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Posts: 172
Joined: Jan 26, 2012

I have lived with several stages of epilepsy throughout my nearly 74

Posted by @irvkay312, Dec 13, 2012

I have lived with several stages of epilepsy throughout my nearly 74 years of life, due to an injury at birth with forceps which caused pressure on the brain and the conscensus by doctors that “I wouldn’t live to be seven or would be in a mental institution.”
Fortunately, I learned about epilepsy and how to live with it “so as to begin school in the last six weeks of the the third grade. From there I continued and moved on with my life after continually studying my condition.
Later I married, raised a family, moved from California to Minnesota where I presently reside. I worked for 31 1/2 years at Honeywell, as well as served as their Corporate Representative to The Employer Committee of The President’s Committee on Employment of People with Disabilities (when the ADA was new) teaching business and industry how to abide by the ADA (3 1/2 years), Minnesota Disability Council, Minneapolis Disability Council, Crystal and New Hope City Human Rights Commissions, as well as chaired New Hope’s Human Rights Commission.
I retired from work after brain tubers were seen per MRI on brain.
Then in 2009, I was diagnosed with Islet Cell Cancer of the Pancreas. I’ve undergone 28 radiation treatments, two cycles of Adriamyacin and Streptozocin, 12 cycles of Sutent and 2 cycles of Afinitor.
Living alone and without a family since 1985, “today I almost feel that life is no longer worth living; since I have to try and balance the neurological and migraine headache items in conjuction with the damage my neurological and cancer medicines have done over time.


Teresa, Volunteer Mentor

Posts: 2624
Joined: Mar 28, 2016
Posted by @hopeful33250, Mar 28, 2016

Dear Kay: Thank you for sharing your story with me. Without a doubt, you are a very courageous woman. You are in my thoughts and prayers. Please keep me posted.

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