Mitral valve repair

Posted by yoanne @yoanne, May 12, 2016

I just joined the mayo clinic connect and want to say hello.I had a mitral valve repair , 5 weeks ago,carried out in the heart center of the cologne university. they did it by a minithoracotomy at the right site (i.e. NO sternotomy). yesterday I had my first control by my own cardiologist.he was very impressed, an ablatio was also done.for the next three months I need a “bloodthinner”.what happens afterwards, I don’t know. I hope to find answers from other patients, how they will be treated after these 3 months.
I am dutch, but I have been living in Germany since 1970.

Hello @valvejob2018,

Welcome to Connect; we’re so glad to have you join us.
You may notice that I moved your message to this discussion about mitral valve repair; I did this so that you can meet others who’ve shared their experiences, and also read what members are discussing about valve surgery.

There are several conversations happening on Connect about mitral valve repair. Some people have opted for surgery, while others are monitoring their condition. You may also want to read:
https://connect.mayoclinic.org/discussion/i-was-just-diagnosised-with-mitral-valve-and-tricuspid-insufficiency-i-have/
https://connect.mayoclinic.org/discussion/jimana-79-year-old-male-caucasian-excellent-health-and-regular-exercise-with-history/

Besides the members in this discussion, I’d also like to connect you with @grandmajan @frande @mikelauriemh12 @topaz @sdann777 who’ve written about mitral valve issues.

@valvejob2018, what specific questions would you like to ask the Connect community? Do you have any suggestions or thoughts for members like @777darla who will be undergoing the same surgery soon? We sincerely look forward to getting to know you.

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@valvejob2018

Just had mitral valve repair surgery one week ago…..any tips?

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Hello
my surgery was 6 days ago in St Louis, MO., so we are about the same. I came home from the hospital Friday. Have not needed any pain medication except tylenol, and that is just preventive. The surgery follow-up nurse called this moring to see how I was doing and if I had gotten the new prescriptions filled- I hadn't. So Am working on that. Not anxious to have 4 more drugs but don't want a stroke either. The home health nurse is coming by later. They want more blood work and will check incisions. Tell me how you are doing.

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@valvejob2018

Just had mitral valve repair surgery one week ago…..any tips?

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Welcome to Connect, @memw. How are you doing? Did the home health nurse have any suggestions, that you may liked to share? Only if you wish, of course. We look forward to hearing from you.

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This is my 1st Post, so, I hope I do this correctly. I am about to have valve and maybe some CABG surgery, but, I don't have an understanding of who I can ask questions of to know why my surgeon was selected for me, as well as basic questions like how many similar surgeries my surgeon has done in the last 3 – 6 – 12 months…last 5 years and career. What results patients have had – I see no reviews anywhere. I suspect the elected surgeon is terrific, but, I have extreme concern that my asking questions will alienate me from the surgeon and staff. I have no interest in creating disharmony…it just seems like this sort of info should be made readily available so I don't have to ask the surgeon directly about his background…possibly create hard feelings, etc.. It seems to me the info should be presented by objective, statistical data or from a 3rd party or managment team. Help please. This info must be available somewhere – somehow without causing an upset.

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put in healthgrades it will tell you all about dr with reviews

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Thank you Darla..I did this already…the info at Healthgrades for my veteran surgeon has virtually no reviews…no historical info of substance…but, thanks for the tip. I am surprised the hospital, which is sooo awesome doesn't provide the info reflexively to each new patient. Mayo is top shelf…I am confident that all their surgeons are fabulous, which is why I made the decision to trust the Institution..but the lack of info about the surgeons baffels/frustrates me. Occassionally, one finds surgeons and hospitals marketing their services, and they speak of surgeons specifically having done 10,000 surgeries, etzc…stuff that's mind blowing…but, their hospitals as a whole have poor to average rankings. I wish the info was required to be provded by some licensing or State agencies, but, it is not.

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@johnjms

This is my 1st Post, so, I hope I do this correctly. I am about to have valve and maybe some CABG surgery, but, I don't have an understanding of who I can ask questions of to know why my surgeon was selected for me, as well as basic questions like how many similar surgeries my surgeon has done in the last 3 – 6 – 12 months…last 5 years and career. What results patients have had – I see no reviews anywhere. I suspect the elected surgeon is terrific, but, I have extreme concern that my asking questions will alienate me from the surgeon and staff. I have no interest in creating disharmony…it just seems like this sort of info should be made readily available so I don't have to ask the surgeon directly about his background…possibly create hard feelings, etc.. It seems to me the info should be presented by objective, statistical data or from a 3rd party or managment team. Help please. This info must be available somewhere – somehow without causing an upset.

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Welcome to Connect, @johnjms. Preparing for surgery can be so stressful and overwhelming! There's never such thing as too many questions, and educating yourself is one of the best ways to eliminate any anxiety and empower yourself as a patient. The surgeons/doctors/nurses are are there to guide you before, during and after surgery, so please ask your doctor everything that's on your mind until you feel that you understand the whole procedure.

