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How important/helpful is a respiratory therapist for someone with MAC?
MAC & Bronchiectasis | Last Active: Nov 14, 2023 | Replies (9)Comment receiving replies
Hi annagh,
I read your note, I saw Dr. Winthrop in this September, He seems to me very much research focused. Which means he is on top of the NTM stuff. He is the one who suggested I should continue to use Albuterol and Aerobika for my airway clearance. He also recommended that I join the bronchiectasis registry. Now he is tracking my mucus regularly. Did you have a chance to see him yet?
Take care!
Ling
Replies to "Hi annagh, I read your note, I saw Dr. Winthrop in this September, He seems to..."
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Yes. After I saw a video in which Dr. Winthrop discussed wait and watch, and my pulmo was insisting on the Big 3 immediately, I asked for a referral. I first saw Dr. W in May and got a much more thorough explanation of my situation, and the option of being in one of his clinical trails. I'm now halfway through the chlofazamine trail, and think there is some improvement, whether it is the drug or the diligent nebulizing, Aerobika and walking. He's very friendly, open, and I trust him. He said if this knocks my MAC down a bit, waiting and watching may be an option. I figure being in a trial provides as careful "watching" as I can get! And even if it doesn't benefit me directly, hopefully it will help all of us down the road. Unfortunately, he's about 5 1/2 hours away— but worth it to me!
All best,
Anna