1. < Stroke & Cerebrovascular Diseases

I have Cerebral Small Vessel Disease - so far caused loss of balance

Posted by sue60 @sue60, Apr 11, 2016

I have vascular small vessel disease that so far just has caused a severe loss of balance. I walk with a cane, but it is getting harder. Likewise exercise is not easy. I still drive short distances. I feel perfectly normal lying down and it is so much easier to do that. The sad part is I don't really see anything that is going to end this as otherwise I am healthy. I know there are many worse things. Does anyone else have this and how are you coping?

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tc1945 | @tcainaru | 10 hours ago
In reply to @dle25 "I too have been diagnosed with CSVD and would love to get more information and discussion..." + (show)
@dle25

I too have been diagnosed with CSVD and would love to get more information and discussion regarding the disease and symptoms. I was diagnosed August 2024 at moderate level. Since then I have been miserable with brain fog, balance headaches and so very fatigued. About all I do well is sleep. I’d be interested to know what symptoms others are experiencing, at what levels, and anything more about CSVD. THANKS, Debbie

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Hi, I am a 72 year old diabetic. I have moderate CSVD. Noticed the past couple of years my balance and energy are bad, but have had insomnia the last couple of years. I had to stop working because of the symptoms. Walking is changed too. It's hard for me to distinguish if what i feel sometimes is from diabetes or CSVD? I am also interested on what others have.

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dle25 | @dle25 | 5 hours ago
In reply to @tcainaru "Hi, I am a 72 year old diabetic. I have moderate CSVD. Noticed the past couple..." + (show)
@tcainaru

Hi, I am a 72 year old diabetic. I have moderate CSVD. Noticed the past couple of years my balance and energy are bad, but have had insomnia the last couple of years. I had to stop working because of the symptoms. Walking is changed too. It's hard for me to distinguish if what i feel sometimes is from diabetes or CSVD? I am also interested on what others have.

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Hi, I am 68, I too was diagnosed at the moderate level. I keep as busy as possible, however watch a lot of tv. Anything I do I am always fighting thru pain in my legs or worried about the dizzy thing, all very tiring. So I do a chore, sit down and repeat that all day. I drive as little as possible. I have two wonderful old dogs that are my life line they keep me going everyday. What do you find to do that is enjoyable?

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1 reply
tc1945 | @tcainaru | 4 hours ago
In reply to @dle25 "Hi, I am 68, I too was diagnosed at the moderate level. I keep as busy..." + (show)
@dle25

Hi, I am 68, I too was diagnosed at the moderate level. I keep as busy as possible, however watch a lot of tv. Anything I do I am always fighting thru pain in my legs or worried about the dizzy thing, all very tiring. So I do a chore, sit down and repeat that all day. I drive as little as possible. I have two wonderful old dogs that are my life line they keep me going everyday. What do you find to do that is enjoyable?

Jump to this post

I ride my bike to try to get exercise. I do not get dizzy, but do experience light headefness. What i have been told by the neurogist is that many older people have CSVD. That almost 100 percent of people over 90 have it. Has affected my energy also, but get this weak feeling that last couple of years.

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