I was recently released from the hospital for “episodes”. All testing came back negative and is very frustrating for me. I have chronic back and neck pain.. then three years ago I was also diagnosed with fibromyalgia.. i stay active and go for acupuncture regularly. for the past few months something has changed. I have episodes of being extremely tired, my face goes pale, my eyes lids become heavy and low, my jaw tightens and I either slur my words or loss my speech all together. I also became stiff and cant control my body meaning I cant walk or move my arms and my hands would clench into a fist… its like I was stuck inside looking out unable to respond for a few hours. recently that changed. the back of my neck hurts a lot, I get a really back headache, I turn pale, my head turns to the right shaking, I lose control and I shake and jerk my head and body. I cant speak and just grunt. I also stare off for 1-5 minutes and cant respond to questions during my episode. for the first two days in the hospital the body movements became stronger and started coming like waves more and more. then they put me on Keppra that second night. . by the next day I had only three episodes, becoming quiet, getting a little dizzy and having a blank stare for about a minute or so. I also smack my lips and am very thirsty when i snap out of it. im tired but resume talking or whatever im doing but i get very tired. I was told its a mental block and referred to mental heath. I was released last night and have 6 days of Keppra meds to take before its discontinued. I’m scared the episodes will escalate again. I don’t want to be labeled with seizures or anything like that but I need help and answers as to why this is happening. The doctor in the hospital said the 24 EEG was clear. Yet when I spoke with the tech he said he saw something. I don’t understand how Im going to go back to work next week or drive again. Has anyone gone through this? Any advise? I have 6 days to figure this out before the medicine runs out. and i go back to work..
Liked by Sandra Hall Vercrouse