Here are some resources:
– Information from Mayo Clinic about questions to ask your cardiovascular doctor: https://www.mayoclinic.org/diseases-conditions/mitral-valve-regurgitation/diagnosis-treatment/drc-20350183
– Two recommended public search tools that offer patients information about surgeons' previous patient outcomes are SurgeonRatings.org https://www.checkbook.org/surgeonratings/ and Surgeon Scorecard https://projects.propublica.org/surgeons/

One of the indicators of a surgeon's expertise is certification by the American Board of Surgery and active membership in the professional surgical society of their specialty. The American College of Surgeon's website offers a list of professional societies. You may also contact these societies directly for additional information: https://www.facs.org/surgeons/surgical-specialty-societies

I think Mentors @hopeful33250 @predictable might have some thoughts to share with you as they are also familiar with heart issues. I encourage you to also view this discussion on Connect, https://connect.mayoclinic.org/discussion/bypass-surgery/ where you will meet @tkdunlap @vermontrob @suzy51 and others who've shared their experiences about bypass surgery.

@johnjms, what are your top concerns? Have you asked your cardiologist for recommendations and insights?

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Had the same thing done about 18 months ago. (MV repair through mini thoracotomy) They had me on Eliquis (blood thinner) for 3 months and then just stopped it. Had another Echo at 3 and 6 months and then again at a year. Found out my repair fell apart and am now recovering from open heart surgery with a mitral repair. The drs never told me that it the valve was already bad at the 3 & 6 month echos so pay attention and get copies of your op report, and follow up echos! I learned a hard lesson!

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@rd4610

Had the same thing done about 18 months ago. (MV repair through mini thoracotomy) They had me on Eliquis (blood thinner) for 3 months and then just stopped it. Had another Echo at 3 and 6 months and then again at a year. Found out my repair fell apart and am now recovering from open heart surgery with a mitral repair. The drs never told me that it the valve was already bad at the 3 & 6 month echos so pay attention and get copies of your op report, and follow up echos! I learned a hard lesson!

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Am so sorry that happened to you @rd4610. How are you now? I'm 3 weeks post-op and have the 1st post surgery visit with Dr scheduled on the 21st of March. Am still waiting for a surge of energy. Can barely make it through required daily routines without having to sit /lay down to catch my breath. Spring is emerging and I want to get out and work in the yard. Then there's the problem of pain from osteoarthritis and spinal stenosis; and I am not supposed to take the antiinflammatory drug, diclofinac, that I had been taking to control that pain. The home health nurse makes it sound like I should be walking a mile a day. My friend is taking me to the library today. I hope I can make it in and out of there without collapsing; but there are overdue books and I need new books. At least I can read. March Madness is also helping keep me occupied; especially with the Missouri Tigers looking strong at the end of the season.

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@rd4610

Had the same thing done about 18 months ago. (MV repair through mini thoracotomy) They had me on Eliquis (blood thinner) for 3 months and then just stopped it. Had another Echo at 3 and 6 months and then again at a year. Found out my repair fell apart and am now recovering from open heart surgery with a mitral repair. The drs never told me that it the valve was already bad at the 3 & 6 month echos so pay attention and get copies of your op report, and follow up echos! I learned a hard lesson!

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I am about 2 1/4 weeks post op and doing pretty great! Did you have the thoracotomy or sternotomy? And a repair or replacement? I found the "Mini" Thoracotomy for the repair was way worse that this time have a full sternotomy and replacement. The repair took me about 3 months before I started being out of pain and almost back to normal at 6 months. Take a pain med before you go out!
There are hours of the day I have discomfort at all…amazing! Yesterday I felt great and went out with my husband. I stayed out about 1 hour too long! Needed a pain pill badly when I got home!!! My post surgery appt is March 19th!!! Close to yours!! Let me know what your dr says.

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My biggest complaint is shortness of breath. Do you have a problem with that? It could be my lungs. I had polio when I was 4 and histoplasmosis in early teens, both of those have been associated with adult organ impairment. Prior to valve surgery, I had a breathing test along with all the heart tests; and today I will see my primary care physician to go over the results of that. I am only using Tylenol for pain medication. BTY, I had a mini thoracotomy. Am looking forward to getting off the blood thinner, jantoven(at 3 pills/6mg every night because my blood doesn't want to thin up). Have had to alter my healthy diet to a high protien diet (mostly meat) due to restrictions on high vitamin K foods.

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Thanks for your reply! I did have shortness of breath before surgery but they started me on Lasix and that helped! Hope you have a quick recovery!!! Good luck getting the blood levels correct..always a fun task!!! Sometimes it takes a awhile for them to figure out. All the best to you!

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@rd4610

Had the same thing done about 18 months ago. (MV repair through mini thoracotomy) They had me on Eliquis (blood thinner) for 3 months and then just stopped it. Had another Echo at 3 and 6 months and then again at a year. Found out my repair fell apart and am now recovering from open heart surgery with a mitral repair. The drs never told me that it the valve was already bad at the 3 & 6 month echos so pay attention and get copies of your op report, and follow up echos! I learned a hard lesson!

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Was your surgery at Mayo Rochestet? Who were your surgeons?

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