I AM NOT A LOVED ONE, and I'm not alone

Posted by jlam1950 @jlam1950, May 5, 2025

I'd really like to see a change in the terminology. At 74 with a new diagnosis and dementia, without any family or friends left and still driving, I find it difficult to get information on how to manage on my own, make plans. But the hardest immediate barrier is that all the materials seem to be for caregivers and address patients as the loved one. I am not anyone's loved one and initially it's hurts to have to explain that to people, especially medical professionals.
I'd be interested in how others have addressed this. I don't have the energy to be educating people. I'm angry, sad, grieving at this devastating diagnosis. But these are not symptoms of dementia, these are human reactions to a horrible diagnosis.

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Profile picture for foundryrat743 @foundryrat743

That is so wonderful, that your pastor would take the time to stop by your house, and offer to give Holy Communion, and talk with you! I used to so enjoy visitations, and helping people! Now that I have limited mobility etc. because of Parkinson’s advancing, I am not able to attend church every week. Unfortunately, the Pastor and his team, of the church we attend, have not reached out to come and pray and visit with us, in our home. We moved to a different city from where I had my lay ministry, in my younger years. I sometimes feel like I’m just another forgotten old man, who visits the church. Oh well! Wishing you the best!

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Have you reached out to the pastor directly? I can’t imagine he would say no to coming to your house.

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