I am so damn tired

Posted by emhottch @emhottch, Jan 19 8:40pm

Despite anxiety and rapid heart rate all I want to do is sleep. I have so much trouble waking up. Anyone else?? One month post COVID

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To be honest I don't think we ever will recover completely. This is our lives now. What really bothers me is some days I feel sorta okay, others I sleep all day.

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@katey122

To be honest I don't think we ever will recover completely. This is our lives now. What really bothers me is some days I feel sorta okay, others I sleep all day.

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Ditto. This is why I finally reached out to find others who know what I'm saying, what's happening to me.
Five of us got it from being in the same room as a neighbor, getting her ready to go to the ER cuz her doc was tiring of her hypochondriac behavior. Nobody else got as sick as I did. She made a comment to a room full of people on Monday that nobody got very sick. Said it twice. I wanted to jump across the table and give her a head slap!!

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@jitter2u

I’m in my 4th year of long COVID. I’m exhausted all the time. I miss my old life so much! I was an avid hiker, and now walking a mile or so exhausts me. At this point I feel like I’m never going to recover and be myself again. I’m sure many of you can relate.

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Maybe try getting on a regular walking schedule and just start out with maybe a half'mile walk for awhile (a,few weeks to a couple months) and then start going a little further on your walks and do that distance for a month or 2, and see if you are gaining strength and endurance. Worth a try...Good Luck!

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@cindisue

Maybe try getting on a regular walking schedule and just start out with maybe a half'mile walk for awhile (a,few weeks to a couple months) and then start going a little further on your walks and do that distance for a month or 2, and see if you are gaining strength and endurance. Worth a try...Good Luck!

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That's exactly what my doctors told me too! I was doing that, but then the fatigue got so bad. I'm going to start pacing again. Thank you!

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@jitter2u

I’m in my 4th year of long COVID. I’m exhausted all the time. I miss my old life so much! I was an avid hiker, and now walking a mile or so exhausts me. At this point I feel like I’m never going to recover and be myself again. I’m sure many of you can relate.

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I do have a doctor at a Post-COVID Unit that helped me with pacing. Long COVID is cyclical though-some days are better than others.

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@jitter2u

I do have a doctor at a Post-COVID Unit that helped me with pacing. Long COVID is cyclical though-some days are better than others.

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Thanks. I see my doc in a few days to discuss symptoms, of which there are quite a few. Too soon to diagnose Long Covid but just in time to find ideas for relief.

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I had COVID in the very beginning. I have had Long COVID for years. I am no longer referring to myself as "sick" but as having "disabilities". The change in mindset has helped me to have positive days. I still hurt, I still fall, I still struggle to eat, etc. Yesterday, I made bread in a bread machine. My house smelled good and when all else fails I can eat a small piece of bread. The first thing I keep telling myself is that I am happy I am alive. I am finding simpler things that make me happy. I am no longer worried about what I eat but that I can eat something and sometimes even enjoy it. Of all the cruel ironies, I have a hate relationship with food and barely eat but am now the heaviest I have ever been. I have finally started asking myself is it to better to be thin and fit or to be alive. The alive thing keeps working for me. I have a grandson, I want to be a part of his life even if it is not the way it was before. Who thought at 53 my 6 year old grandson would be watching me like a hawk to make sure I don't fall and thinking of very good ideas of how he can play and I can participate for as long as possible. I had a really, really, really hard time getting to this point. I wish everyone well with finding their path to as good a mental state as they can find. This is a very nasty outcome from having COVID. With that said I am a survivor and to survive I had to stop thinking of who I was but who I am now and trying to be the best new me I can be. I also find it helps to take things one day at a time when my body is feels its most beaten and battered. For reference -Pre - COVID I craved and ate healthy food, I walked miles and miles, I played with my grandson, I went 90 miles an hour at work and with the rest of my life. My new life is very different but I am alive and surviving day by day. Find things that make you smile, listen to happy music, anything to help uplift you. My happy outlook at life is new too! I was drowning in symptoms, anxiety and depression. I hear everyone whose post I read and I do know how hard this is. I am praying for all of us!

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@smdawson540

I had COVID in the very beginning. I have had Long COVID for years. I am no longer referring to myself as "sick" but as having "disabilities". The change in mindset has helped me to have positive days. I still hurt, I still fall, I still struggle to eat, etc. Yesterday, I made bread in a bread machine. My house smelled good and when all else fails I can eat a small piece of bread. The first thing I keep telling myself is that I am happy I am alive. I am finding simpler things that make me happy. I am no longer worried about what I eat but that I can eat something and sometimes even enjoy it. Of all the cruel ironies, I have a hate relationship with food and barely eat but am now the heaviest I have ever been. I have finally started asking myself is it to better to be thin and fit or to be alive. The alive thing keeps working for me. I have a grandson, I want to be a part of his life even if it is not the way it was before. Who thought at 53 my 6 year old grandson would be watching me like a hawk to make sure I don't fall and thinking of very good ideas of how he can play and I can participate for as long as possible. I had a really, really, really hard time getting to this point. I wish everyone well with finding their path to as good a mental state as they can find. This is a very nasty outcome from having COVID. With that said I am a survivor and to survive I had to stop thinking of who I was but who I am now and trying to be the best new me I can be. I also find it helps to take things one day at a time when my body is feels its most beaten and battered. For reference -Pre - COVID I craved and ate healthy food, I walked miles and miles, I played with my grandson, I went 90 miles an hour at work and with the rest of my life. My new life is very different but I am alive and surviving day by day. Find things that make you smile, listen to happy music, anything to help uplift you. My happy outlook at life is new too! I was drowning in symptoms, anxiety and depression. I hear everyone whose post I read and I do know how hard this is. I am praying for all of us!

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So sorry you've been sick so long but you did such an amazing thing, with adjusting your attitude. Tough to do.

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@smdawson540

Sadly extreme exhaustion is part of Long COVID. To manage it, I take low dose naltrexone that helps me have deep sleep when I can sleep. I also limit my activity. I do no more than 20 minutes at a time. When I say activity, it could be washing dishes, doing laundry, cooking if I can stand the smell and actually crave food. The more you push, the more your body will fall apart. I tried pushing through this for a long time. I just ended up bedridden and miserable for days. It does really help to limit your activity. Good luck. I am sorry, you are going through this.

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Did the LDN make you have night sweats? I’ve been taking it and I wake up drenched.

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I was already having night sweats due to menopause or maybe even due to Long COVID or both. They did not get better or worse with taking LDN. But I can tell a difference in that having some deep sleep makes a difference in my exhaustion level. I am still tired, just not always as tired.

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