Cerebral Small Vessel Disease - How are you coping?

Hi,
I find it remarkable that mostly it is the left leg that is problematic with a lot of people. I get intense migrains in the right rear of the brain which I believe is the motor control part of the brain. I'm not sure this has anything to do with anything, but it is just another symptom unexplained. Possibly CSVD is more advanced in some areas of the brain than others. I wonder if it relates to being right footed or left footed. I happen to be right footed. Just when I think I have a handle on my situation I'm forced to review my plight with yet another twist. The only end I see for me is to try and ignore it all, until I am no more.
Cheers

I also have worsening CSVD. My doctor sent me for vestibular therapy. I think it helped and I continue to do the recommended home exercises. It's not a magic bullet but every little bit help.

I was put on antiepileptic meds. They caused severe balance issues dizziness. I felt misdiagnosed. I got off of it. I’am less and less dizzy all the time I’m hopeful that scared to try riding a bike again I go up and downstairs a lot during the day that seems to help build up my muscles. I think it’s really important to if you can afford therapy to go to therapy.

Yes unfortunately I have a week left side and one or two of my do. my mother had a weak side and she had this also.
Her nurse constantly told her to lift her leg higher when walking.

Hi,
I wonder if the left suffers more with right footed people, the right being the dominant foot is used to leading. I find my left leg is instructed to step following the right, but occasionally it doesn't happen. The instructions seems to be lost between the brain and muscles doing the work. At 73 the brain has learnt to check the left has taken the step before taking the right step and I notice I concentrate more on walking than ever before. I'm able to hang up my walking sticks for the moment with my new ability to react quick enough to catch myself and just stumble a little.
Cheers

Hi, Debbie,
I'm wondering if you found more information about CSVD? I had an ischemic stroke in 2022 (I'm 74 now) and that was when I was told I have CSVD. I'd never heard of it before the stroke. Seems many of the people in this group who have that are experiencing the same symptoms I am, which I thought were from the stroke. Interested for any replies.

Hi, @g1315 - tagging a few members who may have more information to share with you on cerebral small vessel disease such as
@cheyne @tcainaru @dle25 @red79.

Which symptoms are bothering you most, g1315? Has anything helped with them?

My balance is off and feel weak. Also lightheadedness, these are the main issues. What symptoms do you have?

Thank you for tagging others. My symptoms are mostly my balance and my head feels very heavy at times, which is quite scary when going down my stairs. I stop and get myself stable before I take another step. I've started balance exercises again, and I'm thinking about getting a treadmill now that it's getting so warm outside.
I thought symptoms were post-stroke, but after 3 years, I wondered if it's more CSVD instead of post-stroke.

Those are mine as well. And often my head feels very heavy, as if it's too heavy for my neck, which throws my balance off even more.
My opthalmologist mentioned astygmatism, and adjust my lenses for that, only it made it worse. I'll be returning for another attempt.