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@annagh

Yes. After I saw a video in which Dr. Winthrop discussed wait and watch, and my pulmo was insisting on the Big 3 immediately, I asked for a referral. I first saw Dr. W in May and got a much more thorough explanation of my situation, and the option of being in one of his clinical trails. I'm now halfway through the chlofazamine trail, and think there is some improvement, whether it is the drug or the diligent nebulizing, Aerobika and walking. He's very friendly, open, and I trust him. He said if this knocks my MAC down a bit, waiting and watching may be an option. I figure being in a trial provides as careful "watching" as I can get! And even if it doesn't benefit me directly, hopefully it will help all of us down the road. Unfortunately, he's about 5 1/2 hours away— but worth it to me!
All best,
Anna

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Replies to "Yes. After I saw a video in which Dr. Winthrop discussed wait and watch, and my..."

Glad to hear that you have some improvement, I believe all the things you do and the drug trial contribute to this. Other people in the future would benefit from the trial you are in, which is great. Like the registry I am in to keep track of my sputum, I don't know what I can benefit from it, but I believe it will help the research for future development.
Best luck!
Ling