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How long can we be on azacitidine (Vidaza)?

Posted by dchavian @dchavian, Feb 26, 2019

,m 68 years old, being with MDS for the past 3 years, 2 and haft years on Vidaza, seems working fine , but for the past month my Hemo goes down , ( I only got problems with my Hemoglobin levels no other problems , and barely symptoms ) to the point I needed a Blood Transfusion last month, Vidaza 5 days every 5 weeks , and Haranex injection every week , I saw the Transplant specialist and seems like I want a good candidate, I,m in Miami, Silvester Comprehensive Cancer Center , great doctor , fantastic nurses ,but still wonder how long with hat be, Doctor say for a lifetime , but how long is that period ? Wish you all the best of luck

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miketllc3 | @miketllc3 | Mar 27 1:37pm
In reply to @miketllc3 "I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every..." + (show)
Profile picture for miketllc3 @miketllc3

I have MDS and have been on Vidaza for 3 years, (36 cycles) 5 days every 5 weeks. My Hemoglobin labs have remained in the normal ranges. It has not gone down. I am 76 years old.

I haver asked my doctor also about how long can I be on Vidaza. Never got an answer. I'll find out and get back to you. I got the impression for life.

All the best, good health.
Mike

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@miketllc3 -Just updating my response from last year. I have been on Vidaza for 4 years (49 cycles) - 5 days every 5 weeks. I was on 7 days every month, but cut it back to 5 days. I am 76 years old too. My labs continue to be in normal ranges. I have asked my doctor, but did not get a clear answer. Hey, we are alive. I would guess it is going to be for life. I have responded well to the treatment. Again, Well wishes to all.

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