1. < Hypertrophic Cardiomyopathy (HCM)
Profile picture for doctorboo1

How to decide whether to take Camzyos or have surgery?

Posted by doctorboo1 @doctorboo1, May 19 11:56am

I have recently been diagnosed with obstructive HCM. My doctor is pro-drug treatment but after reading about the surgical option, I wonder if drug is just postponing the inevitable. I'm 79, and was still an avid cyclist, hiker, walker, swimmer, etc until this hit. Basically, I refuse to change my lifestyle, much, and wonder if getting surgery is ultimately a good option. It sounds like it is usually successful. I sure don't want to wait until I decline in fitness etc.

Interested in more discussions like this? Go to the Hypertrophic Cardiomyopathy (HCM) Support Group.

Profile picture for Linda, Volunteer Mentor
Mentor
Linda, Volunteer Mentor | @walkinggirl | 5 hours ago
In reply to @doctorboo1 "@walkinggirl Thank you for your experience. I just got some really bad news. When I proceeded..." + (show)
Profile picture for doctorboo1 @doctorboo1

@walkinggirl Thank you for your experience.
I just got some really bad news. When I proceeded to get into the Mayo system I was told in no uncertain terms that Mayo no longer accepts Humana insurance. Further research showed Humana was dumped on January 1.
While UT Southwestern is a COE, they are blocking me too, even though I've been there many times but under my old coverage and yesterday for an x-ray.
Now im struggling with whether Camzyos will help long enough to get to next December to change my coverage back.
Really upset about it. Working on any work around i can think of. Suggestions would be appreciated!😢

Jump to this post

@doctorboo1 Oh, no! Your news truly stinks and as far as the USA insurance goes, my opinion is.... It's up to your doctor about the Camzyos. From what people posted and my doctor said when asked, it's a miracle drug, it does nothing, it helps for a time and then does not. I have no experience to share; it was still in testing stages in 2022 when I had surgery. Now, may I suggest you contact the Hypertrophic Cardiology Association at 4hcm.org and have an intake session with them. The excellent people working there have dealt with many different situations, including rejected insurance. When 2026 began, many people, including you and me, have had to deal with an unexpected negative situation.

REPLY
1 reply
Profile picture for doctorboo1
doctorboo1 | @doctorboo1 | 14 minutes ago
In reply to @walkinggirl "@doctorboo1 Oh, no! Your news truly stinks and as far as the USA insurance goes, my..." + (show)
Profile picture for Linda, Volunteer Mentor @walkinggirl

@doctorboo1 Oh, no! Your news truly stinks and as far as the USA insurance goes, my opinion is.... It's up to your doctor about the Camzyos. From what people posted and my doctor said when asked, it's a miracle drug, it does nothing, it helps for a time and then does not. I have no experience to share; it was still in testing stages in 2022 when I had surgery. Now, may I suggest you contact the Hypertrophic Cardiology Association at 4hcm.org and have an intake session with them. The excellent people working there have dealt with many different situations, including rejected insurance. When 2026 began, many people, including you and me, have had to deal with an unexpected negative situation.

Jump to this post

@walkinggirl
Thanks for sharing. I had started a conversation with the Association but never got fully into it. Guess I need to go back and have the intake interview.
I have started the Camzyos and after 4 days, I do believe it's beginning to improve my symptoms.
I still am inclined to have the surgery but am hoping the drug will allow me to buy some time while I work things out and see if there's any work around on the insurance.

REPLY
Please sign in or register to post a reply.