1. < MAC & Bronchiectasis

I detect a smell even when it isn't present

Posted by becleartoday @becleartoday, Apr 13, 2022

I seem to have a condition called phantosmia. I will get a whiff of a strong smell---cleaning products, cigarette smoke, perfume and then for days will continue to smell it even though it isn't present. So odd! So annoying! I have MAC and bronchiectasis. Wondering whether anyone else has this strange condition.

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cmb1 | @cmb1 | Apr 25, 2022
In reply to @cmb1 "Hi Judy. I am being treated in NO through Ochsner. Due to wanting an appt ASAP..." + (show)
@cmb1

Hi Judy. I am being treated in NO through Ochsner. Due to wanting an appt ASAP after CT results, I went to a Westbank pulmonologist that could see me sooner. Then I saw an older doctor on the Eastbank . I can give you the names on separate text. One was set on it being MAC by sight and showed me details of CT followed by a few tests; the WB doc was a little less sure and ordered a second sputum test in case first lab was contaminated. I think this is common. He seemed a little more easy to follow through better. A little confusing as both docs have different methods. I am researching for a MAC specialist now. There are a few to choose from just in case next test is also MAC positive. For 69, I am surprised about all of this as I am not very short of breath. How is your breathing going now?? It sounds like your sputum tests have been more comprehensive than mine. Like to find out who your doctor was too and wondering if you have seen a pulmonary doc. I had bloodwork done that showed my immune system was low and am receiving some therapy for that. I think the next step is an infectious disease doctor as the immune specialist said they were good if you undergo triple antibiotic therapy for MAC. Hope you are back on your feet after the pneumonia. Thanks for reaching out.

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Hi Judy. What an aweful start time 2022. I sent a message with Dr info that looks like you did not get. I sent it to an e-mail address. I will see how to maybe get it through another way and get back to you soon. Thanks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 25, 2022
In reply to @cmb1 "Hi Judy. What an aweful start time 2022. I sent a message with Dr info that..." + (show)
@cmb1

Hi Judy. What an aweful start time 2022. I sent a message with Dr info that looks like you did not get. I sent it to an e-mail address. I will see how to maybe get it through another way and get back to you soon. Thanks.

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CMB, you can use the secure private message function to exchange personal contact information. To private message a member, click their @username and then select Send Private Message.

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cmb1 | @cmb1 | Apr 25, 2022
In reply to @colleenyoung "CMB, you can use the secure private message function to exchange personal contact information. To private..." + (show)
@colleenyoung

CMB, you can use the secure private message function to exchange personal contact information. To private message a member, click their @username and then select Send Private Message.

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Thanks so much!

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cmb1 | @cmb1 | Apr 26, 2022
In reply to @egayle187 "@cmb1 ... Sorry to hear that you have difficulty coughing up mucous without causing pain in..." + (show)
@egayle187

@cmb1 ... Sorry to hear that you have difficulty coughing up mucous without causing pain in your head and eyes. I have found that lying down for postural drainage with my head cushioned helps. There are also head bands for headache sufferes that might give you some relief, but changing position and supporting head all around if necessary would be my first suggestion. I found that zinc supplement helps with GERD treatment to decrease the airway sensitivity. Be good to yourself and find some comfort.

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Thank you Gayle for your response. I will try your advice and the Zinc. Here is to better health in the days ahead!

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