis), so I'm also on an IC diet (low/no acid). So, if something is allowed for me on the FODMAP diet, it may not be safe for my bladder (IC). In fact, if anyone else suffers with all 3 conditions that I have, I would LOVE some support and ideas!! Sometimes I feel completely alone bc most people I talk to only have one condition or the other, but not both (the IBS and IC). Anyhow, sorry for rambling here . . . thanks for listening!

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@graceandpeace Multiple diets are sooo difficult, really. I'm juggling chronic kidney disease, diabetes and IBSd diets with a couple more low-level problems. Sourdough bread is excellent; since I'm counting carbs, I, too, found a white bread (Italian) that seems to work. With the diabetes, I've given up flour: pasta, bread, cookies, rolls, stuffing, bread crumbs, crackers, etc., and I keep my bread portions to an absolute minimum, like less than 30 carbs. Don't know if that's what has helped or not. Still have the usual foods that set off the diarrhea, like all of the cabbage family and acidic products – citrus, vinegar. Gave up salads for years, and only this year discovered it wasn't the salad, it was the dressings, almost all of which contain vinegar! Who knew. My only real suggestion is that I find I can tolerate very small servings of no-no foods – a half cup or less. Makes preparing the family dinner a real challenge! And I am a firm believer in "quality of life." Unless there is a compelling reason not to, I CHEAT!

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@contentandwell

@graceandpeace Are there recommendations for pelvic floor dysfunction? If so, what are they? I presume when you say pelvic floor dysfunction you mean you don’t have adequate control over urination. I know that I should not have carbonated beverages, citrus, coffee, and chocolate but I have the last two anyway.
JK

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@contentandwell Thank you for asking; Yes, I am currently seeing a pelvic floor therapist on a weekly basis to help me learn how to relax the muscle tension that I constantly have, which can cause mild to severe episodes of flare ups. The last 15 minutes of therapy, I do E-stem and heat, which is very soothing. At home, I do specific stretches and exercises, including walking on a treadmill, for 15 minutes, and I am also following a special diet from problem foods that can also cause a pelvic floor flare up from inflammation. However, bc I also have IC (interstitial cystitis), and IBS-C/D, even if I'm doing all of these things correctly, if I get flared up from the IC or IBS, it can flare up my pelvic floor as well since they're so interconnected. They pretty much feed off of each other. Other things that can cause flare ups are allergies, infections, stress, lack of sleep, sitting for too long, quick and sudden movement, and hormonal fluctuations. So, this can all be extremely tricky and discouraging at times, trying to figure out which thing is causing a flare up. One of the best resources I have found to help educate me is a hook called Healing Pelvic Pain (After getting the book, I found out that may therapist actually knows the author and was able to authenticate all that it says; in fact, my therapist has me doing some of the moment so home stretches that come straight from the book – some of them I have not been cleared for, though, just yet.). Anyhow, some other things that have also helped me are rubbing essential oils on my abdomen/pelvic bowl – Peppermint and Digize (I get mine from Young Living); and then using a heated corn bag, while lying down, propping myself up, with knees bent and resting over a pillow, relaxed in the butterfly position. Relaxation techniques, such as breathing through the belly instead of through the chest, which is what most people do, and listening to music (usually it's instrumental for me), with my eyes closed has also become a staple when I feel a flare is coming on. And, finally, the diets that I am on have been game changers for me as well since most of the foods/ingredients/drinks that I cannot have cause either inflammation to the pelvic floor, or to my bladder or intestines/colon. I am on the Low FODMAP diet for the IBS, as well as the ICN Food List for my IC – again, both of these lists are extremely helpful to keeping my pelvic floor happy. The IC-Network, and especially their magazines, have been sooo extremely helpful, since a lot of people who have pelvic floor dysfunction also have either IC and/or IBS. There's just so much information on their link: IC-Network.com and their free printable exhausted ICN Food List: https://www.ic-network.com/downloads/2012icnfoodlist.pdf

And, food list info: https://www.ic-network.com/interstitial-cystitis-diet/the-ic-food-lists/

One final thing I am currently doing for flare ups is having to take meds. I see a rheumatologist who has me on a nerve relaxer (Gabapentin) and a muscle relaxer (Cyclobenzaprine at the lowest dose of 5ng). I also see a Urogynocologist for both the pelvic floor and the IC, who has me also on the lowest dose of Oxybutinin (5mg, for frequency/urgency and bladder
spasms), but only as needed. I also take gas-x and 2 OTC Tylenol, 500 mg each, but , also, only as needed, like when I'm in an extreme flare. So whenever I am in an extremely severe episode (flare up), I have to take all of those meds at one time, in order for it to stop. The severe episodes can cause painful BM's, where I can't go bc it is too painful, also can cause colon spasms, as well as not being able to finish voiding, again, bc it's too painful. Thankfully, these kind of Episodes do not happen very often now bc of all that I am doing (therapy, diet, stretches, relaxation, and Gabapentin).

Anyhow, sorry this was so exhaustive, but there's just so much that goes along with pelvic floor dys that it's difficult to inform people without including all of the other things. Hope this is helpful!!

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@trishanna

@graceandpeace Multiple diets are sooo difficult, really. I'm juggling chronic kidney disease, diabetes and IBSd diets with a couple more low-level problems. Sourdough bread is excellent; since I'm counting carbs, I, too, found a white bread (Italian) that seems to work. With the diabetes, I've given up flour: pasta, bread, cookies, rolls, stuffing, bread crumbs, crackers, etc., and I keep my bread portions to an absolute minimum, like less than 30 carbs. Don't know if that's what has helped or not. Still have the usual foods that set off the diarrhea, like all of the cabbage family and acidic products – citrus, vinegar. Gave up salads for years, and only this year discovered it wasn't the salad, it was the dressings, almost all of which contain vinegar! Who knew. My only real suggestion is that I find I can tolerate very small servings of no-no foods – a half cup or less. Makes preparing the family dinner a real challenge! And I am a firm believer in "quality of life." Unless there is a compelling reason not to, I CHEAT!

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@trishanna I am so sorry you have had to suffer with so many different health issues; I'm sure it has been an uphill battle! I'm glad you have been able to find some things that work for you. I understand about eating the "no no foods" as long as it is in very small amounts and not an every day thing; I have found the same to be true for me as well! I hope you are able to continue to learn and heal in the weeks and year's to come!

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@contentandwell

@graceandpeace Are there recommendations for pelvic floor dysfunction? If so, what are they? I presume when you say pelvic floor dysfunction you mean you don’t have adequate control over urination. I know that I should not have carbonated beverages, citrus, coffee, and chocolate but I have the last two anyway.
JK

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@contentandwell I'm sorry but I just noticed that you had asked about urination control. Although, incontinence is a big part of PF Dys, thankfully, it is not something that I suffer with. Usually, incontinence implys some kind of organ prolapse. However, my PF Dys is not being able to relax my pelvic floor muscles and pelvic floor nerves, which can mean painful pelvic bowl muscled to/nerve spasms, pressure, heaviness, painful voiding, usually at the end of a stream, trouble with getting a stream started, emptying colon, spastic colon, a quick electric-like zap from the middle of abdomen, under navel to groin or in vaginal region. Sometimes, some of the flare ups can be likened to a charlie horse, except one that is not as quickly relieved as the normal foot charlie horse.
Hope this helps!

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