How do you handle the loneliness?

Posted by tooyoungforthis @tooyoungforthis, Mar 21 12:36pm

My husband was diagnosed with a rare brain disease that causes EOD. It's been 8 years and he's in the mid-stages of dementia; Still remembers me and people close to him, but his short term memory isn't good and he gets confused easily. He's also extremely paranoid and questions my every word and movement. Conversation is almost non-existent, outside of the accusations and questioning. I have a job, but no friends at work or elsewhere due to my husbands paranoia. It's been extremely lonely. How do you get through it?

Interested in more discussions like this? Go to the Caregivers: Dementia Support Group.

joisey | @joisey | Apr 8 3:46pm

In reply to @trishaanderson "Could you tell me more about the Mayo Phoenix support groups?" + (show)

Caring for the Caregiver is on Thurs afternoon for one hour. email Lespron.Katherine@mayo.edu

My favorite support group is 2x/mo. on Wed. email Janet Richards. richards@duetaz.org

Hope to see you at one or both.

wctdoc1943 | @wctdoc1943 | Apr 8 4:47pm

In reply to @tooyoungforthis "Today is not a good day. I just got the results from my husbands most recent..." + (show)

How disheartening. I'm so sorry.

judimahoney | @judimahoney | Apr 10 9:13am

In reply to @trishaanderson "Could you tell me more about the Mayo Phoenix support groups?" + (show)

Here is the link, they meet virtually Thursdays at noon Mountain time:
Virtual
https://mchealth.zoom.us/j/99414140153?pwd=d21NUHh4TVZPN1lLUWVlRWRWWUp2dz09

celia16 | @celia16 | Apr 10 7:14pm

In reply to @tooyoungforthis "Today is not a good day. I just got the results from my husbands most recent..." + (show)

How are things going since your last post? Any changes you noticed after the test results?

tooyoungforthis | @tooyoungforthis | 6 days ago

In reply to @celia16 "How are things going since your last post? Any changes you noticed after the test results?" + (show)

Things are tense for me. I haven't shared the results of the test with my husband yet - we are seeing his neurologist soon so I want her to explain to him (and me) exactly what's going on. The fact that she didn't want to see him immediately tells me the stroke (infarct) is no longer evolving, so that's good news. He's had a constant headache and is very tired which I suspect is the result of this latest incident. Thank you for asking.