IBS-D

Posted by pjss48 @pjss48, Dec 11, 2018

I have IBS with diarrhea. I’m taking med for it. Had several bowel movements already today. How do you get things done in house and go out on errands and going to Dr appointments? Driving me crazy!

@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Have you been tested for c-dif

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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I have had IBS-D for over 20 years, I have had tests after test and they still diagnose me with IBS, I am taking Atropine 0.025/ Diphenoxylate 2.5 mgs. which has helped, but only for so long. I spent last Tuesday night in the hospital with severe diarrhea. I was of course dehydrated, and my potassium was very low from loss of electrolytes. It has been an on going battle, I use adult disposable pull ups, and that at least gives me a little security when going out. I like to wear my own under wear over top, it just makes it feel better. Stress plays a major roll in IBS-D as well as the foods we eat, however, as for me the type of foods I eat really makes no difference, I can eat 1/2 a peanut butter sandwich and I am headed for the bathroom. I do know that fruit and vegetables seem to trigger it most. I have found personally that if I take my usual medication for awhile then switch to something else for awhile then back to my usual, that seems to help also. But for the most part, finding what works for you is the only way to deal with this stuff. If you get the pull ups, I have found that Food lion has a brand called Healthy Accents that are very good and very reasonable in price. The truth is there is no cure for IBS, all you can do is treat the symptoms. Find what works for you, and use the pull ups for more protection. It wouldn’t hurt to avoid stress as much as possible and be aware of what your triggers are. As for your back problems, I too have back problems but the two are not related. Having back problems does not cause IBS and vise versa. I wish you all the luck in the world, you CAN learn to live with IBS.

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@jeanie26

I have had IBS-D for over 20 years, I have had tests after test and they still diagnose me with IBS, I am taking Atropine 0.025/ Diphenoxylate 2.5 mgs. which has helped, but only for so long. I spent last Tuesday night in the hospital with severe diarrhea. I was of course dehydrated, and my potassium was very low from loss of electrolytes. It has been an on going battle, I use adult disposable pull ups, and that at least gives me a little security when going out. I like to wear my own under wear over top, it just makes it feel better. Stress plays a major roll in IBS-D as well as the foods we eat, however, as for me the type of foods I eat really makes no difference, I can eat 1/2 a peanut butter sandwich and I am headed for the bathroom. I do know that fruit and vegetables seem to trigger it most. I have found personally that if I take my usual medication for awhile then switch to something else for awhile then back to my usual, that seems to help also. But for the most part, finding what works for you is the only way to deal with this stuff. If you get the pull ups, I have found that Food lion has a brand called Healthy Accents that are very good and very reasonable in price. The truth is there is no cure for IBS, all you can do is treat the symptoms. Find what works for you, and use the pull ups for more protection. It wouldn’t hurt to avoid stress as much as possible and be aware of what your triggers are. As for your back problems, I too have back problems but the two are not related. Having back problems does not cause IBS and vise versa. I wish you all the luck in the world, you CAN learn to live with IBS.

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Thank you so very much. This does help to understand more about IBS-D. You have been very helpful. It can just hit me without warning even watching all that I eat. When you think itI is calming down, well here it comes. I try and be very mindful of the stress and boy is that stressful. You take care and I do want to hear from and I will be gathering all information I can get to proceed further.

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@yyyy

Have you been tested for c-dif

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I do not know but will see if any of the tests included this. Thank you.

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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I’ve had IBS for many years. I’ve taken different meds in the past, but the last five years I’ve stopped taking prescription meds and daily eat the following: 1 serving of probiotic yogurt mixed into 1/2 cup fiber cereal in the morning, and five 0.52 GM caps of psyllium before bedtime. I use to have frequent bouts of diarrhea, and have reduced episodes greatly. My doctor hasn’t needed to prescribe any meds for me, and though I still have periods of pain associated with IBS, at least I don’t have to deal with the diarrhea issues like I once did. I don’t know that this will be helpful for your particular case of IBS, but perhaps something to discuss with your doctor as a possible option to try.

Liked by sodonnell

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@cherriann

I’ve had IBS for many years. I’ve taken different meds in the past, but the last five years I’ve stopped taking prescription meds and daily eat the following: 1 serving of probiotic yogurt mixed into 1/2 cup fiber cereal in the morning, and five 0.52 GM caps of psyllium before bedtime. I use to have frequent bouts of diarrhea, and have reduced episodes greatly. My doctor hasn’t needed to prescribe any meds for me, and though I still have periods of pain associated with IBS, at least I don’t have to deal with the diarrhea issues like I once did. I don’t know that this will be helpful for your particular case of IBS, but perhaps something to discuss with your doctor as a possible option to try.

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THanks for the info. I do see my doctor tomorrow. I have diarreah, when it starts, at least 6-8 times, nauseated and just miserable. HAve pain. I do have a very interesting thing i do. I can feel a trigger, like a sneeze, after that i have nausea and diarreah. I know its weird, but this really does happen. I have been on Verberzi, a new med, for the IBSD. IT helps, i guess, but i get constipated. So I see my doctor tomorrow. AGain, thanks for the info

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@cherriann

I’ve had IBS for many years. I’ve taken different meds in the past, but the last five years I’ve stopped taking prescription meds and daily eat the following: 1 serving of probiotic yogurt mixed into 1/2 cup fiber cereal in the morning, and five 0.52 GM caps of psyllium before bedtime. I use to have frequent bouts of diarrhea, and have reduced episodes greatly. My doctor hasn’t needed to prescribe any meds for me, and though I still have periods of pain associated with IBS, at least I don’t have to deal with the diarrhea issues like I once did. I don’t know that this will be helpful for your particular case of IBS, but perhaps something to discuss with your doctor as a possible option to try.

