Left temporal lobe lobectomy?

Hi, @csue - I'm tagging a few members who have had similar, though not exactly the same, types of lobectomies so they can share their experiences and side effects short and long-term: @lady35 @jemollica @hendglenn2000. I'd also love for you to meet @santosha and @jakedduck1.

Have you had a lobectomy at this point, csue, or has one been recommended?

@lisalucier
Thank you for your support. No I have not had a lobectomy. I had a LITT about 6 yrs ago , did fine but have started back with seizures.
Thanks again for all support.

@csue1 - did you see a difference in your seizure activity after the laser interstitial thermal therapy (LiTT)?

What are your seizures like now?

Are you and/or your epileptologist considering a left temporal lobe lobectomy for you in the future?

I had left temporal lobe surgery in 2013. I haven't had a tonic clonic since the day before my surgery. I had one focal aware seizure while I was sick with Covid & pneumonia in 2021. I do have some memory problems but it got better with time. Right after my surgery I had problems finding my words but that improved with time too. I have what they call focal cerebral dysfunction over the left mid posterior. I get these feelings over the left side of my brain sometimes that feel like the feeling you get when you move after a part of your body that falls asleep. That odd tingling feeling that you get is the only way I can describe it. I hope that makes sense. It lasts a few seconds but I am aware during it. My Dr once told me that it's those areas of my brain that have been disconnected & they are trying to find each other to cause a seizure. I hope this helps you.

@audo
Thank you for everything.

@lisalucier
Yes, I the grand mal came to basically a complete stop except for 3 months post op, then started back out of blue 5 yrs after surgery. Also started having a lot more focal.

When the seizures started again, was depression a problem for you. I was seizure free for 18 months while still on meds which hadn't happened in over 25 years. Then employment issues with my wife's company, set me back. Depression and disappointment has been the name of the game, since.