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I AM NOT A LOVED ONE, and I'm not alone
I'd really like to see a change in the terminology. At 74 with a new diagnosis and dementia, without any family or friends left and still driving, I find it difficult to get information on how to manage on my own, make plans. But the hardest immediate barrier is that all the materials seem to be for caregivers and address patients as the loved one. I am not anyone's loved one and initially it's hurts to have to explain that to people, especially medical professionals.
I'd be interested in how others have addressed this. I don't have the energy to be educating people. I'm angry, sad, grieving at this devastating diagnosis. But these are not symptoms of dementia, these are human reactions to a horrible diagnosis.
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That is so wonderful, that your pastor would take the time to stop by your house, and offer to give Holy Communion, and talk with you! I used to so enjoy visitations, and helping people! Now that I have limited mobility etc. because of Parkinson’s advancing, I am not able to attend church every week. Unfortunately, the Pastor and his team, of the church we attend, have not reached out to come and pray and visit with us, in our home. We moved to a different city from where I had my lay ministry, in my younger years. I sometimes feel like I’m just another forgotten old man, who visits the church. Oh well! Wishing you the best!
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2 ReactionsI'm no longer able to drive, and have not felt well enough to go to church in a great while. Have you considered reaching out, calling the church office, letting the Pastor/and or his team/ know that you are not well and would appreciate a home visit to pray with you? OR Since you are able to attend church some, consider telling your Pastor that you have health issues, and that you'd like him to come to your home to have a coffee and pray with you. Another possibility--consider asking him if there are any other members who have an illness, who might appreciate calls from you, and a Pastor's visit to them. YOUR effort might be the start of something that can benefit you and others others as well. ALL BLESSINGS! GOD IS EVER NEAR!
YOU ARE LOVED BY GOD!!!!
DOESNT ANYONE ACTUALLY READ POSTS?
THIS IS NOT YOUR SOAPBOX.
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1 ReactionHi Susan
I’m sorry to hear you have Dementia. I fear now I may have it as well and scheduled an appointment to see my doctor on the May 30th. I’m 64 male and been having memory issues with twitching in my muscles and mood swings. Tell the truth I am terrified.
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2 ReactionsThank you for the hug Buttercup
@jlam1950
I am reading comments from people helping people. Most of the comments, from what I can tell have not been specifically directed to you, and your situation. That happens all the time.
As you mentioned in your first post, you are angry, sad and grieving.
Me too. I have dementia, live alone and I’m going to have to sell my home and all my beloved possessions.
You and I could form a club…the sad, grieving, cranky, misty eyed, poor me, what’s next Club.
I need time and space to plan for tomorrow. Who knows where I will be tomorrow or next week. I try to smile, put on my “mask” so I appear “normal” to others. But, it’s exhausting.
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6 ReactionsWhat exactly do you mean by using the word “soapbox”?
@foundryrat743 my opinion. He is not hearing answers to his original post.
The posts, as usual, takes twists and turns around and off course sometimes.
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1 ReactionThank You!