I am so damn tired

To be honest I don't think we ever will recover completely. This is our lives now. What really bothers me is some days I feel sorta okay, others I sleep all day.

Ditto. This is why I finally reached out to find others who know what I'm saying, what's happening to me.
Five of us got it from being in the same room as a neighbor, getting her ready to go to the ER cuz her doc was tiring of her hypochondriac behavior. Nobody else got as sick as I did. She made a comment to a room full of people on Monday that nobody got very sick. Said it twice. I wanted to jump across the table and give her a head slap!!

Maybe try getting on a regular walking schedule and just start out with maybe a half'mile walk for awhile (a,few weeks to a couple months) and then start going a little further on your walks and do that distance for a month or 2, and see if you are gaining strength and endurance. Worth a try...Good Luck!

That's exactly what my doctors told me too! I was doing that, but then the fatigue got so bad. I'm going to start pacing again. Thank you!

I do have a doctor at a Post-COVID Unit that helped me with pacing. Long COVID is cyclical though-some days are better than others.

Thanks. I see my doc in a few days to discuss symptoms, of which there are quite a few. Too soon to diagnose Long Covid but just in time to find ideas for relief.

I had COVID in the very beginning. I have had Long COVID for years. I am no longer referring to myself as "sick" but as having "disabilities". The change in mindset has helped me to have positive days. I still hurt, I still fall, I still struggle to eat, etc. Yesterday, I made bread in a bread machine. My house smelled good and when all else fails I can eat a small piece of bread. The first thing I keep telling myself is that I am happy I am alive. I am finding simpler things that make me happy. I am no longer worried about what I eat but that I can eat something and sometimes even enjoy it. Of all the cruel ironies, I have a hate relationship with food and barely eat but am now the heaviest I have ever been. I have finally started asking myself is it to better to be thin and fit or to be alive. The alive thing keeps working for me. I have a grandson, I want to be a part of his life even if it is not the way it was before. Who thought at 53 my 6 year old grandson would be watching me like a hawk to make sure I don't fall and thinking of very good ideas of how he can play and I can participate for as long as possible. I had a really, really, really hard time getting to this point. I wish everyone well with finding their path to as good a mental state as they can find. This is a very nasty outcome from having COVID. With that said I am a survivor and to survive I had to stop thinking of who I was but who I am now and trying to be the best new me I can be. I also find it helps to take things one day at a time when my body is feels its most beaten and battered. For reference -Pre - COVID I craved and ate healthy food, I walked miles and miles, I played with my grandson, I went 90 miles an hour at work and with the rest of my life. My new life is very different but I am alive and surviving day by day. Find things that make you smile, listen to happy music, anything to help uplift you. My happy outlook at life is new too! I was drowning in symptoms, anxiety and depression. I hear everyone whose post I read and I do know how hard this is. I am praying for all of us!

So sorry you've been sick so long but you did such an amazing thing, with adjusting your attitude. Tough to do.

Did the LDN make you have night sweats? I’ve been taking it and I wake up drenched.

I was already having night sweats due to menopause or maybe even due to Long COVID or both. They did not get better or worse with taking LDN. But I can tell a difference in that having some deep sleep makes a difference in my exhaustion level. I am still tired, just not always as tired.