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jennybell1
@jennybell1

Posts: 8
Joined: Jan 22, 2016

Diagnosed with SVT and want to talk with others

Posted by @jennybell1, Jan 24, 2016

I was just diagnosed with SVT and can’t seem to find any discussions with regards to that diagnosis. It was suggested by my cardiologist to visit this site for information. Anyone able to help point me in the right direction as the search engine comes up with “no results”.
TIA

REPLY

Hi @jennybell1,
Welcome to Connect. There’s an older discussion about tachycardia treatment here: https://connect.mayoclinic.org/discussion/flecainide-and-digoxin-drug-for-tachycardia/ If you post on the thread, you may be able to re-ignite the conversation with @laurenstedman, @topaz and @useless.

You may also be interested in connecting with @iboxx @lindabg52 and @alabamagma on this thread: https://connect.mayoclinic.org/discussion/i-have-a-recurrenting-event-in-which-my-blood-pressure-drops-to/

What are the next steps for you now that you’ve been diagnosed?

Colleen
Connect Community Director

I’ll also tag @martishka on this thread. Marishka, will you join this discussion and share your experiences of living with SVT?
Thanks is advance.
Colleen

@colleenyoung

I’ll also tag @martishka on this thread. Marishka, will you join this discussion and share your experiences of living with SVT?
Thanks is advance.
Colleen

Jump to this post

Hello,
I am happy to join the discussion.
Martishka

@colleenyoung

I’ll also tag @martishka on this thread. Marishka, will you join this discussion and share your experiences of living with SVT?
Thanks is advance.
Colleen

Jump to this post

Welcome back @martishka. Thanks for answering my shout out to you. I’m sure that @jennybell1 will appreciate too.

I was re-reading the discussion you had with @calamityjane https://connect.mayoclinic.org/discussion/ventricular-tachycardia/
Can you believe it’s been 4 years to the month that you were writing about SVT on this forum? Would love to get an update on how you’re managing SVT and afib these days? What concerns you may have and what helps?

@colleenyoung

I’ll also tag @martishka on this thread. Marishka, will you join this discussion and share your experiences of living with SVT?
Thanks is advance.
Colleen

Jump to this post

HI,
I had a 5th ablation about 3 years ago- this one was a Pulmonary Vein Ablation and I have been fine since then. I had several rhythm problems- Afib, SVT and Atrial Flutter. I haven’t had an event since that ablation!
martishka

Hi to all,
I’m a retired engineer in Montana. I’ve lived with SVT for about 8 years and had one unsuccessful ablation attempt about a year ago. I was unaware that there is more than one type of ablation procedure – could someone explain the different types? Thanks

Hello, I started having ablations about 15 years ago. And my last one was 3 years ago. The “regular” ablation is where they went in through the groin, “mapped” the heart, looking for the site of the SVT and then ablate it. Although, for a variety of reasons they were unsuccessful. During the course of these ablations I developed AFib. 3 years ago my situation became unmanageable with meds. That’s when they did the Pulmonary Vein Ablation. My understanding is that it is for AFib but it could be for SVT as well. You are asleep for this one and it is more extensive/ The premise is that the rhythm is being triggered in one of the Pulmonary veins, not in the heart. So they ablate all around each vein and I think the atria as well. It is through the groin as well and in my case, it was successful. I haven’t had an episode of any kind since the PVA and I am off all the meds that were used to try and control it. Hope that helps.

@martishka

Hello, I started having ablations about 15 years ago. And my last one was 3 years ago. The “regular” ablation is where they went in through the groin, “mapped” the heart, looking for the site of the SVT and then ablate it. Although, for a variety of reasons they were unsuccessful. During the course of these ablations I developed AFib. 3 years ago my situation became unmanageable with meds. That’s when they did the Pulmonary Vein Ablation. My understanding is that it is for AFib but it could be for SVT as well. You are asleep for this one and it is more extensive/ The premise is that the rhythm is being triggered in one of the Pulmonary veins, not in the heart. So they ablate all around each vein and I think the atria as well. It is through the groin as well and in my case, it was successful. I haven’t had an episode of any kind since the PVA and I am off all the meds that were used to try and control it. Hope that helps.

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That’s an amazing success story after having suffered with this for some 12 years! Thanks for the info – my doc has mentioned AFIB to me in explaining why the first ablation didn’t work – couldn’t simulate the condition, etc. I’ll discuss with her at the next appt.

@colleenyoung

Hi @jennybell1,
Welcome to Connect. There’s an older discussion about tachycardia treatment here: https://connect.mayoclinic.org/discussion/flecainide-and-digoxin-drug-for-tachycardia/ If you post on the thread, you may be able to re-ignite the conversation with @laurenstedman, @topaz and @useless.

