How important/helpful is a respiratory therapist for someone with MAC?
I just got an appointment with Dr. Kevin Winthrop, ID, at OHSU. My pulmonologist diagnosed MAC in November and wanted me to go on Big 3 immediately, but after seeing videos of Dr. Winthrop (who is apparently my pulmo's go to guy for MAC) as well as Dr. Huitt from NJH, say that if the CT scan is stable and not a "heavy burden of disease", wait and watch is okay, I opted to go that route. Pulmo thinks I'm delaying the inevitable and asked if want to see Winthrop, which I'm very happy to do, though it is a 5.5 hour drive each way. Since there are no respiratory therapists anywhere near me, I've called OHSU to see if I can schedule an appt while I'm there. Not sure if they'll allow that or if I have to see Dr. first and have him make the request. So far all my airway clearance info is coming from this group and videos, and an in-person consultation would be reassuring at the very least. Any thoughts? Any one with experience with Dr. Winthrop or OHSU (Oregon Health and Science University)? I've seen him in several videos.