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srobison
@srobison

Posts: 10
Joined: Aug 15, 2016

Severe IBS-D and pain in spinal area

Posted by @srobison, Aug 15, 2016

Hi to all. I have been battling spontaneous and severe diarrhea along with back pain for several years. I have really no life when I go outside, see friends, no social life because of this. Latest diagnosis is IBS-D Given Viberzi 100mg twice daily. I have severe abdominal pain and block up. I also have pretty intense spinal problems. I had a spinal fusion L2-L7. I have pain and numbness, buttocks and back leg pain. I have researched and found Cauda equine syndrome, which I know you are not suppose to do this but my doctors are not ones who go beyond what they have already done. I cannot control this diarrhea, cannot stop it and I am really at the end of a pretty long rope. Can anyone share suggestions or anything. I have been to Mayo and I will come back. I live several states away. But would like to hear any comments. Thanks you, Sharon

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REPLY

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I feel for you. I remember hearing, in a drug-filled haze, the word “normal” when I was waking up from my colonoscopy. I wanted to cry. I have severe symptoms and nothing has given me much relief. My regular doctor has been treating it (or trying to) for a few months, but I think I’ll go back to the gastro to get medicine that only he can prescribe (I can’t think of the name right now, but it’s on the Mayo Clinic site about IBS). Lomodal has helped a bit. Have you tried it? Also, you could try Marinol for the nausea, though it makes you pretty spacy (or it did me–my doc won’t give it to me anymore.) Good luck to you! let me know if you find something that works!

@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I too have been struggling with IBS for numerous years and I left it unattended and now deal with diverticulitis. Don’t do this… treat yourself NOW!

If not taken care of you eventually will end up with some kind of surgery to remove the pouch’s that is causing the pain and inflammation.

I had what was called hand assisted sigmoid (literally cutting you open and pulling out your colon/intestine and cutting it off) in December 2009. Can I say it was easy? No. Do I feel better? Yes. Unfortunately I was advised after surgery that it wasn’t only in the lower part of the colon as originally thought I have pockets all through the colon/intestine.

I stay on a strict diet of no raw vegetables, no fresh fruit, no peanuts, pop-corn, any thing with a hull, no spice (salt and pepper are my best friend), no hot items, as in salsa, green peppers (any peppers), no salads, the list is endless. Is it hard? Yes. I have sampled a few of the above only to pay a dear price for it and it’s not worth the pain. If I chose to go back to the old habits then I chose to have all of my colon/intestine removed.

Because you seem to be in the early stages, you could follow the above listed for items not to eat a couple of weeks to get our IBS under control. Then you can slowly add an item back. If this item irritates your system mark it off the list for awhile.

Trust me; don’t be as stubborn as I was as I lived on mashed potatoes and baby food way too long. If you can get a hold of it in the early stages life will be so much better.

I wish you luck and surf the net for list of items that can help. Give it a try…..

@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I suffered from nausea and vomiting which is now under good control. In the early days it was awful, and to begin with no one could figure out what was going on. Mayo Clinic were unable to help me, and all of my tests kept coming back normal.

I found a great physician in NC who has been able to get to the bottom of my issues (which turned out to be motility related). My doctor is an IBS specialist, Dr. Drossman (Chapelhilldoctors.com) – he is excellent. I highly recommend him and he will work with you over time to get to the bottom of things.

@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I am a Crohn’s patient that was discovered 50 years after my problem started when I was about 14. First symptom was acid in my stomach and later many symptoms including headache, pain, and memory problems. IBS have similar qualities. I learned that if you clean the liver all symptoms stops. I was treated in Italy with shots of Methionine, B12, and Vitamin K and had no symptoms for over two years. At the time I was 15 years old and now 67 and dealing with the same problems. The American doctors are uneducated in the nutrition area.
I was in The Vitamin Shop and read the ingredients and purchased a bottle for experiment and it worked great. I had a lot of problems especially lately and I am treating my self in the last few months with Liver Support Factors vitamins by Country Life. I can eat any disturbing foods and the pills makes the symptoms go away. I am looking for a doctor who is educated to know and understand that a clean liver stops most of the problems that the body have. I am also suffering from a lot of muscular pain and these pills are taken them away.

