I take 5mg Camzyos in the morning.

Posted by peggynurse @peggynurse, Jan 11 9:14am

curious when others take their dose. Thinking about maybe switching to the evening?

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

@illajb07

Hi,

I take mine at night also, When I started, I did morning because I wanted to be alert for any potential side effects. I transitioned to nights and have taking my dosage at night with no issues for 8+weeks now.

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thank you for your reply. That is great to hear. I also take a beta blocker and I’m trying to figure out if I should take that at night with the Camzyos or in the morning like I do now.

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@peggynurse

thank you for your reply. That is great to hear. I also take a beta blocker and I’m trying to figure out if I should take that at night with the Camzyos or in the morning like I do now.

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Here's an indirect or implied answer to your question about your beta blocker. Years before Camzyos, I was put on a beta blocker and then had to go off that and take a calcium channel blocker instead. I then started omeprazole as well, both of which I have always taken in the morning. Enter Camzyos and its interactions with omeprazole. As I've noted already, I was given the green light to continue with omeprazole along with Camzyos. In those discussions with my cardiologist and REM case manager, ALL of my medications were included. I was advised specifically to take Camzyos at night but to continue with the calcium channel blocker and omeprazole in the morning. I was subsequently put on a blood pressure med to be taken at night also. I know beta blockers and calcium channel blockers are not the same, but as I understand it, they are used for similar purposes. Hence - an indirect, or implied answer. Hope that is, if not actually helpful, food for thought.

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@boatsforlife

Here's an indirect or implied answer to your question about your beta blocker. Years before Camzyos, I was put on a beta blocker and then had to go off that and take a calcium channel blocker instead. I then started omeprazole as well, both of which I have always taken in the morning. Enter Camzyos and its interactions with omeprazole. As I've noted already, I was given the green light to continue with omeprazole along with Camzyos. In those discussions with my cardiologist and REM case manager, ALL of my medications were included. I was advised specifically to take Camzyos at night but to continue with the calcium channel blocker and omeprazole in the morning. I was subsequently put on a blood pressure med to be taken at night also. I know beta blockers and calcium channel blockers are not the same, but as I understand it, they are used for similar purposes. Hence - an indirect, or implied answer. Hope that is, if not actually helpful, food for thought.

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helpful- thanks

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In reply to @peggynurse "helpful- thanks" + (show)
@peggynurse

helpful- thanks

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thank you so much for the information. Very helpful. Just curious why they changed you from a beta blocker to a calcium channel blocker?
I’m just trying to find a way to get more energy and not be so fatigued all the time. Along with cardiomyopathy I also have my valve stenosis and regurgitation.

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@peggynurse

thank you so much for the information. Very helpful. Just curious why they changed you from a beta blocker to a calcium channel blocker?
I’m just trying to find a way to get more energy and not be so fatigued all the time. Along with cardiomyopathy I also have my valve stenosis and regurgitation.

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Hi again @peggynurse . I know I posted this somewhere on one of these discussion threads but for some reason I can't track it down, so I'll repeat it as much as I can and hope I don't contradict myself too badly - the exact details are about a decade old, and sometimes I wonder if I can remember last week reliably! I was still working when I went on metoprolol and almost immediately I was falling asleep at my desk, falling asleep while driving,.... It didn't matter how much sleep I got, after about 6 hours awake I would suddenly just drop off. I was lucky that I never did actually fall asleep while driving - I always managed to pull over before it hit. But I simply could not stay awake more than about 6 hours. I got moved from metoprolol to diltiazem and the problem went away within a very short time and has never come back. This was all while we were trying to track down what was actually ailing me, which turned out to have been oHCM. As the oHCM progressed I was getting more and more tired all the time. But that was ALWAYS "gosh I feel like I have just run a marathon" and NEVER "I'm so sleepy." The sleepiness on metoprolol was a complete anomaly. Neither the metoprolol nor the diltiazem had any apparent effect on my oHCM symptoms, but as soon as I went on Camzyos, EVERYTHING changed. Was it the Camzyos all by itself? Was it the combination of Camzyos and diltiazem? Don't know, and I am not inclined to start fooling around with things to try to find out! I am not experiencing ANY of the oHCM symptoms and I want to keep it that way. (I feel like one of those guys on TV who goes on and on about some new miracle drug - they should give me shares in the company or something.)

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@boatsforlife

Hi again @peggynurse . I know I posted this somewhere on one of these discussion threads but for some reason I can't track it down, so I'll repeat it as much as I can and hope I don't contradict myself too badly - the exact details are about a decade old, and sometimes I wonder if I can remember last week reliably! I was still working when I went on metoprolol and almost immediately I was falling asleep at my desk, falling asleep while driving,.... It didn't matter how much sleep I got, after about 6 hours awake I would suddenly just drop off. I was lucky that I never did actually fall asleep while driving - I always managed to pull over before it hit. But I simply could not stay awake more than about 6 hours. I got moved from metoprolol to diltiazem and the problem went away within a very short time and has never come back. This was all while we were trying to track down what was actually ailing me, which turned out to have been oHCM. As the oHCM progressed I was getting more and more tired all the time. But that was ALWAYS "gosh I feel like I have just run a marathon" and NEVER "I'm so sleepy." The sleepiness on metoprolol was a complete anomaly. Neither the metoprolol nor the diltiazem had any apparent effect on my oHCM symptoms, but as soon as I went on Camzyos, EVERYTHING changed. Was it the Camzyos all by itself? Was it the combination of Camzyos and diltiazem? Don't know, and I am not inclined to start fooling around with things to try to find out! I am not experiencing ANY of the oHCM symptoms and I want to keep it that way. (I feel like one of those guys on TV who goes on and on about some new miracle drug - they should give me shares in the company or something.)

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thank you sooooo much for all your helpful information, boatsforlife.
I’m going to talk with my cardiologist in early February.

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