1. < Stroke & Cerebrovascular Diseases

I have Cerebral Small Vessel Disease: How are you coping?

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and it is so much easier to do that. The sad part is I don't really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

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red79 | @red79 | Mar 29 6:42am

Hi sue 60 I've also got small vessel disease of the brain,stay strong sue60

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red79 | @red79 | Mar 30 1:44pm
In reply to @sally12345 "Hi, I was diagnosed with csvd 3 years ago. I had an episode of off balance,..." + (show)
@sally12345

Hi, I was diagnosed with csvd 3 years ago. I had an episode of off balance, dizziness, lose of bladder a nd bowel, heavy sweating, diagnosed with having had a stroke. I feel at this point it's effected my everyday life. At the time I was shocked with it...but now, I am tired, lack of energy, off balance, very sore eyes as well now. Also heart palpitations ...I think it's worsening...At the 3 rdyear point. Up to last year I was walking 35 miles a week. Chopped a nd stacked my own wood.. Now I am weak...it's frightening. How do you keep going with this.

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Hi Sally 12345,I'm 45 and my eye sight change so now have 1 pair glasses 4 TV , reading,then my other pair 4 outside 4 distance,I was told I was lucky to get to 45 years old with out glasses.

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