How do you handle the loneliness?

Posted by tooyoungforthis @tooyoungforthis, Mar 21 12:36pm

My husband was diagnosed with a rare brain disease that causes EOD. It's been 8 years and he's in the mid-stages of dementia; Still remembers me and people close to him, but his short term memory isn't good and he gets confused easily. He's also extremely paranoid and questions my every word and movement. Conversation is almost non-existent, outside of the accusations and questioning. I have a job, but no friends at work or elsewhere due to my husbands paranoia. It's been extremely lonely. How do you get through it?

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tooyoungforthis | @tooyoungforthis | May 24 7:18am

My post was not about love. It was about loneliness... I love my husband dearly. I always will. But sometimes he's not 'present'. And it's lonely being in a house with the person you love yet no longer recognize at times because the disease has taken so much of him from you. I cherish the moments when he is completely lucid and we can laugh together. But those moments are getting less and less as time goes on.