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pd02
@pd02

Posts: 14
Joined: May 11, 2016

HRCT

Posted by @pd02, May 20, 2016

1. Is HRCT of the lung done to determine the drug to be prescribed? (Because such drugs have several bad side-effects.)
2. Why is HRCT important if the following treatment is only steroids and the regular COPD medicines?
Researchers may get a good look at the pulmonary fibrosis of the patient, but what does the patient get?

REPLY

@pd02, HRCT stands for high-resolution computed tomography. It is an imaging CT that uses high resolution to assess and diagnose a number of health conditions, most commonly lung conditions such as pulmonary fibrosis. This journal article, Highlights of HRCT imaging in IPF, details HRCT`s improved accuracy for diagnosing IPF and for eliminating the need for surgical biopsy. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3643237/

Assessing the extent of disease with HRCT along with other clinical and personal factors (age, preference, etc) will give your care team a better understanding of your condition so that they can suggest the best treatment plan specifically for you.

@powderpuf @purplerod @jvivian @nancyligon have any of you had an HRCT?

Liked by Joan Thorkelson

@aliskahan

@pd02, HRCT stands for high-resolution computed tomography. It is an imaging CT that uses high resolution to assess and diagnose a number of health conditions, most commonly lung conditions such as pulmonary fibrosis. This journal article, Highlights of HRCT imaging in IPF, details HRCT`s improved accuracy for diagnosing IPF and for eliminating the need for surgical biopsy. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3643237/

Assessing the extent of disease with HRCT along with other clinical and personal factors (age, preference, etc) will give your care team a better understanding of your condition so that they can suggest the best treatment plan specifically for you.

@powderpuf @purplerod @jvivian @nancyligon have any of you had an HRCT?

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I have been told by two pulmonologists that HRCT is not immediately necessary, but that it is the next logical step in my diagnosis and treatment. I have been wondering whether I should go ahead with it. My doctors have not even told me whether my fibrosis is idiopathic or have a specific cause. Will HRCt help them determine which type it is?

@aliskahan

@pd02, HRCT stands for high-resolution computed tomography. It is an imaging CT that uses high resolution to assess and diagnose a number of health conditions, most commonly lung conditions such as pulmonary fibrosis. This journal article, Highlights of HRCT imaging in IPF, details HRCT`s improved accuracy for diagnosing IPF and for eliminating the need for surgical biopsy. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3643237/

Assessing the extent of disease with HRCT along with other clinical and personal factors (age, preference, etc) will give your care team a better understanding of your condition so that they can suggest the best treatment plan specifically for you.

@powderpuf @purplerod @jvivian @nancyligon have any of you had an HRCT?

Jump to this post

@pd02, from what I read and in my limited understanding (I’m not a doctor), this is precisely the benefit of HRCT. The high-resolution imagery can give a more accurate diagnosis to determine the type and therefore a more precise treatment plan. I would confirm this with your doctor.

I have been DXed 2 years and on the search the first year of Pf or IPF. A lung biospy was the protocol and proved out the Dx. I have been on ofev for a year. And was accepted into Fibrogens safety trial for 3109 My numbers are not great and general health is good ,Doc numbers are dropping. I swim 3 times a week and it is wonderful, almost never out of breath….has anyone made a major move from one COE TO another? I hope I can be a part of the solution with this study. Together we are strong.

@nancyligon

I have been DXed 2 years and on the search the first year of Pf or IPF. A lung biospy was the protocol and proved out the Dx. I have been on ofev for a year. And was accepted into Fibrogens safety trial for 3109 My numbers are not great and general health is good ,Doc numbers are dropping. I swim 3 times a week and it is wonderful, almost never out of breath….has anyone made a major move from one COE TO another? I hope I can be a part of the solution with this study. Together we are strong.

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Nancy, Congrats on getting into the study trial. Is this the trial you’re referring to
Evaluate the Safety and Efficacy of FG-3019 in Patients With Idiopathic Pulmonary Fibrosis https://clinicaltrials.gov/ct2/show/NCT01890265

You asked “has anyone made a major move from one COE to another?” By COE, I assume you mean Center of Excellence. To participate in the trial, do you have to change medical centers?
When do you start the trial? I hope you’ll keep us posted on your experience.

@nancyligon

I have been DXed 2 years and on the search the first year of Pf or IPF. A lung biospy was the protocol and proved out the Dx. I have been on ofev for a year. And was accepted into Fibrogens safety trial for 3109 My numbers are not great and general health is good ,Doc numbers are dropping. I swim 3 times a week and it is wonderful, almost never out of breath….has anyone made a major move from one COE TO another? I hope I can be a part of the solution with this study. Together we are strong.

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@nancyligon Congratulations on your acceptance into the trial but even more so, congratulations for the attitude you have developed regarding your health and life. It’s wonderful that you swim (I love to exercise in the water as well) and I’m delighted that you say, “together we are strong.” While I don’t have lung problems as you do, I have a paralyzed vocal cord and work to keep my vocal cords strong with expiratory muscle strength training, speech therapy, etc. Yes, please keep us posted as you enter the study and let us know how you are doing. Mayo Connect is a great way to share your journey with others. We will cheer you on! Best wishes, Teresa

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