Husband diagnosed last April. He recently is beginning to understand

Posted by blisst @blisst, 1 day ago

What it means. Up until now he seemed to be unfazed by being diagnosed with Alzheimer’s. (Both his parents had dementia so he does understand what happened with them.) Recently he has been very saddened by it. He is crying about leaving me (when the inevitable happens). I cry too as I don’t want to lose him. I try to reassure him that we don’t know how everything will play out, he could live for years (he has asked how long he has, I tried to tell him no one really knows as we are all different). How can I help him face this? How do I face this?

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@blisst
Hello:
Have you called the Alzheimer Association's 24/7 hotline? I believe they may have a support group suggestion, not just for you the caregiver, but also a group specifically for those with Alzheimers, so he can get support from folks going through exactly what he's experiencing.
All the best to you. 🌺

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With my husband's dementia, (we are in our 4th year now) I believe that a warm hug, saying "I love you", "you are the best thing that ever happened to me", a smile, a little back rub go a long way to support him. I remind him of all the wonderful things we have done together over our 45 year marriage. I take out one of the scrap books that I have put together over the years to remind him of what a great life we had together. Sometimes he remembers, sometimes not. I tell him frequently that whatever problems he faces, he is not alone. No one knows how the dementia journey will unfold. True of life in general. I reassure him that we will face whatever the future brings together, that we have been and will continue to be partners for the rest of our lives.
I know that as dementia progresses the ability to communicate effectively verbally gradually diminishes but I think that the emotional need for reassuring physical touch never diminishes and is sometimes the only way left to communicate with a person with dementia. The ability to read your body language and tone of voice lingers long after verbal communication is lost. I think it is important to validate his feelings, and ask what you could do that might help him feel better. I have received so much support on this website. I encourage you to keep posting what you are going through. There are so many caring people on this site that generously share their experience of how they have learned to cope with this awful disease. Also educate yourself about dementia, how the various types often present, how to have a positive approach to caregiving. I heartily recommend Teepa Snow's Positive Approach to Caregiving website where you can see what classes are available live online. I took the Champion series and learned so much. "Knowledge is Power" God bless you and your husband.

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Profile picture for ocdogmom @ocdogmom

With my husband's dementia, (we are in our 4th year now) I believe that a warm hug, saying "I love you", "you are the best thing that ever happened to me", a smile, a little back rub go a long way to support him. I remind him of all the wonderful things we have done together over our 45 year marriage. I take out one of the scrap books that I have put together over the years to remind him of what a great life we had together. Sometimes he remembers, sometimes not. I tell him frequently that whatever problems he faces, he is not alone. No one knows how the dementia journey will unfold. True of life in general. I reassure him that we will face whatever the future brings together, that we have been and will continue to be partners for the rest of our lives.
I know that as dementia progresses the ability to communicate effectively verbally gradually diminishes but I think that the emotional need for reassuring physical touch never diminishes and is sometimes the only way left to communicate with a person with dementia. The ability to read your body language and tone of voice lingers long after verbal communication is lost. I think it is important to validate his feelings, and ask what you could do that might help him feel better. I have received so much support on this website. I encourage you to keep posting what you are going through. There are so many caring people on this site that generously share their experience of how they have learned to cope with this awful disease. Also educate yourself about dementia, how the various types often present, how to have a positive approach to caregiving. I heartily recommend Teepa Snow's Positive Approach to Caregiving website where you can see what classes are available live online. I took the Champion series and learned so much. "Knowledge is Power" God bless you and your husband.

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@ocdogmom thank you for your thoughtful and helpful response. I find it very reassuring. 💙

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Profile picture for judimahoney @judimahoney

@blisst
Hello:
Have you called the Alzheimer Association's 24/7 hotline? I believe they may have a support group suggestion, not just for you the caregiver, but also a group specifically for those with Alzheimers, so he can get support from folks going through exactly what he's experiencing.
All the best to you. 🌺

Jump to this post

@judimahoney thank you! I did not realize there was a 24/7 hotline. I’m in Canada, I’ll have to check if we have something g like this here. 🤞

I do belong to a support group through the society but I have only been to one session (so far). My husband does not attend (not really out of his usual behaviour, he’s always been a bit of a “loner”). That said, he is changing and might become more willing to participate in a group. I’ll have to keep trying to suggest he do that.

REPLY
Profile picture for blisst @blisst

@judimahoney thank you! I did not realize there was a 24/7 hotline. I’m in Canada, I’ll have to check if we have something g like this here. 🤞

I do belong to a support group through the society but I have only been to one session (so far). My husband does not attend (not really out of his usual behaviour, he’s always been a bit of a “loner”). That said, he is changing and might become more willing to participate in a group. I’ll have to keep trying to suggest he do that.

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@blisst
Apparently in Canada you text or call 9-8-8
If you're indigenous:
855-242-3310

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Profile picture for judimahoney @judimahoney

@blisst
Apparently in Canada you text or call 9-8-8
If you're indigenous:
855-242-3310

Jump to this post

@judimahoney fantastic! Thank you so much Judi. 💙

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Profile picture for blisst @blisst

@judimahoney fantastic! Thank you so much Judi. 💙

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@blisst
Thank goodness for the magic of the internet.

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Profile picture for ocdogmom @ocdogmom

With my husband's dementia, (we are in our 4th year now) I believe that a warm hug, saying "I love you", "you are the best thing that ever happened to me", a smile, a little back rub go a long way to support him. I remind him of all the wonderful things we have done together over our 45 year marriage. I take out one of the scrap books that I have put together over the years to remind him of what a great life we had together. Sometimes he remembers, sometimes not. I tell him frequently that whatever problems he faces, he is not alone. No one knows how the dementia journey will unfold. True of life in general. I reassure him that we will face whatever the future brings together, that we have been and will continue to be partners for the rest of our lives.
I know that as dementia progresses the ability to communicate effectively verbally gradually diminishes but I think that the emotional need for reassuring physical touch never diminishes and is sometimes the only way left to communicate with a person with dementia. The ability to read your body language and tone of voice lingers long after verbal communication is lost. I think it is important to validate his feelings, and ask what you could do that might help him feel better. I have received so much support on this website. I encourage you to keep posting what you are going through. There are so many caring people on this site that generously share their experience of how they have learned to cope with this awful disease. Also educate yourself about dementia, how the various types often present, how to have a positive approach to caregiving. I heartily recommend Teepa Snow's Positive Approach to Caregiving website where you can see what classes are available live online. I took the Champion series and learned so much. "Knowledge is Power" God bless you and your husband.

Jump to this post

@ocdogmom
Lucky you for being in love. That would be so much easier but after 53 years and many relationship struggles this new challenge is almost the "straw" for me but for the mercy and grace of God, I am able to transform the word prison into teaching and learning a new thing.

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