Pain control with Lewy body dementia

Hello @anthonyvw1940 and welcome to Mayo Clinic Connect. I'm so sorry about your LO. I was able to find some information that may be helpful below.

"If possible, avoid medications with anticholinergic properties, which can worsen cognition, or dopamine agonists, which can cause hallucinations. First-generation antipsychotic medications, such as haloperidol (Haldol), should not be used to treat Lewy body dementia."
- Medications - Lewy Body Dementia Resource Center: https://lewybodyresourcecenter.org/what-is-lbd/treatment-important-information/medications/

- LBD Video Series: Todd Graham, LBDA: https://connect.mayoclinic.org/blog/dementia-hub/newsfeed-post/lewy-body-dementia-a-video-series-todd-graham/

Can I ask what you've been giving your LO to help with the pain and/or what was initially recommended by your neurologist?

Parkinson’s doctor said it part of the

Parkinson’s it been 6 years I don’t walk cause by Parkinson’s the doctor said to my husband get here a well chair she will never walk again and it true

We are being challenged getting the treatment we need and getting an MRI done. He continues to live with a great deal of pain. We are currently rotating extra strength Tylenol, 650 Mg Tylenol and Aleve. We started him on Tramadol once a day yesterday.

@anthonyvw1940
lilyann here, my husband is in constant pain and takes tramadol. now it barely helps him and only takes the edges off the pain. if i remember correctly from my past reading that it messes with the dopamine that you already have. so it is then confusing when they give you a medicine that puts the dopamine back in the brain. maybe someone can help explain that for me. he has all the symptoms of parkinson's but has not been given a definitive answer. having severe back pain, it hurts to walk or do anything but of course you know what they say: motion is the potion. wishing the best for everyone

@andreesparrow

lilyann here, i am hoping your not wheel chair bound. prove the dr. wrong.