You may also be interested in connecting with @iboxx @lindabg52 and @alabamagma on this thread: https://connect.mayoclinic.org/discussion/i-have-a-recurrenting-event-in-which-my-blood-pressure-drops-to/

What are the next steps for you now that you’ve been diagnosed?

Colleen
Connect Community Director

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Hi Colleen,

Thank you for leading me to those people/threads.
I am booked for an ECHO and Stress test on Feb 4 just to confirm that my
actual heart is healthy in light of this issue.
I have been put on a low dose of Bisoprolol and have been advised to change
my diet (no caffiene, increase water intake etc).

Not sure how much this will all help as Im sure most of this is due to
stress and unfortunately it is not something I can change or atleast not
for another 7 years.

Thank you for your help!
Jennifer

I have heard so many comments about how ppl regret their ablations. That hasn’t even been discussed with me, but just the thought if it scares me bc you are the first person who had any luck with it. I keep hearing about further issues that arise bc of the ablation. I don’t know if I could do it. This SVT is scary enough. Not sure I could handle more being added to it.
Does anyone get chest pains randomly (even when you don’t think your having an episode)?

I don’t know anyone who regrets their ablation. I had 5! The first 4 were for SVT and for a variety of reasons they couldn’t be completed… The 5th one (3 years ago) was a Pulmonary Vein Ablation and it was successful. If you trust your electrophysiologist ask to see his/her track record- how many ablations performed, how many repeats, how many failures. I ruined the record for mine!! But I am an anomaly. I had several rhythm problems and posed more challenges. There are risks for ablation but there are also risks for plastic surgery and people do that! There are also many different drugs you can try to keep it under control. Over the years the drugs just stopped working for me but for 20 years they did (I’m 66) I am very thankful that I stuck with it and finally won!

@colleenyoung

Hi @jennybell1,
Welcome to Connect. There’s an older discussion about tachycardia treatment here: https://connect.mayoclinic.org/discussion/flecainide-and-digoxin-drug-for-tachycardia/ If you post on the thread, you may be able to re-ignite the conversation with @laurenstedman, @topaz and @useless.

You may also be interested in connecting with @iboxx @lindabg52 and @alabamagma on this thread: https://connect.mayoclinic.org/discussion/i-have-a-recurrenting-event-in-which-my-blood-pressure-drops-to/

What are the next steps for you now that you’ve been diagnosed?

Colleen
Connect Community Director

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Jennifer,
I’ll be thinking of you on Feb 4. Please check back in about the ECHO and stress test and let us know how it went. I’m sure Martishka and GoneFishinMT will be interested too.

What’s the stress factor that you are committed to for another 7 years?

Liked by jennybell1

@colleenyoung

Hi @jennybell1,
Welcome to Connect. There’s an older discussion about tachycardia treatment here: https://connect.mayoclinic.org/discussion/flecainide-and-digoxin-drug-for-tachycardia/ If you post on the thread, you may be able to re-ignite the conversation with @laurenstedman, @topaz and @useless.

You may also be interested in connecting with @iboxx @lindabg52 and @alabamagma on this thread: https://connect.mayoclinic.org/discussion/i-have-a-recurrenting-event-in-which-my-blood-pressure-drops-to/

What are the next steps for you now that you’ve been diagnosed?

Colleen
Connect Community Director

Jump to this post

Hello,
I am unclear how this “reply” works. I was hoping to reply to Jennifer… The echo and stress test are protocol here as well. I have had several. And its a good thing – it just gives them more information about your heart. My sister is having an ablation next month in NYC. She has developed AFib and is having difficulty managing it.
It is a pretty common procedure and has a high success rate. Take care….

Liked by jennybell1

@colleenyoung

Hi @jennybell1,
Welcome to Connect. There’s an older discussion about tachycardia treatment here: https://connect.mayoclinic.org/discussion/flecainide-and-digoxin-drug-for-tachycardia/ If you post on the thread, you may be able to re-ignite the conversation with @laurenstedman, @topaz and @useless.

You may also be interested in connecting with @iboxx @lindabg52 and @alabamagma on this thread: https://connect.mayoclinic.org/discussion/i-have-a-recurrenting-event-in-which-my-blood-pressure-drops-to/

What are the next steps for you now that you’ve been diagnosed?

Colleen
Connect Community Director

Jump to this post

You got the reply “working” correctly @martishka. I agree it’s not the most intuitive. This is one of the items scheduled for improvement in the coming weeks.

Thank you for your help. I will hopefully have more answers after my tests next week. I do find the medication I am on currently helps so that provides some relief. Good luck to everyone!

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