@mamamiamandy

I had a colonoscopy today and they told me I have IBS. I have suffered for months with episodes of violent diarrhea and vomitting. I am wondering what are some steps I can take to make this improve.

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I think you should go elsewhere for a second opinion. My son was not accurately diagnosed at our local hospital. We went to the University of Michigan where they immediately could diagnose him from his colonoscopy slides from the first hospital. Does the IBS stand for inflammatory bowel disease or irritable bowel disease? If it is the first, you need to go elsewhere soon. If it is the second, I think it is a catch all diagnosis for when they don’t know what else to say. So please go somewhere else and get a second opinion so you can get on the road to health 🙂 Oops! Forgot to mention that his diagnosis is ulcerative colitis. He has had one minor and one major flare. The last one put him in the hospital for five days. When he has the flare, his diarrhea turns to blood because the colon is getting rid of its outer layer. He also develops nausea and vomiting. That is when we headed down the road for an hour drive to the university’s ER. Please dig deeper for your diagnosis and do not accept fraudulent excuses for a diagnosis!

Hi @srobison, welcome to Connect. I’d like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
– Cauda equina http://mayocl.in/2aWudfX
– Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

@colleenyoung

Hi @srobison, welcome to Connect. I’d like to connect you with other members talking about the issues you raise here. First meet @agr205 @Pookith85 @jeanie26 @keysgull @bobsconnect @holly5757 and @missie who can share their experience and advice about IBS and IBS-D.

You may also be interested in taking part in these discussions:
– Cauda equina http://mayocl.in/2aWudfX
– Spinal fusion http://mayocl.in/2bbREQi

What have your doctors recommended to try and stop the diarrhea?

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Over about a 2 year period, I have been prescribed so many meds, which have not worked. Probiotics, the FODMAP eating plan, and a whole lot more. Finally trying Viberzi, a new script for IBS-D. 100mg twice daily. Not really helps. I do have bad spinal problems. L have had spinal fusion, L2-L7. I have cervical stenosis and need something done with that. I feel all of that has a lot to do with my diarrhea. I have a feeling my spinal problems have a lot to do with this, but I feel the doctors have gone as far as they want to.

Are you sure you don’t have H -pylori?

Has you ever thought about an ileostomy?

@kidbjp

Has you ever thought about an ileostomy?

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Have not had this. Please explain. Thank.you.

@yyyy

Are you sure you don’t have H -pylori?

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I have had so many fecal tests and all come back with nothing. Do not know if this was part of those tests.

This is not a test it is a surgical procedure. The patient has an ostomy bag after where the stool is diverted to rather than the rectum. You can google the procedure and get a more in depth description and so on. Hope this helps

Have you been tested for c-dif

I have had IBS-D for over 20 years, I have had tests after test and they still diagnose me with IBS, I am taking Atropine 0.025/ Diphenoxylate 2.5 mgs. which has helped, but only for so long. I spent last Tuesday night in the hospital with severe diarrhea. I was of course dehydrated, and my potassium was very low from loss of electrolytes. It has been an on going battle, I use adult disposable pull ups, and that at least gives me a little security when going out. I like to wear my own under wear over top, it just makes it feel better. Stress plays a major roll in IBS-D as well as the foods we eat, however, as for me the type of foods I eat really makes no difference, I can eat 1/2 a peanut butter sandwich and I am headed for the bathroom. I do know that fruit and vegetables seem to trigger it most. I have found personally that if I take my usual medication for awhile then switch to something else for awhile then back to my usual, that seems to help also. But for the most part, finding what works for you is the only way to deal with this stuff. If you get the pull ups, I have found that Food lion has a brand called Healthy Accents that are very good and very reasonable in price. The truth is there is no cure for IBS, all you can do is treat the symptoms. Find what works for you, and use the pull ups for more protection. It wouldn’t hurt to avoid stress as much as possible and be aware of what your triggers are. As for your back problems, I too have back problems but the two are not related. Having back problems does not cause IBS and vise versa. I wish you all the luck in the world, you CAN learn to live with IBS.

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