1. < Parkinson's Disease

I have PD (Parkinson Disease)

Posted by Chris J @chrisj2491, Feb 13, 2015

I would like to introduce myself. My name is Chris and I just joined the group.
I have PD (Parkinson Disease) which of course is a neurological disorder.
If there's one thing I've learned. ....it's that everyone is "different." It's always good to listen and learn about others' experiences.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

tonyc55 | @tonyc55 | Oct 20, 2016
In reply to @howardjames "I would give anything to talk with someone who has the same diagnosis as my husband..." + (show)
@howardjames

I would give anything to talk with someone who has the same diagnosis as my husband . He was diagnosed at Mayo Clinic on Jan of 2015 with Cerebellum Brain Atrophy and given 3 to 4 years to live. He is now walking with a cane but will need a walker soon. Does anyone have such a diagnosis?

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No I have corticobasal syndrome I am 76 walking with a cane now will be in wheelchair soon it effects my left side on the way to my right

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 20, 2016
In reply to @ricksraleigh "I have M.S. and I am glad that there is a site where I can talk..." + (show)
@ricksraleigh

I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

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Welcome @ricksraleigh. Please help me get the discussion about MS started and meet other members living with MS. http://mayocl.in/2eKI4Kj We look forward to hearing your story.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Oct 20, 2016
In reply to @howardjames "I would give anything to talk with someone who has the same diagnosis as my husband..." + (show)
@howardjames

I would give anything to talk with someone who has the same diagnosis as my husband . He was diagnosed at Mayo Clinic on Jan of 2015 with Cerebellum Brain Atrophy and given 3 to 4 years to live. He is now walking with a cane but will need a walker soon. Does anyone have such a diagnosis?

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For those of you wishing to connect with @howardjames and read more of what she has written about her journey, caring for her husband who has cerebellum brain atrophy, please see this discussion https://connect.mayoclinic.org/discussion/cerebellum-atrophy/
We'll get you connected, Noreen.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 20, 2016
In reply to @ricksraleigh "I have M.S. and I am glad that there is a site where I can talk..." + (show)
@ricksraleigh

I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

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@ricksraleigh Let me add my welcome to you! If you could, please share a little about yourself. Is your diagnosis of MS a recent one, have meds and/or physical conditioning helped you? We look forward to getting to you know!

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tonyc55 | @tonyc55 | Oct 20, 2016
In reply to @hopeful33250 "Thanks for your posting about corticobasal syndrome @tonyc55. You mention that it is similar to Parkinson's...." + (show)
@hopeful33250

Thanks for your posting about corticobasal syndrome @tonyc55. You mention that it is similar to Parkinson's. If you would like to share more about this, please let us know how this disorder was diagnosed and if the typical Parkinson's meds are helpful to you. Is physical therapy and exercise a part of your health care routine? Thanks again for sharing about this.

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No the Parkinson's meds don't help. I got verified at Stanford movement center

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ricksraleigh | @ricksraleigh | Oct 21, 2016
In reply to @ricksraleigh "I have M.S. and I am glad that there is a site where I can talk..." + (show)
@ricksraleigh

I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

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Great! I am a retired 49 year older with MS! I taught full time for 8 years and then started tutoring until the Monster MS Fatigue set in!

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ricksraleigh | @ricksraleigh | Oct 21, 2016
In reply to @ricksraleigh "I have M.S. and I am glad that there is a site where I can talk..." + (show)
@ricksraleigh

I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

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Hello: I was diagnosed with MS at age 28! I am currently taking Gilenia, but I think my MS is turning from RRMS to Progressive, so I walk with a rollator with no remissions!

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 21, 2016
In reply to @ricksraleigh "I have M.S. and I am glad that there is a site where I can talk..." + (show)
@ricksraleigh

I have M.S. and I am glad that there is a site where I can talk and share my problems as well as my success.! "We can definitely be Health Warriors!"

Jump to this post

Thanks for sharing a little about yourself, @ricksraleigh. It sounds as if you are an experienced MS patient. Outside of meds what has helped you the most in dealing with MS?

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johnjames | @johnjames | Oct 23, 2016
In reply to @denie57 "Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am..." + (show)
@denie57

<p>Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am 58 years old! Raised 4 children as a single parent and was looking forward to my golden years (travel, hobbies, networking, social etc,) Devastating blow that makes me hopeful that something good will come from this and then in the same hour feeling hopeless and vulnerable. Trying to figure this whole thing out.</p>

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I was diagnosed with Agent Orange Parkinson's about 2 1/2 years ago, as time goes by does anyone experience how hard the morning are, my body just won't move, my mind is awake and ready to go- but my body just won't follow for at least 1-2 hours. Does anyone else have such a problems, and if so, what do you for for it, It seems to be more and more controlling my life- especially when you can moce very well until almost noon. JJAMES

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Oct 24, 2016
In reply to @denie57 "Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am..." + (show)
@denie57

<p>Hello! My first time on the site. I was recently diagnosed with Parkinson's disease. I am 58 years old! Raised 4 children as a single parent and was looking forward to my golden years (travel, hobbies, networking, social etc,) Devastating blow that makes me hopeful that something good will come from this and then in the same hour feeling hopeless and vulnerable. Trying to figure this whole thing out.</p>

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@johnjames Early morning stiffness is a common problem for PD folks. You don't mention how you take your meds however, often taking some PD med at bedtime can help the early morning symptoms. Also I read an article about Michael J. Fox and he spoke of extended time in a hot shower first thing in the morning. Early morning showers and evening showers as well helps with the stiffness. Does anyone else have suggestions!

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