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Well, i saw my Primary today and not much happened. Felt very down after. WE talked and I really thought he understood. His nurse made me an appt with a gastro doc. IT would be Sept 29. Okay that’s a long time when you are dealing with IBSD and pain. The gastro doc is one who is not really liked and is “rough with people”. I called to get anoher gastro doc and they did get me one but now it is Oct 13. I am really tired of dealing with this.

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Sure understand your anxiety and feeling “down”, as that is a long time to wait when having pain and all the other issues you are experiencing. Would the gastro doctor possibly have a ‘call list’ you could be put on to get in sooner if another patient cancels and there’d be an appointment opening. I’ve put myself on a call list quite a few times and had good luck getting in for an appointment sooner. And, GOOD FOR YOU, in requesting another doctor when you weren’t comfortable with the one first found for you!! So important to have doctors we can relate to and are understanding of our health issues.

Liked by Keysgull

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Good morning to all. I did see my new doctor and they listened, asked questions and seemed sincere. A endoscopy and colonoscopy is scheduled for the 23rd. They are also scheduling a test wherein i swallow a radioactive “pill”. This should take about 4 hours. SO I Feel content that something is moving other than my bowels. I will keep you updated. You have all been tremendously helpful and supportive. Thanks to all.

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@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I have had IBSD for a long time. I have tried everything except the latest medication Verbrizi, I have probably spelled that incorrectly. I have been in the hospital numerous times with vomiting and diarrhea with an added hurricane force panic attack. I finally accepted that it was not just my diet causing the episodes as I call them but stress really did play a major roll in my problem. A couple of weeks ago I started taking Prozac It has kept the episodes from sending me to the emergency room. I still have to watch what I eat and the amount since I also have Gastroparesis, which slows the food that I eat from leaving the stomach as it should but at least the Prozac helps with the panic part of the issue.I take Immodeum Plus every other day to help with the diarrhea. If I have a need to go shopping, which I try to avoid, I take an Immodeum Plus 45 minutes before I plan on leaving. Can’t eat anything thing though unless I am really close to home but I usually just wait until I get back home. Trips of 2 hours or more are harder. I have to eat then go to the bathroom before I leave and not eat again until I get to my destination. There are so many of us with this problem you would think that a common denominator could be found.I don’t know if any of this helps, I just wanted to share.GLM

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@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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Hello @gingerlyn, and welcome to Connect. Thank you for sharing so much about your condition and frustrations; you have found a great place to share your concerns.
I moved your message to an existing discussion, where many fellow members have IBS-D. You will see your messages in Digestive Health, under the discussion, “Severe IBS-D and Pain…” I would sincerely encourage you to to read the whole discussion as it may offer some insight on treatment and therapy.

I would also like you to meet @safetyshield, @srobison, @agr205, @Pookith85, @holly5757, @cherriann, who can share their experience and advice about IBS and IBS-D. @srobison, I see that you have tried Viberzi, (eluxadoline); would you let @gingerlyn know how that affected the IBS-D symptoms?

Last but not least, I’d like to invite you to listen to Dr. Kenneth DeVault discuss Irritable Bowel Syndrome (IBS). You can also participate by asking questions; the details are posted above.
You do not need a Facebook account to be able to watch the broadcast. You will also be able to watch it right here on this page on Connect.
You can sign up for the event here: http://mayocl.in/2dBbsAg
By signing up you will receive a friendly email reminder a day before and one hour before the event.

gingerlyn, what have your doctors recommended to try and stop the diarrhea?

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Hi…I haven’t been diagnosed with IBS, but reading everyone’s posts, it sounds like what I have. The prescription that helps me more than anything for diarrhea is diphen/atrop generic for Lomotil 2.5 mg…I has saved me more times than I can count..

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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Hi @falconfly,

Welcome to Connect, and thank you so much for sharing the information.
Have your doctors explained what is causing the diarrhea? Are there any other symptoms (common to IBS) that you experience?

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@falconfly

Hi…I haven’t been diagnosed with IBS, but reading everyone’s posts, it sounds like what I have. The prescription that helps me more than anything for diarrhea is diphen/atrop generic for Lomotil 2.5 mg…I has saved me more times than I can count..

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For as long as I can remember as a child I was given lomotil when I went away to college and was studying I read that lomotil can cause depression. This was a shock to me since I had taken it for years. So I stopped it myself and went to a store none prescription brand. It worked for awhile until I was in my 50’s when I was diagnosed with IBS with diarrhea. My gastroenterologist told me to up my dose of fiber to twice a day. I get this from over the counter at my drug store and it seems to work metamusol. I am on dicyclomine and amitriptomine as well

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@srobison

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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No. I had a colonoscopy and checked inside my stomach and said it was somewhat inflamed.but ok..I never got to see the doctor who ordered it afterwards, but the doctor I saw just gave me a list of food I should and shouldn’t eat…Actually, that doesn’t seem to make much difference..It seems to be more when I eat than what altho I do watch certain foods. The other day when I had been having bouts for a couple days, I drank their medicated bulk drink twice, ate nothing but rice, bread and applesauce, decaf tea with honey. I got up the next morning and had two sips of the cold tea and within 10 minutes I had diarrhea all over the bed, the floor and my wheelchair. I was devastated.

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