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How long can we be on azacitidine (Vidaza)?

Blood Cancers & Disorders | Last Active: May 3 3:49pm | Replies (44)
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Profile picture for n1128q @n1128q

I have cytopenia and intermediate stage MDS. My doctor has me on a schedule of 5 days a week of Vidaza, then 2 weeks off, then 2 days of Xario. I have had 3 cycles and begin the 4th on Monday. When I asked how long I would have to be on Vidaza, she said "until it stops working". Is this normal? How long should I have to be on this? I am 75 years old and due to CAD, am not a candidate for stem cell transplant.

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Replies to "I have cytopenia and intermediate stage MDS. My doctor has me on a schedule of 5..."
Lori, Volunteer Mentor | @loribmt | May 3 1:51pm

Hi @n1128q Welcome to Connect. Vidaza is a frontline medication for patients with MDS. I can see from your standpoint that the comment from your doctor about taking Vidaza ‘until it stops working’ may sound a little abrupt. But that is an honest answer.
MDS doesn’t often go into remission and the only potential cure at this time is a bone marrow transplant. However, patients can successfully be on meds many years in order to prevent the disease from progressing.

Cytopenia with MDS is common. It often causes a decrease in one or more blood cell groups. Is this involving your red/white cells or platelets? Have you required any blood transfusions?

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